Tag: life

Lung Leavin’ Day

Posted in An Ongoing Journal..., Growing Older, Pics1 Comment

The past few weeks have been incredibly stressful and frightening for me, but hearing someone else’s story has quickly put a new perspective on things. Today Heather Von St. James celebrates another year of life, another year of victory over Mesothelioma. I myself had a friend (luthier, Jim Norris) die of this cancer years ago. It broke our hearts to learn that our friend was diagnosed with this particular cancer, as Mesothelioma is usually thought to be a certain death sentence. Heather, however, has shown the world that it is not. Heather is a shining spokesperson for hope. Please learn about her story, and watch her video. Here is Heather’s story. May you take from her experience inspiration to face the challenges in your own life. And please, if you’re able, donate something to help fund research into fighting this disease.

1266854_685378121502165_639066134_oHeather Von St. James and her family. Gorgeous, glowing and glorious is she.

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Woke up with a dull headache already nestled in between my temples, just waiting for me. I wondered how long I was doomed to live with this now. Now that the corner had been turned, and I’d foolishly declared before the world that a) I had been an idiot and ruined my father’s Studio and b) had been stupid enough to announce to the world that I was going to make it all better. What kind of spell had I been under? What the hell had I just gone and done?

Last night, as I stood at the sink (washing dishes for the third time that day – my kingdom for a dishwasher!) a realization came over me in a rush, and I literally felt as if I would vomit into the soapy water. Oh fucking no – the whole thing just presented itself to me in an entirely different light. This was no opportunity! This was a trap! And I’d fallen into it! Worse yet – I’d made the trap to begin with! The ‘if onlys’ came at me fast and furious, and I almost thought I would pass out. Instantly, I was terrified at my future.

I tried to settle down, tried to break the situation down into the few things I knew for sure. Ok. I knew these two things: that if I didn’t do anything about the Studio, one day profound regret was a great possibility, and that if I at least tried to do something about the Studio, then I would never face that outcome.

I have always longed for a quiet, under-committed life, with low stress; a simple, beautiful home in which to live, occasional international travel, visits from out-of-town friends and long, lingering dinners with good wine; musicians with whom to make music, friends with whom to laugh. I’ve long imagined how my little life might pan out here in Greenfield, and it was the great consolation for having lost the possibility of a life shared with my husband and child. But if I took this on – good Lord, my life, at least for the next ten years, didn’t show itself to be any of these things. Crap. I want to be anonymous, I want to be left alone. I want to relax. I just want to be happy.

I suppose I’ve already blown it about the anonymous thing. And some mornings I wake up with a similar dread as today, and wonder just what have I gone and done? More than a thousand people are daily peering into my life, and I have almost nowhere to hide now. I can’t take any of it back, either. It’s all out there, forever.  And all of my own doing. Man, I guess I just never thought…. And that’s the problem. Never thought… How many of us truly do think carefully about things?

It seems to me that there are two ways you can live your life; you can tune out and fill your existence up with distractions (career, sports, shopping, activities, living through your children, food and so on) and never truly think very critically about your life, or you can face that awesomely frightening question of your very own purpose and potential here in this world. And should you find yourself contemplating that second question, you can either go back to that first, comfortable route (I really, really want to go back to that one, but I’m afraid I’ve screwed myself out of it) or you must plow ahead into that alternate, murky future. Fucking scary. Or maybe not for some of you, I’m sure many of you don’t share my way of thinking on this – Lord knows this planet is made up of all types; I’m continually amazed at how differently people approach things. You think you kinda understand how someone’s feeling, after all, we do share the most basic needs and wants, but then you learn that they feel something quite different from what you’d assumed they did. And we all know what happens when you assume….

And I myself had always assumed that life would be fairly easy. That all that yack yack yacking about how tough life was and how ‘youth was wasted on the young’ and such – all that was nonsense. All that Buddhist four truths stuff, all this inner exploration and contemplative journey crap – what a waste of time and energy. Enjoy what you got, help out a little when you can, and just shut up already! Ok, that was a young, middle class girl who had the world in her front yard but had no clue. This was a young person who hadn’t yet faced a lump in her breast or a set of knuckles inflamed with arthritis, or the death of her father (or the ruination of her father’s work at her own hand). So, things change. Or maybe things just wait for you to catch up with them. Maybe these little atmospheric whorls of potential events lie in wait somewhere before us in time, and it’s our tiny steps in between that determine which of them we ultimately enter into.

