aging parents – The Hillhouse

Under Over

December 7, 2025December 7, 2025 Posted in An Ongoing Journal...Leave a comment

This past week I’ve been feeling off. Down, dark and scared of the other shoe dropping at any time. Some moments it’s really terrifying. So I try to soothe myself by eating with a vengeance, or drinking as much as as college boy. I stay busy. I keep myself distracted. I pass the days waiting for the nights, when I take my faithful Ambien and check out. But even then my dreams won’t let me be. My dream life is rich and busy, and most mornings I wake without a sense of having truly rested.

Something has felt different for me over these past few months. Something is nagging at me, and it’s been growing and growing. I’m trying to identify it. So many stressors. Hard to know what’s at the root of my ill ease. It’s a cocktail of many things I suppose.

If there’s any wisdom that I have gained from 62 years on this planet, it’s this: take your hunches – your instincts, your tiny afterthoughts, your conscience (my son and I have always called this the “God voice”), magnify it ten times – and then do what it tells you. Hear the message, heed the message. (Most of the time it’s been a really useful tool for life. I recommend it.)

My thoughts have been consumed lately by one nagging thought, but I can’t tell if it’s the neurosis of an aging woman or an insight from the ether. The voice keeps saying “You just need to outlive your mother”. My mother is ticking along at 90, with only a few short-term memory slips. On the whole, she’s very much who she’s always been. Me, I kinda feel like I’m waiting for some major health shit of my own to hit the fan. So many of my peers have suffered awful and unanticipated health crises; why not me too? I’m concerned; as the cotter pin holding that’s holding the whole Conant project together, I can’t leave until stuff gets sorted.

I’ve had a couple of strange feelings in my body, one being a persistent pain which travels around the upper left quadrant of my chest, sometimes under the breast, sometimes in the armpit, sometimes like a line up the left side of my neck. I’ve thoroughly employed my “God voice” technique here – asking for an assortment of tests over the past year, yet at this point my doc and I are basically giving up the search and are attributing it to a referred pain from a decades-old broken shoulder. But I’m not convinced. What to do? I think I’ve done all I can. Or have I?

I’ve been working on the physical crap inside my house for a while now with some good progress. Elihu’s big move to Brooklyn this summer gave a huge push to our household’s downsizing. He wanted to move out with all of his worldly possessions taking up just the space of two large rolling suitcases. And he did it, purging the rest. Inspired by his progress, I took up the charge and continued the project after he moved out. But still. So much stuff.

Just how is the garage always full after ten years of garage sales? The way in which we Westerners amass physical clutter is astounding.

My mother has begun to let go of the idea that I will eagerly inherit her house and its contents. There was a time, a few years ago, when she’d thought that naturally I would move into her house after she was gone. When I pointed out to her that I already had a house – and that I, as an aging empty-nester would have no need of a large, four bedroom home, she looked genuinely surprised. She’d just assumed I’d want all this stuff. It’s been a journey, but I think she’s finally coming to understand that her Baccarat wedding crystal and her well-worn Limoges china are of little value in today’s world. It’s sad. It is. But it’s the reality of this physical plane. Dust to dust. Only so many museums. Only so much room for our stuff.

As a creative, I naturally have notebooks upon notebooks (let’s not even consider the hundreds of cassette tapes of demos, rehearsals and ideas). Even though the reality is that I will not revisit and reanimate 99% of those ideas, I still wish to keep all of these for my lifetime as space allows. They’re only of interest – and comfort – to me. Once I am gone, into the fire they can go.

What I do wish gone is all the extra paper that I’ve hung onto. Programs, set lists, photos, ticket stubs, doodles, letters, diaries and so on. Things essentially only meaningful to my mother, my son and me. I so wish that I could indiscriminately grab piles and throw them onto the fire pit! But then I see a hand written letter from me to my parents when I was a child at camp, and I think “Oh! Elihu and his children will get such a kick out of this one day!” Myself, I find letters and notes of a personal and intimate nature of interest. But will my grandchildren find this ephemera fascinating or irrelevant? Will I even have grandchildren?

I admit it, I’m stuck. Taking a breather here. The burn pile will grow. I just need a minute.

The Studio is finally on the market after two years of town bureaucracy and lots of other back-and-forth legal nonsense. I emailed the architect to tell him the news, and it bounced back. A quick search informed me that he had died a year ago. He was an old family friend, so this was sad news. But it also seemed to confirm that things were truly in cosmic order. The time had come to let the place go.

My brother Andrew is another item on the unresolved list.

Just last night as my mother and I tried to discuss the topic, I saw that not only were we not any further along in the process of discussing his caretaking, but we had backslid. My mother and those of her generation have a hard time getting honest about personal things, and having a mentally unwell child is, in my mother’s eyes, a failure on her part and a point of shame. So how does she deal with this? Denial. Lack of willingness to see the problem. You can’t solve a problem if you don’t think you have one!

My brother is as hoarder whose house is something you’d have to see to truly understand. He cannot throw things out, whether mementos or garbage. There is no distinction to him. He is a deeply intelligent person, but he has been consumed by his disease for most of his life. He hasn’t had a job in over 40 years. Has no dentist, no doctor. He isn’t even in the system; his dysfunction is such that he cannot follow through on any administrative endeavor. One year I got him food stamps, but he never followed through to keep them. He lives with an enormous inguinal hernia hanging over his crotch. He’s an alcoholic and does nothing but sit in front of the TV at mom’s. She gives him pocket money (his only income). She gives him her car to drive. She makes him dinner every night, fretting aloud about what he will and won’t eat, and what she’s got planned. Some nights he goes on a bender and never shows. My mother waits it out with no idea if he’s alive or dead (Andrew won’t answer his phone). Many times through the years I’ve had to peek through the window panes into his shack to see if he’s ok. But if he saw me doing this, he might fly into a rage, so there’s some risk involved. My brother showers, eats and watches TV at her place, then retreats to a tiny, dilapidated farmhouse at the foot of the driveway. Dysfunction of the highest order.