So as I stood at the sink last night, fighting the urge to throw up into the dishwater, I remembered a woman who’d recently contacted me. She’s a reader of this blog, and she wondered if I might not help her in her own journey. For just a second, my own distress diminished as I considered the fear that Heather must have known. I think I’m afraid – but of what? My issues are external, they do not hold my life in the balance of their outcomes. They are nothing, really, compared to the challenge that Heather faced. Ok, Elizabeth, see? There are far more frightening prospects in the world. You, (saying this to myself, of course) are a wimp. You are being cowardly. How dare you? I remembered also my promise to Heather, and if I never came to fixing the Studio, I could at least do one thing I’d said I would.

Here is Heather’s story. Of course, it’s inspiring. This woman’s courage is impressive, but so too is her follow-through. Ok, so she made that mind-numbingly difficult decision to have a friggin lung removed in order to save her life, and she survived. Wouldn’t that be enough, you’d think? No, apparently not – because Heather has the drive and focus to continue to spread the word about Mesolethioma. She’s still taking action, long after she did her part. She had to face a kind of fear the likes of which each one of us prays we never, ever have to face. Ok, she did that, then she took care of it. Then she goes and does more. (Plus she’s a wife and mom. Cannot underestimate the time and energy that role represents.) Alright. My situation may feel dire, but I can temper my fear just a bit when I realize that it’s external, and that it is not a life or death situation like hers. Thank you Heather, for showing us that nothing is a done deal. I am known to say that this is a pain-in-the-ass planet we live on, and that life here is tricky. Heather, you clearly already know all of that – but have gone far beyond worrying about things and bitching about how hard it all is (that would be me doing that). Thanks for teaching us by example. I’m going to try my best to live up to my own challenges as you have yours. I’m not sayin I’ll do half as well, but you’ve inspired me to at least try…

As Heather says, “With hope, the odds don’t matter”. Thank you for your inspiration, congratulations on all your achievements, and most of all, happy Lung Leavin Day!

Funk

Posted in An Ongoing Journal..., Mommy Mind3 Comments

Been in a bit of a funk all week. Partly because of an old friend’s death, I think. The idea of him being so absolutely gone, and for something that seemed so fixable. Partly that. Partly other stuff too I guess. Stupid stuff. Like a parking ticket I really can’t afford, given to me while I loaded my kid’s bass in at school. And then the way it doubled on the very day I got paid (and the day, of course, I’d planned to pay the ticket). Or like the crown wiggling its way loose again when I haven’t even paid for the last time my doc re-glued it in place. Or maybe it’s been the onslaught of new music I’ve had to learn and read for school. I’ve spent the past two decades avoiding this very sort of thing, now here I am beset with it. Good for me, I suppose. (Some of it’s been written specifically for the classes, so it’s strange, chromatic and meandering and there’s no way to ‘hear’ one’s way out of it). And then there’s the constant lack of money and the fast-coming holiday. Thankfully, Elihu will be with his father, so East coast Santa’s off the hook for an extra week. No extra income, though. Maybe the extra week will buy a solution. I’m unsure though, and worrying about it has me tired and stressed. Then there are the aging folks in my family, an alcoholic brother, a mother who doesn’t think things are all that bad, and all the mental energy it’s taking to avoid thinking about that whole scene. Ich. And there are five baskets of laundry taking up my bedroom floor that need to be folded and put away. A Christmas tree that needs to be bought and decorated, a party next week to host, evites for which must yet go out… And a piano to tune. Which will likely fall to the bottom of the list of priorities when I scrutinize more closely my month’s budget. And lastly – and most vainly – there’s my waistline. I was feeling great this past summer – I really did make my fiftieth a success – but I’ve sadly just about un-done all my progress in just a few short months of Halloween candy, home-baked bread and apple pies (oh, yeah, and after last night, you can add homemade meatballs to the list). Of all people, I should know better! All that deprivation for nothing. Crap. Lastly, there are my fingers. Betraying me with unrelenting osteoarthritis almost every single day. Just last night I noticed a new growth of bone spur on one of my outer knuckles. My third fingers are now getting stuck in between the three black notes (but not the two black notes, which are just a tiny bit further apart. Til now, who knew?) and I must tug to wrest them free as I play. Very discouraging. Very.

All the way ’round, I’m just not feeling too good these days. I just can’t seem to get ahead of it. Can’t find peace. Can’t quite get myself up and out of this temporary funk. At least I hope it’s temporary….

What to do? I make a list. First, I might do well with sitting in quiet. I don’t think I even know how to do that anymore… Yes. Maybe that’s it. I should be meditating. I remember a couple of years ago when I moved here, shaken and sick with heartbreak, I meditated almost an hour a day. Sat quiet, in a dark closet, imagining my in-breaths igniting all the little energy spirals up and down my spine… An hour of chakra-balancing felt like fifteen minutes. Stepping out of the dark room I was always surprised when I looked at the clock. And it helped. I remember it did. But how on earth to get that back into my routine again? It seems so, well, hard. Boring. Ok, how to start? Keep it short. Do-able. Schedule it in every morning first thing. Ok. First on the list. Meditate. Right.

I think the answer might also be a gym membership. I know I need to move. Means I need to apply for a Y scholarship, I guess. Must be sure to use it if they give it to me… but when would I go? And what to do with the kid while I workout? I feel stopped before I start. I suppose I could walk outside instead. Tried it for a while, but petered out on it, completely bored with the same stretch of road, the long, empty silence. Music… yes, I should get music back in my life. Haven’t used ear buds in a good decade (I suppose since my kid was born). But I need help with this too. My ancient, classic iPod sits unused, filled with songs my next-door neighbor back in Illinois gave me (without the legitimate purchase and therefore legal licensing) and I am somehow unable to add songs to it from my similarly ancient and now dead MacBook. How do I retrieve the handful songs I did purchase once upon a time? And why can’t I simply add them to my pirated list, or at least input them without re-formatting the whole shebang and starting completely over? Don’t know, and I can’t seem to figure it all out. So when I do walk (which these days is actually never) I walk in silence. And somehow, I think it might be easier to move if I had a soundtrack. Man. I miss the days of cassettes. They were so much easier. It embarrasses me slightly to say so, but there it is.

You could say that I need some help in general when it comes to technology. Like the kind of help I always seemed to have around in the old days. A local college kid who can help me streamline my administrative duties – the kind of kid who would say ‘admin’ and not ‘administrative’…  I need a kid who’s still cheerful enough to think that none of my ‘admin’ needs are really that big of a deal and who can hold my hand through some much needed media upgrading in my life. There’s the IPod thing, yes, but then there’s so much more. I’ve been advised that as an aspiring writer/blogger I need to Tweet. I bought a book about it, but even after reading it I feel stopped. I can see the appeal, but I can’t seem to get past setting up an account. I’ve also been told it would be advantageous of me to use Foursquare. Really? I’m only ever in one of three places: behind the piano at school, behind the sink doing dishes at home, or driving back and forth somewhere between the two. Is that of interest to anyone, really? (Besides, can I even do all that stuff on my old-school flip phone?)

I’m not sure where to begin. The technology train left years ago and I did not get on board. Maybe all I need is to wait another couple of years and let Elihu help me. But aren’t I supposed to be helping him? Man. Last night we saw a record player in the window of a shop and he said he wished we had one. Careful what you wish for, kid….

In order that I might not sound myself too much like a record player – a broken one, that is – I shall stop my song now. Much to consider, much to do. And much I will no doubt put off til later. Only thing is, I can’t wait too long. Cuz stuff that currently smells bad tends to get even funkier the longer it’s left unattended…

Of Mice and Money

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How much to guard? How much to reveal? This very public forum has me second guessing things I’d probably once have written about without pause. Well, I have some new plans which feel pretty good, and as I’ve no support whatsoever from my husband nor his family, I’m going ahead with it. I’m filing for bankruptcy.