At present, everything is propped up and working. Mom has a reason to live; she has been a consummate chef and feeder of people for her whole life. She has someone to check in on her, take out the garbage and collect the mail. Andrew has dinner, booze, entertainment and shelter. They enjoy a symbiotic relationship. No need to dismantle things. But one day, shit’s gonna fall. And inevitably, it’s gonna fall on me. I’m as ready as I’ll ever be. But I’ll feel better once we finalize the will and get Andrew’s future care plan laid out. If mom won’t believe me that it’s a major concern, she’ll believe our family attorney. It’s on the immediate to-do list. Maybe my heart will lighten a little when we get our plans defined on paper. Maybe.

When I opened my eyes this morning, I turned on my phone and began the search for some dopamine to start my day.

Instead, I found a New Yorker article about a man my age of Jamaican descent who’d lived nearly his whole life here in this country and who had been deported by ICE to a maximum security prison in Eswatini. The agents employed needless violence.

The next story I read was authored by a mother who had lost her only two children. Both sons as teens committed suicide. They were deeply intelligent, insightful young men. But they were driven to such despair by either this world, their temperaments – or both – that they took their own lives.

Following in my feed came a post by a friend whose only child was killed a year and a half ago. She and I were both single mothers of only boys, both jazz singers, both from Chicago. I’d always felt a bond of some sort with her, and her loss has become a part of my life in some small way. I can’t help but feel a mixture of heartbreak and guilt when I think of her situation – and fear for the safety of my own son. But my reality is still comfortable. Hers is not.

This whole fucking world is brutal. And I am feeling it. I’ve got it good, I know I do, but I’m feeling the weight. The Trump era has ratcheted up the stress level on this planet for sure. It’s definitely playing a part in my unease. I long for freedom, peace and comfort for every last one of my fellow humans, but it seems further off now than ever before.

I’m under the spell of overwhelm.

Whereas

March 23, 2015March 23, 2015 Posted in An Ongoing Journal..., Elihu's Room, Growing Older, Pics1 Comment

My friend Betty turned 90 last week. Her family threw her a big surprise party, at which the mayor of Saratoga Springs was in attendance. The mayor herself even made a formal proclamation citing the importance of Betty’s contribution to the community over the past half century. (A good dose of ‘whereases’ contained therewith. !) Betty’s good works have touched us personally too; before Elihu applied to the Waldorf School, she’d called them and put in a good word for him. She does things like that. And she still plays music, still travels, still goes regularly to the Y… She’s still participating in life – in ways most folks half her age don’t. In fact, if I were to compare our schedules, I’d bet she’s got more on her calendar than I have on mine. But I think she’s chugging along with the energy of a fifty year old precisely because she’s got so much going on. She’s got things to live for, experiences to look forward to. And a lot of friends to help her celebrate along the way. Makes me wonder what my life might look like in another forty years…

I do think I’m at the doorstep of a new chapter. Would fit in with the ‘seven year’ sort of pattern people often identify in their lives… We’re approaching our seventh anniversary here at the Hillhouse at the end of this coming summer, and while I still feel like I just got here, time tells me otherwise. Time. Impossible to understand, as it goes by fast or slow, it seems long or short, yet the temporal truth is that it just keeps ticking along, unwavering, oblivious to whether or not you’re having a good time or a lousy one. To the seven year old time hardly exists, to the nineteen year old it stretches on indefinitely, to the thirty year old it still seems as if it will likely go on much longer than the warnings of the aged would have you believe…. But then, one day, you realize you’re not just fifty – you’re past it. You’re into the next stretch. And now, now you begin to really get it. And you realize that you’ll be ‘getting it’ with even more clarity in the years to come – that is, if you live to see them. Because by the age of fifty-one you begin to feel pretty lucky to still be here at all. You realize that you’ve lost friends, that more will leave in the coming years, and that you too might well be going on your way like them. There is absolutely no guarantee that you’ll still be living a year from now. Or five years from now. Or even tomorrow. And this time you know that. You didn’t quite believe it before, but now you do. Finally, time itself has convinced you.

So now what? How do you move forward into your life in order to maximize your experience here? How do you make the most of the time you have? At the risk of sounding like a Facebook platitude, your work here is to find your ‘thing’ and throw yourself into it. We’re encouraged to be brave, to be of service to others, to pay it forward. I agree that all those things are important. But it’s the how of it all that has me stopped at the moment. I look at the Studio with great visions, but right now the ‘hows’ are feeling like a huge wall in front of my face. I can imagine how it would feel to be of service, to pay it forward, to do something that contributes… But still, even after half a century on the planet, I’m still trying to summon the courage to actually put that feeling into action. It’s been quite a while since I’ve learned new skills, but this old dog’ll have to learn some new tricks soon if forward movement’s to be made. Something’s gotta change, and it’s likely going to have to be me. Who knew that change was still part of the program at my age? Apparently, change is always part of the program. (Some may think this is obvious stuff. Mech. Call me a late learner.)

Yesterday Elihu and I made a trip to the mall and had supper at the Asian place we’ve been going to since we moved here. We enjoyed chatting with the young daughter of the owners, who is now in college. We inquired about each other’s age – and she wanted me to guess hers. My peers will laugh to know the phenomenon of guessing a ‘younger’ person’s age; they all look just about the same – younger – so it’s really not so easy as you might think. But I guessed about right. Guessed 19, she was 20. Her turn. I let her off the hook, but she insisted. “Thirty-five” she said, completely sincerely. When I told her how old I was she was shocked. Ha! Interesting what presents as youth. I think attitude and energy have everything to do with it (and maybe a little hair color). So who cares if my neck isn’t behaving? – it seems my spirit is still doing its thing. Grateful am I.

I like to ask my young piano students which age they think will be the ‘best’ one of all. Kids are forever wishing to be older, but then there comes this magic window in which things all seem to do an about-face. Young adults lament the ‘big three-o’, but just a decade earlier they were in a hurry to get older. So where exactly is the sweet spot? Where exactly does one aspire to be? I’ve heard small kids say from 19 to 27. Can’t remember a kid saying thirty. But that’s understandable, thirty hardly even exists to the wee ones. Personally, I have always thought the ideal, magic window happens between 25 and 45. Youth, beauty – and the power that goes with all that – is yours. But there are other things to consider, like wisdom, control, sense of self… Things that usually come more into focus after forty…

Our friend Martha says that 42 was her magic year. My mother liked all of her 50s the best. Me – I’m not liking my sagging body these days, and I doubt things will improve on that front from here on in – but I agree with mom, I like being in my fifties. I do think that there’s a certain peace and solidity that comes with being older. Nothing’s as urgent, as all-important or tragic. Losses are tempered. Joys are precious. And whatever happens must somehow be dealt with. So I’m liking being 51. Maybe not so much when I have to don a bathing suit this summer, but who knows, maybe I can let that go. Maybe. The trick is to stay busy with the truly important things, so that the things I have no control over (like the crepey thigh skin) will seem a bit less important. Sounds like I’m talking myself into this, huh? Yeah. Maybe kind of. But I think it’s worth convincing myself if I’m to make peace with the coming decades.

But I’m glad to be where I am in my life. I may never learn to speak Italian fluently, or make large sums of money, or get down to my pre-baby weight again, but these days I’m beginning to think maybe I should toss some of those dreams aside and concentrate on what’s in my immediate path. I’m blessed beyond my understanding to have such opportunity available to me, to have my mother next door, to have my beloved son with me, to live in this beautiful place, to have my health, my hands (hey – they’re not what they used to be, but they work well enough) and of course, my very life. All before me. However long – or short – that may be.

Whereas I, being a bit older than I was before, am resolved to continue my work and never stop moving toward my goals, it is hereby proclaimed that everything will be ok and everything will work out in the end – regardless of how it all works out. (Not sure it’ll keep working out for another thirty-nine years, but it’s something to shoot for!)

Betty and Elihu

Mayor of Saratoga Springs, Joanne Yepsen makes a proclamation.

Such a wonderful thing. Well-deserved is an understatement.

A photo of Betty from half her life ago.

My kid’s pretty good at hanging with folks of any age.

But he especially loves the wee ones.

What 90 and 80 look like. (That’s mom on the right.) Definitely not the 90 and 80 of yesteryear.

Elihu offered his recitation of Ozymandias for Betty and the partygoers.

Whereas a good time was had by all, and whereas Betty has set a high standard for the rest of us who have not yet caught up with her ninety years, be it known that we are all inspired to go forth into the world and live with purpose and joy (which is always easier to do after one has enjoyed some fabulous food and drink!).

Time Game

April 24, 2014December 18, 2021 Posted in An Ongoing Journal..., Growing Older, Mommy Mind6 Comments

For a few months now I’ve been toying with the idea of drawing up a timeline for my life. To make a visual representation of it, sort of like a roadmap from the known into the unknown. I’ve been, as regular readers may know, in sort of a sentimental funk recently, and having made a near-complete inventory of my life and its landmarks, as well as having become more familiar with those of my parents and their parents too, it seemed both a sensible and tangible way by which I might begin to better comprehend and really understand what my own finite life might look like. It might seem a strange project; trying to posit the year in which I might possibly die, maybe it might even sound a bit morbid to some. But I think not. I need to get a handle on this mortality thing by whatever means necessary.

I’m not a person who can simply tally things up in my mind with ease. I’m just not great with numbers. In math class, word problems had me wanting to chuck the book over my shoulder like the characters in a Peanuts cartoon, and if anyone ever asks me to count change back, it takes me a minute to wipe the glassy look from my eyes before I can get down to business. I’m hard-pressed to tell you how old I’ll be in thus-and-such year, because I was born in a ‘3’ year, which prevents sums from rounding to a tidy 5 or 10. (Yes, I could simply take away three or add seven – but this is precisely the kind of stuff that rattles me.) I do know that my son is 40 years younger than me (minus 9 days, but who’s counting?) so thankfully I always know where he and I stand with respect to each others ages.

But exactly how old will I be in 2045? That just sounds so Jetsons-ahead that I cannot begin to comprehend it. It makes me think of my dear old father. How in hell must he have felt to hear that it was the year 2013? Dementia aside, anything past the year 2000 – even for middle-agers like me – always felt like some far-off futuristic land into which we would never enter in our lifetimes. Even though we knew that in all likelihood, we would. I don’t know about you, but ten mintues to midnight on New Year’s Eve, 1999, I still didn’t really believe where we were. (I had the honor of counting down the new year to a very high-brow and refined crowd at a tony downtown Chicago restaurant; the smattering of muffled applause at the event was a bit underwhelming after all the hoopla working up to it. Woo hoo.) So imagine a cat who was born in the 1920s finding his daughter informing him ‘Dad, it’s the year two–thousand thirteen‘…. How crazy must that have sounded? How does a fellow who’s losing his memory deal with that unlikely-sounding date? Myself, I don’t want to be caught off guard. And so this morning I made myself a map.