I’ve learned that the legal firms who now handle my debts can attach the money in my checking account. Once they’ve done their legal thing and followed the proper procedure, they are entitled to make the next step towards recovering the debt. Not that I wouldn’t pay the debt if I had an income, or the means, but I simply don’t. And I need the little I have to keep the electric on. So here we go…

I’m surprised at how matter-of-fact this all feels. I feel slightly detached, as if I were gliding through a dream. What the hell is real anyhow? I’m not doing so well economically for the time being, true, but I live comfortably, and surrounded by beauty. So am I truly poor? (Often, when I remark to Elihu that we’re lucky in many ways, citing our ownership of the land on which we live as proof – make that my parent’s ownership of the land on which we live – my son will correct me. He reminds me that people do not own land. We agree to leave each other to enjoy our own little pieces of it in our own ways, but, he reiterates, we do not own the land. Ok. He’s right, I know, but still it buoys the spirit to think we have ownership of something.) My ego-driven self really wants to know I still have something to show for myself here, yet in the end I do know that nothing is truly ours, and despite our best efforts everything will change form and cease being what it once was. I offer my beloved Aerosoles mid-heel slip-ons, frayed at the edges by gnawing mice as example. Looks like Jesus was right. All our stuff is going the way of rust, mice and moths at some point. So perhaps wealth – or at least the perception of  having stuff – is rather a shifting mirage.

So here I go. I’m starting over. I can only buy things that I have cash in hand for. Thankfully, that’s not really a new challenge; I’ve been living like that for nearly three years now. My needs are fairly modest, and I’m good at being frugal. Who knew? This is a reality I would never have dreamed of three years ago this time. I admit I get to feeling sorry for myself when I pass the patrons seated on the sidewalks in front of the wonderful Saratoga restaurants – I covet their elegant-looking salads and thin-stemmed wine glasses, but hey, I’ve been there, done that.

Not to worry, I’ll taste the arugula again.

Birth and Baptism

Posted in An Ongoing Journal..., Divorce Diary, Mommy Mind3 Comments

It was three years ago today when my husband saw his second son born. My husband’s pregnant girlfriend was due to deliver their baby sometime around the middle of June, so I’d made plans for Elihu and me to be out of town during that time. The wait was over.

As my husband had not officially moved out of our house, and as the couple had no place other than that of her parents, I had begun to make peace with the idea of starting over far across the country, closer to my own family, and leaving our marital home to the two of them and their new baby. Just a few years before I’d left my beloved Evanston, just outside of Chicago and moved to the rural town of Dekalb so that Fareed, Elihu and I might start our life anew. Now, without my husband, I had no reason to stay in that small town. I packed for a week’s vacation and took Elihu to the place that would soon be our new home. My son and I were far away when Charlie was born, three years ago today.

A friend had insisted we come and enjoy her family’s beautiful pond anytime we cared; they were all away and busy during the daytime, we would have the dock and water all to ourselves. On that sunny, warm June 12th, 2008, I took Elihu to the pond for an afternoon of pollywogs and distraction. While he had little idea how his own life was changing, I did, and that day was heavy with a strange, sick brew of feelings. It seemed I was living in a dream. My husband was about to have a new child. The child that had blown the lid off of everything.

My comprehension about it all was primitive. I could still not understand this. I’d lived through nine months with Fareed still living in our home; each day I was dreading the event that he himself awaited with great excitement. Such a queer mix of things, I could do no more to keep myself sane than to leave town and come back after the babe had been born. Here I was now, with my son, on a hot summer’s day, toes dangling off the dock in the cool water of a country pond while almost a thousand miles to the west something was changing. Here, my son was busy with nets and buckets, scooping up pond life, unaware of how his own life was changing in that very moment.

The sun and sparkling water gave me some relief. Elihu had taken an interest in the fishing gear there and for a time my energy was spent helping him bait and cast, and making sure that he didn’t hurt himself accidentally on the hooks. I was on vigilant watch against mishaps for a half hour until he lost interest and contented himself again with the net. I sat back in the Adirondack chair and looked out over the white pines that rimmed the water. I watched my son play, and thought to myself that in spite of our having been a family til now, Fareed had shared very little time with the two of us.