At this point in our futuristic present, I suppose there’s probably an app for making such a timeline. (If there isn’t, you’re welcome.) And given the enormity of this world, I must remind myself that the chances are pretty great that something like it has been done before. (I remember thinking at dad’s ‘living wake’ how novel that was – but I didn’t kid myself to think we had been the only ones to do so. Anecdotal stories poured in shortly thereafter confirming my suspicion.)

I made my timeline by parceling off a hundred and fifty years in five year increments, noting the births of my parents, my birth and my son’s, and then the death of my father. I made a bracket that spanned the eighty-five year lifetime of my dad, and then I took that eighty-five year measurement and used it as a measure for a possible projected lifetime for mom, Elihu and me. It was interesting to see actual dates to represent our potential years of death. Even though my mom is now seventy-nine and likeliest the first of we three to go (I still don’t actually believe my mother will ever die), I’ve still never found myself literally considering how much time she has left. And me, of course, why I’ve always just envisioned my own life trailing vaguely off into the murky and unseen future without ever really coming to any definite conclusion… (Because I too, in my heart of hearts, will never actually die, you see.)

Ah, but even though I do in fact understand that I shall be dying one day, I’ve never stopped for even so much as a minute to envision how, where… or when. You can see the insight this exercise provides, right? Now I have number. A target to be mindful of. A bit arbitrary, sure, but much clearer than no idea at all. And my son? Well who in hell ever stops to ponder the time in which one’s own child might leave this earthly plane? Me, apparently. So, you may wonder, what is the data? What do those numbers show?

Well, if we were all to live as long as grandpa, then mom will die in 2021, I’ll die in 2048, and Elihu in 2088. Man, that last year just sounds off-the-hook wrong. Two-thousand eighty–eight? That sure seems far-off. But aside from the shock of seeing that distant-seeming year in black and white, I am just a bit stunned at what I now see before me. Damn. Ok, so this may not seem groundbreaking or revelatory; I realize that I can easily just add 85 to anyone’s birthyear and arrive at the posited year of death, but to see it all in a linear form in front of you on paper is something completely different. At least for me.

One thing that caught me a bit by surprise was how small the area was in which my father’s and my son’s lives intersected. Dad had this long, full life, but only a tiny portion was shared with his grandson (and to make it ever a bit more heartbreaking, Elihu hardly knew his grandfather as the elegant and eloquent man he once was). And if I pushed the timeline out a bit to encompass the births and deaths of my grandparents, what struck me then was how far apart our generations were. My grandmother had my dad when she was 45, I had Elihu at 40, so already you can see how wide the space becomes. Also, my son was born exactly one hundred years after my maternal grandmother; on both sides we’ve given wide berth between generations. To give it an even more surreal touch, my great-grandfather (dad’s maternal grandpa) served in the Civil War! He was young, 16 or so, when he as a drummer boy lead the troops into battle. (Obviously he came back safe and sound, because here I am.)

But for how much longer am I here? And once again the largest question of all comes to the surface: just what the hell is it that I am supposed to be doing while I’m here?

I’ve suffered with panic attacks since the age of fourteen, and can say that a contributing factor to panic is the sense of this world being too goddam and overwhelmingly big, and me, the experiencer of panic attacks, so goddam small and powerless within that big world. In large part panic attacks are about control – or more accurately, lack of control. It comes from being acutely aware of just how immense the world is, how limitless the options, how daunting the task of finding that one reason you’re here, that one thing that only you can do… My most difficult challenge in life has always been to truly feel that I’m ok at what I’m doing. That I’m not just existing for naught. Spinning my existential wheels, so to speak. I don’t have the tenacity or desire to be truly outstanding at anything, but at least I’d like to be comfortable just being here. I might not set any records, but I still want very much to feel like my tiny life added to the value of the planet. Having never paid much attention to the constant escape of time, I’m all of a sudden feeling a mild level of panic rising inside… is it too late? And if it is too late – for what exactly is it too late?

In my job at the Waldorf School I am blessed to have personal relationships with a great number of children, from first graders to twelfth graders. Having been there for two years now, I can begin to see how it is that children grow from teeny to teenager. I can now look at an eight year old and begin to guess what she’ll look and act like as an eighteen year old. Sitting at the piano looking out at the second grade class, I realize they’ll be freshmen in high school when my own son is a senior. These tiny babies will be lumbering, smelly, adult-sized humans by then. Truly unfathomable for me only a few years ago, before I came to know what it was to have a child of my own grow older, but now, today, I can begin to get it.To truly see it in my mind’s eye. Seeing the process up close like this fuels the fire and once again the nagging question burns; am I too late? What have I not done yet that I need to do before it’s no longer possible? Until only a few years ago, I had all the time in the world and nothing seemed impossible…but not so now. Now I know about things like arthritis and bad knees. The concerns of old people are becoming concerns of my very own, and it’s got me feeling the heat. Now I can finally hear the ticking of the clock…

At the time of this writing I have 2,050 subscribers. I look at the number and no longer think of two thousand and fifty people, instead I think: how old will I be in the year 2050? Now I know. I will be 87. If I make it. And if I do make it, what will I be doing with my life? Will I be doing good work on the planet, or merely existing? To have an end date in mind really does wake one up. It renews a sense of urgency where there was once nothing but exhaustion, frustration and run-of-the-mill complacency. I may still be a bit crabby about being here, I might still feel I have more on my emotional plate than I’m capable of successfully dealing with, but at least now I have a better idea for how much longer I might even have the opportunity to be such things at all.

Maybe, with an ending in sight, I’ll find the resolve to get down to business. To write more thank-you cards, smile more at strangers, tell more people how much I appreciate them… And maybe I can find the courage to give myself a list of the things that I’d always thought I might do ‘one day’…. The days ahead may well be fewer than the ones behind. If that isn’t enough motivation to square away the proverbial bucket list, I don’t know what is.

To make life seem a bit easier and a little less daunting, I sometimes like to think of it as a game. You gotta play by a handful of rules, you get to use your natural talents when making your moves, and if you apply a little clever strategy you can accomplish things beyond the ordinary, expected outcomes. I’ve got a modest bag of skills to play with, but more importantly, I have an eye on the clock and I’m ready to play the second half. Ready, I suppose, as I’ll ever be. Yeah, guess it feels like game time now…

Post Script: It’s amazing how quickly my math skills have improved since I linked them to this little age experiment! With each handful of new subscribers I find myself easily computing my corresponding new ‘end age’. It’s motivating, for sure. I’m fairly sure I won’t make it this far (Elihu and I have agreed that 90 feels about right for me – but tell that to me when I’m 90) and at current readership, I’m now 96. Yikes. Goodbye dear world! I enjoyed the ride and learned a lot… hope to see you all again some new day….

Sunrise

January 5, 2014January 5, 2014 Posted in An Ongoing Journal..., Growing Older, Mommy Mind4 Comments

We’re lucky here at the Hillhouse, to see the sun rise from our kitchen and living room windows. It’s interesting to track the changing spot on the horizon from which it lifts; just a week ago it was a tree or two to the left, but now it’s marched along the rim of the forest a surprising distance. It’s funny the way the heavenly bodies move, imperceptible as one watches, quite noticeable when one does nothing but turn away for a moment and then look back again. All day long the sun makes her progress just like this, slow, steady, never stopping. Like a willful, living creature, diligently keeping to her task, dedicated only to that one singular movement. What a contrast is the peace and stillness of a sunrise to the frenetic cauldron of action and emotion swirling around far below it on the surface of this globe. A sunrise is deceptive: it leads one to believe, if only for a second, that everything everywhere has taken a pause, that nothing at all stirs upon the earth… that all is, in this very moment, perfect and right with the world.

Yeah, I like the sense of peace that I get from a sunrise. The sense of possibility. The best possible feeling of what it is to stand here, as a human, witnessing. But it doesn’t always play out that way. When I awoke today, the sorrow I’d forgotten in sleep had come to wrap itself around me again. As I looked out the window, I saw that all the trees were bathed on one side in a deep magenta, a sign that this was the moment. I went to the living room in time to watch the sun as it lifted free of the treetops and burst its rays over the countryside. This one particular moment of a sunrise is an interesting thing; it isn’t always the moment of joy and peace that one might think. For me, it seems to heighten whatever mood it is that I’m already feeling. On a brilliant summer morning, with the promise of a full and rich day before me, my chest fairly bursts at the sight. But today, a day on which I remember again the intense sorrow of losing my father, and with him all the questions I never thought to ask, the sun wrenches it all out of me all at once, and it hurts. Soon my face is covered in sunshine and tears.

It occurred to me shortly after waking that tomorrow is mom’s first birthday without dad in fifty-four years. They, as some readers will remember, shared the same birthday. My heart sinks to my feet. What can we possibly do to make it easier? See to it that she keeps busy, I suppose. Maybe we should go to that Weight Watchers meeting after Elihu’s bass lesson. Maybe that will help. Maybe we can stop by, maybe we can bring a bottle of champagne (that would’ve had my dad clapping his hands in happy approval). Maybe we can have her over here for supper. Hell, I don’t know. What to do? My heart breaks all on its own, and now it’s breaking for my mother. Crap. There is never a good time for goodbye, no matter how full and rich a life may have been.

All morning I’ve been remembering my father’s friends that have gone before – and there are a good number of em. In fact, there were very few folks from my father’s world left – and in terms of a physical presence in his life, essentially there were none. I thought back to the last time dad had been to the farm. It was this past July, and it was Martha’s 86th birthday. I remember on that day dad had been speaking in a nonsensical way, that he had once again turned a corner. But that didn’t lessen his pleasure at being there; he was happy, a soft smile on his face the whole time (in spite of the temperature in the kitchen reaching up into the high 80s). I had known it even then; after nearly fifty years of sitting in this kitchen, after hours and hours of drinking, smoking, storytelling, cussing, shouting and laughing, this was the very last time dad would be sitting in this space. The last time he and Martha would be in the same room together. (As it turned out, they would have one final visit with each other in person. They were both patients at the ER at the same time in late summer, and I had thankfully snapped one picture then.) I watched them, both at the farm and at the hospital, knowing in my heart that these oldest of friends were saying their last goodbyes. I also realized neither one of them was even aware of it. I guess one just kinda tends to feel as if nothing will ever change. That things, somehow, will always be thus. Silly humans, we.