Most of my memories around Elihu did not include his father. Instead my memories were mostly just the two of us. Walking around our Evanston neighborhood, riding the bike on the lakefront, visiting friends, together at rehearsals, radio shows, performances. I had Elihu with me all the time, everywhere. I’d always felt this was a time of waiting. Waiting for our new life. A life in which I would set aside my gigs and projects to raise a family. A life in which Fareed would tour less, stay home more, enjoy our company. Now, it seemed, it might be just Elihu and me, alone, forever. My heart couldn’t bear this.

Here Fareed was, embarking on the familial journey with someone else instead of us, his real family. How could this be happening? We’d moved to Dekalb just two years ago in order to start over, but not like this! I tried to drink in my surroundings, to buffer myself against the constant barrage of thoughts. I needed to breathe, to separate myself from the pain. It felt like nature, water, air and light were the only things that could help me. The lakeside day was so bright and hopeful, it was oblivious to our loss. It was a day of contrasts that I could not comprehend.

My thoughts were interrupted by a huge splash. I needed not an instant to think, but sprang from my chair. The pond water was a dark amber, tinted by the tannin of leaves, and it obscured even bright objects only inches below the surface. As I looked down I saw the top of my son’s head descending through the water, its shape disappearing in the dark. I threw myself down into that darkness, grabbing blindly for my baby, finding him as fast as I could, then pushing him upward, my legs sinking to the knees in the silty bottom. If I’d been rescuing anyone other than my only child, I don’t know how I’d have gotten purchase enough on the ground to push him into the air….

But this was my son, my life, my everything. Somehow I lifted him above the water and again another foot upwards to the dock. I myself sank back down again after I’d set him on the platform, but in a rush of adrenaline I lifted myself up and onto the dock beside my Elihu, who was scared, but thank God, crying and alive. I held him against my body, I rocked him, I tried to soothe him. I held him as I’d never held him before.

We sat for awhile, waiting for our hearts to stop pounding. The horrifying image of the dark water closing in over my son played again and again in my head. He might well have died. Yet he didn’t, I had saved him from that. I’d given birth to him once, and today in some way, I’d given birth to him again. He was alive, I was alive, it was ok. And once again, it was just the two of us. It seemed the universe had demonstrated in the most acute way that we two were starting over. We had emerged from the water somehow changed.

As I drove up to my parents’ house my cell phone rang. Fareed’s tone was matter-of-fact. While he was not overtly rejoicing in his news, his mood was light and upbeat, different from the somber tone he’d used all those months as we waited for this day. I could hear in his voice a guarded excitement about his new life. His new son had been born about forty-five minutes earlier and he had just wanted me to know.

But then he went on to tell me details about the delivery – things I didn’t want to know, couldn’t possibly share delight in – while I sat in my car, still wet from the pond, dazed, trying to integrate what had just happened here with what had just happened there. As Fareed continued to talk, my mind began to piece together the last hour. It seemed that nearly the moment the new baby was born, my son was tumbling into the water. As the newborn took his first breath of air, my son struggled for the same. I sat, unmoving, stunned by the metaphor that had been placed so clearly in my path. This was a day of emergence and change. It was a day of cleansing and rebirth.

And if I’d not been entirely convinced before, I was then. We had been washed clean of our old life – and a new one had just begun.

Men Behaving….

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Although I have a huge pile of paper on my desk and a very long to-do list, it seems that this may be a good time to write about a topic which is today in the news.

Yesterday, when I first saw the Arnold Schwarzenegger story, I was tempted to fire off a post on the subject, given that it is one with which I am intimately acquainted. And yet, I held back, knowing that I had more to say on the event than the predictable and understandable rants that one might expect. And last night, as my still-husband juggled care taking duties of his two very young boys while trying to communicate with his eldest son by Skype, once again it hit me. The situation throws the family into painful turmoil, yes, but beyond the obvious, it causes the father of the unexpected children his own kind of pain and suffering.