At the time of dad’s death his functioning life had long since ended. Dad had no life outside of his home, no pressing endeavors to attend to, no ability to play the harpsichord – nor the piano, no ability to walk outside on his own, no car to drive, no ability to read, no social life, no old college chums to call and check on, no pals from his former lives to chat with…. He had nothing at all but mom, his cats, the opera on the weekends, and the tv. (Yes, he had Elihu and me too, but we were only there a few short visits a week.) And I suppose a few years of this life might eventually grow tedious, no matter one’s lack of abilities. Dad was still very much aware of his surroundings, and as familiar and comfortable as they may have been, at some point I guess there’s not a lot to hang around for anymore. I can’t help but remind myself that it’s really only us we’re sad for; a quick recounting of all that dad did not have in his most recent life helps set me straight. Wherever he is – or is not – is just fine for him. It’s us that’s the problem. Actually, it’s mom that I’m worried about. How must it feel? Seriously, how must it feel? I’m sad, Elihu is only sad in passing, but it’s mom I keep thinking of. Tomorrow, this first birthday in over half a century without her mate, this will be a landmark. She’s just gotta get through it.

Life marches on, enough distractions for us that dad’s death is somewhat tempered. I still have loads of new music to learn (and the arthritis in my fingers worsens almost daily). I still haven’t told Elihu that his beloved teacher is leaving. Waiting til the last possible moment, as not to spoil his final day of vacation. And thankfully the temperature outside is going up, so we won’t have to worry about bringing the goose into the kitchen overnight as we did on Friday, when outside temps were ten below. Ironically, shortly after we saved the goose from losing his little webbed feet to frostbite, we ourselves ran out of heating oil. ! Must remember that in terrible cold like this it takes a bunch more fuel than usual. See? Lots to keep us going, many new dramas appear on our horizon. Just like the sun on its never-ending path, the events of our lives march tirelessly onward, sunrise to sunset and all the moments in between.

Year Anew

January 1, 2014January 1, 2014 Posted in An Ongoing Journal..., Growing Older, Mommy Mind1 Comment

Some folks have been complaining about 2013, bidding it good riddance, speaking of it with various expletives and such. My first response is to think something like ‘damn right, this was a painful and terrible year, hell with it’…. but then I realize, bad things happen every year. Good things too, and if I take the glass half-full attitude, I realize that the old year wasn’t, in my own personal world, half bad. That my father died in 2013 doesn’t make it a bad year. It makes it a precious year. One in which I enjoyed all my final moments with him, one in which I had the honor of witnessing his death. That is no small gift. Yeah, the past year has been rich, full and good. (That being said, I’m still ready for a new one.)

It’s the weight loss season again, and so I begin to do a little review of 2013 and my advances – and retreats – on that front. I’d started last year on the crazy Atkins diet, and while it was successful, and I ended up looking pretty good for my 50th birthday and subsequent trip ‘back home’ to Chicago, by the time fall came, and with it home-made apple pies and fresh home-baked bread, I let it all go. I knew I was begging trouble, but it was a quality of life thing for me. I’d had it with eating nothing but meat, cheese and vegetables for the past six months and I meant to enjoy all I’d missed now. I realized I may have gone too far in ‘catching up’, but some little voice told me ‘screw it, you made your goal, now live’. And really, in that time and place I wanted to be there. Joining my son every night, sharing the same menu and this time having home-made dessert. I’d never baked bread before in my life, so the discovery in fall of 2013 that I could do so – and easily – without even so much as a loaf pan – that kinda blew my mind. And once you’ve made it, you feel you gotta eat it. There’s only so much that two people can eat though, and it’s hard to enforce portion control when there’s always more on hand. And so I ate. And then with the stress of a bigger work load, plus my dad’s decline and death, I ate to soothe myself. And while that tiny voice told me I needn’t eat quite so much to make myself feel better, I did. I knew full well it would come to this, and it has. I am back to exactly the same weight as I was one year ago today. Almost twenty pounds are back. Which means that I saw my body change by forty pounds. Yeeks. If I think too long about it, or catch a glance of my pudgy jaw line in a mirror, I want to weep, to sink into despair. Cuz I was there, goddamit, and now I’m back. But that’s ok. That is what New Years are for. Starting over.

Over the past year I’d been very intrigued with death and dying, too. Scared shitless of losing my father, and wondering what exactly it was that a person’s natural death looked like, I’d gone on YouTube binges that would freak many people out. I watched embalmings, assisted suicides, cremations, interviews with people who knew they were dying. Anything and everything so that I might better get what it was to witness a loved one die, and then make those after-life decisions none of us ever really talks about. I meant to demystify death. I’d read my share of Elizabeth Kubler Ross years ago, but never did click with her old-school language. ‘Yack, yack, yack’, I remember thinking. Let’s get down to it, lady! So in 2013 I began to read more on near death experiences – something I’d known about for years, but had begun to read now from a new perspective. And when my own father began to point towards the corner of the room, asking me who all those people were, and when he told me he saw my cousin, and that he missed his mommy, I was glad I’d re-read the literature on this experience. I do get that many folks think these end-of-life occurrences are merely the brain playing tricks on itself in the final moments of life, however I certainly do not. Me, I know that a soul is what animates a body, and quite simply, it has a separation process to undergo at the end. And while I would never had dared to speak my opinion on this subject so candidly in the past, now I feel I can. I’m off that hook – I’ve experienced it myself, I know. And I’m not quite as afraid of death as I was. The loss is still so very sad, and I can see it will continue on…. But having been with my beloved father during his transition has helped confirm for me what I already believed. So now I go into my own future, and move closer to my own death, with some important questions resolved.

My son’s now approaching an age in which his entire outlook on the world will change and mature. Ten now, eleven in a few months, 2014 will likely be the year in which the true magic of childhood ends. Santa, the birthday angel and the Easter Bunny won’t be visiting after long. Even in the cocoon of Waldorf, he will soon know for sure. I’m as ready as I’ll ever be. I’ve savored his small years, even documented a few of them here on this blog, so I can’t feel that I wasn’t present for them, or appreciative. I was. As I write this, he’s sleeping in, catching up after a whirlwind visit to Chicago and dramatic return. Over his visit, and while I was sitting vigil with dad, Elihu was going through a pretty big health scare, having visited the emergency room for knees that had blown up so they’d awoken him in the night – he said it felt like knives – and being told it might possibly be juvenile onset arthritis. Or Lyme disease. And in that I myself had fretted all fall over the Lyme v. growing pains debate – only to be told by nurses and moms alike not to worry (!!) – I kinda knew. And what relief that it was Lyme and not arthritis. So we’re dealing now with that, and the stock regimin of antibiotics to follow. (I am just kicking myself because I really did suspect it but caved to everyone else’s opinion.) Mom, Andrew, Elihu and I went out to dinner late last night (he had his favorite escargot and frogs’ legs) and we were very late to bed. Now he’s sleeping like a teenager, and deservedly so. But what he doesn’t know is that Santa made one final visit to us here at the Hillhouse last night. He even knocked some of the ashes out of the fireplace as he’s done before. Santa knows that it’s the eighth day of Christmas. He knows Elihu is back home. As I sit here and write, I’m keeping an ear out for his bedroom door, for the footsteps, that momentary pause…. He’ll run in to get me, and I’ll be sitting here in my chair, unawares, and then he’ll tell me, with a look of amazement on his face, that Santa has come! Yesterday, when Elihu asked me if I though Santa might come here, I took on a somber tone and cautioned him not to be disappointed, after all Santa had already been to Illinois. But look! He made it here after all! This is a Christmas I will savor, because by next year it will be brand new territory.

Ah, such ambivalence I feel for brand new territory. I listened as my elderly father expressed his longing to be back in his childhood home and wondered to myself, where exactly, do our hearts consider to be true home? Is it the home and hearth of our tender years – or the home we made as young parents to our own tiny ones? I suppose there’s no one answer. But there is one truth for us here on earth; time continues to move forward, and our situations, though they may appear to pause in time at different stages of our life, continue to evolve and change. A sorrow and a blessing. A missed memory and the happy anticipation of a new experience. They exist so closely, these disparate conditions, and they tug our hearts in such different directions. I can’t say that I’m thrilled with the march of time, but I also can’t say that I don’t want to watch my son grow up and one day create a family of his own. I admit it, at my age, and having seen what the end of life looks like and knowing I’m closer to it than I am to my youth, I’m not moving into the future with the zeal that I once did. I’m moving toward it with a more measured approach. It’s coming no matter what, but I’m not running to meet it anymore. It’ll be here – and gone – soon enough.

Process: Day One

December 29, 2013December 29, 2013 Posted in An Ongoing Journal..., Growing Older3 Comments

It’s been just about four hours since my father died. I have already experienced a strange variety of feelings… they fade in and out, they linger, they twist and change, and then depart, leaving me unsettled and unsure of anything. One minute I think I have a handle on things, yes, I get it, it’s ok, I feel invigorated even; dad is free and he knew we all loved him, all is as it should be… and then seconds later I feel a dark sort of terror sucking me in, telling me that this is but the beginning of unending, lifelong heartache that will never conclude. The sort of horrifying truth that leaves your chest empty of air and has you crumpling to the floor in profound despair…

And on top of this, there’s now another new and strange brew of bad feelings beginning to emerge, and I don’t like it. Why and I feeling like this? Where is this coming from? Everything about my father’s death was exactly as it should have been! It was all and more than we could ever have hoped for! And yet here they are, sneaking their way into my psyche in spite of my knowing better: guilt and regret. My gut begins to feel sick, truly nauseous, and there is a low rumbling of dread building by the second. So many things I had wanted to talk with him about – but I stop myself. I couldn’t; being a single mom of a kid allergic to cats made it difficult, plus mom was always there. (It was nearly impossible to speak only to him without constant interjections from mom when she was within earshot.) Then I remember those years when she was away at work and I had NO job and I still never went to him, recorder in hand…. Ich. I want to throw up. But I remind myself that I did what I felt comfortable with. Given the same stretch of history to do over again, I’d probably do the same again. My father and I, while we clearly shared a very deep love for each other, we did not have the greatest success simply talking. I did ask him questions, and I do have some stories, and some answers. And they will have to be enough. I counsel myself away from the path of guilt and regret, and I’m able to feel a little better. But still, they lurk. My stomach reminds me.

Just a couple of hours before I’d felt surprisingly ok as mom and Andrew and I moved about the kitchen, chatting and even laughing together as dad lay, dead and gradually losing warmth, in the other room. We’d made it through together. We’d done it. For a few minutes everything seemed clear-cut and simple. We’d each had our sobbing breakdown, but we’d pulled out of it before long. And now we were in the kitchen, almost as if nothing had happened. Wait, wait, hold on a second – what just happened here? Wait, where’s dad? Whoah – oh no, oh shit, he’s over there. And he’s not breathing anymore. Really?? Oh my God. Is this real? Yes, it is. And it’s ok. It’s all as it should be. Hm. But wait, we’re laughing. Should we be laughing here? Yeah, that’s ok too. But the sorrow is so acute, the laughter so short on its heels. Strange.