Many times I’ve considered Fareed’s side of this equation. It’s got to hurt to be a father who loves his child, but can’t be with him. I feel Elihu’s sadness when his father says he has to go at the end of a phone call. I also sense Fareed’s feelings of sorrow and powerlessness. Only today he sent an email expressing his concern over things that Elihu and I had recently dealt with, and while these were now history in our fast-moving life, they were yet unaddressed in Fareed’s world. As I explained, we simply cannot catch him up on everything that we experience; we can’t communicate every trauma, dilemma, sickness or difficulty – or even the tiny triumphs and discoveries. There’s just so much life that goes on. If a parent is not physically there, it’s just a matter of simple logistics. Fareed loves his son, yet there he is. Caught in the fallout of his own creation. He simply cannot be a live-in dad to two young families at the same time.

For the father who doesn’t entirely want to be there – that may be another story. And while I find it hard to believe that a father wouldn’t want to know about his children’s lives, at least deep down in his heart, I do believe that for some fathers it’s not a priority. (My own feeling is that shame, dysfunction or economics might hold some dads back from being more involved with their estranged children.)

But Fareed is, and I defend him often on this point, a father who loves his children. In fact, I can’t quite understand how he feels so deeply for his daughter Brigitta, when she hardly knows him as a ‘real’ dad, but rather as simply her biological father. I can perhaps understand his need to know her when I examine how I myself might feel if a biological child of mine was removed from my world. I don’t know that I could bear it. He once broke into tears, saying to me that he hoped one day I could meet her and accept her. I’d told him I was working on it, and I was. This is all a very, very difficult process. It’s hard on the wife who finds her world absolutely smashed in an instant, yes. It’s also an enormous burden on the father of the surprise child. Really all one can do is take a breath, and wait for the passage of time to wash mercifully over the broken hearts.

Why should I feel any empathy for these careless men? Really? Yet I do. A moment after the news about Arnold’s love child sank in, I thought ‘how much pain he must have been in all these years’. He had to be apart from a child he created, plus he had to bear the burden of that secret and keep it from his own family. What a horrible situation to be in. Yes, he, my husband and SO many other men have behaved like short-sighted, selfish asses. But look, their hearts are now broken too.

And the children? I know that I have guided my own to find a place of compassion and understanding, as I myself have tried hard to learn those things too. One of my oldest, and dearest friends is the product of an extramarital affair. This person has managed to grow into an exceptional adult – a good friend, loving spouse, and wonderful parent – and has found a way to make it work. This friend chose to close all possibility of contact with the father, and this was what worked in this situation. I imagine there are many ways to make it work. Certainly many children have grown up in a fatherless household. Our own President Obama did.

I also imagine this is a much more common occurrence than we’d think, however, if you google the subject, there’s not a whole lot of support for the single moms that result from the man’s indiscretion (believe me, I’ve searched). I remember in one such search coming across a comedian going on about what an upstanding guy he was. He was married and had no ‘outside children’. That stopped me in my tracks. There was a contemporary term for this? ‘Outside children’? You mean that it’s so common that we might just assume a regular married guy may well have ‘outside children’?? Man, where had I been? I guess all you have to do is take in a couple of Jerry Springer episodes to know that it goes on routinely, and all over. But how does it all end? We all hear the titillating tales, but soon after they’re lost in the wash of incoming news. After some personal exploration into these stories, I’ve come to realize that in the end, if you can’t afford a really good, committed attorney, the resulting single mom ends up in a far worse economic situation, whether she was the wife or the extra marital partner. And the only payoff is…. you got it, the gift of raising her child. The man may be able to pay his bills, but he must always live with the pain of being an absentee dad. The mom may now live on food stamps – but she’s there when her son loses his first tooth…

My dear friend, the one who was raised by a single mom, was in this case a child of the ‘other woman’. It puts a strange spin on my perspective; for she – the ‘other woman ‘ – was an excellent mother, yet it was the ‘other woman’ who utterly changed my life and broke my heart. So how to view this ultimately? I can’t say I’ve found an answer. I struggle with it almost daily. My feeling is that whomever rises to the responsibility of providing for the child is doing the right thing, whether that be in form of providing money for living costs, physical custodial care, or simply encouraging the child to have a healthy relationship with the now-absent parent.

No easy answer. Maybe next time try a condom. Just sayin.