Even after doping up on an entire sleeping pill – something that would usually knock me right out – I find that after a mere hour’s nap I am up, alert, my mind churning over and over again the micro-events of the past eight hours. It seems a blur, and my memory is already becoming fuzzy on some of the details, so I try to get a handle on the timeline. I’m concerned that I’m already forgetting how everything occurred. To begin with, I got out my date book and stared at the past week, trying recall how it was we got here from there, and so soon. I remember once holding the strong impression that dad wouldn’t go til ‘sometime in the new year’, thinking that to be yet months off… Even at Thanksgiving (all four of us were together and actually had a pleasant time, an amazing gift I realize now) if anyone had told me that my dad would die just around Christmas, I still woulda thought they were way off. Guess it was my way of stalling. No matter how much you know it’s coming, it aint the same as the real thing. No way.

After I make a little map of the last two weeks’ events I relax a bit. I have a better picture now of how quickly things happened. From mobile man sitting at the table eating toast and eggs less than two weeks ago (ok, so mom will tell you half of the breakfast ended up on the floor, a sign things had deteriorated even more from the previous day) to couch-bound dad, which would have been fine had he been able to get up and use the bathroom, but here is where he began to require the kind of care no one likes to think about. Here, a big corner was turned. And within two days of moving to his new home on the couch, the big hospice bed arrived. So he gets moved to the bed. Comfy, continuously moving air mattress to prevent bed sores and keep up circulation. Nice. Funny, you know he’s not leaving that new bed alive, but even then it’s not real. You’re just going with the flow. So dad’s in a bid hospital bed now. In your mind, you adjust your thinking til it feels ok. Normal. After all, he is still recognizable. His spirit is there – you can’t imagine anything else, can you? Likely he will live in this bed forever now. His friends will have to come to him, but that’s ok – at least he’s comfortable.

Then he will begin to move slowly in the bed, frail and without the muscle to simply turn on his side (a right-side sleeper like me, I can sympathize and so brought from home all my extra down pillows to help him achieve some variety in positions) and he will look half asleep, his eyes having that faraway look, not quite connected. But you hold his hand, you engage him, and he shows you a sign. ‘Yes! Robert’s totally still with us!’ you think, still under some crazy illusion that this is just some aberration and that in a day or two things will start to right themselves again.

And then there is that first day of the deep sleeping, and that heavy, open-mouthed breathing from which you cannot bring your beloved father back. And to be honest, he hasn’t got the strength to communicate a thing, so you can only guess how present or not he is at this point. His mouth looks so very dry, oh my God, how must that feel? While just yesterday you’d have offered him a water-soaked sponge on a stick to relieve the dryness, now that tiny trickle of water might cause him to choke. Ok, so you want him to die, but not like that! So at this point you just wait. The breathing continues, and every few hours its pattern and sound changes. You look up from your book, you glance at your mother who’s heard it too, then you softly agree with each other that we’ve reached ‘something new’, and then after perhaps leaning in to touch your father’s hand or kiss his brow, you whisper something encouraging to him and return to your reading. What else can you do? You are now in the thick of the vigil. And as a friend said to me just yesterday, “the vigil is awful’. Yes, it’s hard. And who knew it could go on so long?

Mom and I sat by dad’s bedside yesterday from two in the afternoon until he died, shortly before midnight. Now I am writing from the morning after, I’m sitting on the couch from which I can see dad in his bed just like the days before. It’s comforting that his body is still here. That just shouldn’t be; I understand he’s not present in his body anymore, I had felt it a few moments after his last breath. No magic, spiritual moment occurred for any of us really, but when a minute had passed since his last whisper of a breath we had to conclude he was gone. I looked at his face, and it seemed different. Yes, yes, he was finally dead (and as if to confirm it, a cat had meowed from his office twice at that moment). But oh how strong is sentiment, and oh how strong the pull of the familiar. I have seen wailing women in far-off countries throwing themselves upon their husband’s and father’s bodies and can remember thinking ‘dead bodies aren’t worth fussing over like that’. Furthermore, isn’t that a little, well, gross? But now it’s my daddy. And I am not for one moment put off by the fact that his body is dead. My possessive, primitive heart tells me in a panic that this is all I have left of him, and so I linger, touching him, kissing him, examining his fingers in a way I’d wanted to all of my life. Pouring over him, noticing his hair, his arms, his freckles… Please don’t forget these things, I beg my unreliable memory. The funeral home will be here to pick him up shortly. First a nurse from hospice will come and help get him into some pajamas (another thing one doesn’t think much about until the situation is upon them: what will dad wear as his body departs this plane? Are the cotton/poly blend pajamas from Walmart ok?). It doesn’t sound very dignified, but what would be dignified about wrestling his now-stiffening body into a suit? Sheesh. So many little things pop up when you’re finally here.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

The men from the funeral home finally arrived. They looked much as one would have expected, in fact it seemed a little too cliché. Funny even. In hindsight I even think the older man looked a little like Peter Sellers. I didn’t notice it then, but it’s just as well. I think humor may have its limits. Certainly there was nothing funny about this moment. There were two men, in black wool overcoats and ties rolling in a gurney upon which they would take my father out. They were wonderful; not grim at all, but respectful – and they had an attentive, gentle manner which helped us bear the action at hand. Just as they began to unfold the layers of body bag and drape, I called out for them to stop – I wanted to put on some of dad’s music first. It just felt right, I hadn’t planned it, but the air was so thin, lacking of something…. I found the cd and pushed play. Not too many years ago dad had recorded this beautiful live performance of him playing Couperin; I had recently learned from friend Ken Slowik that the piece been written – fittingly for our needs now – as a memorial tribute to a deceased colleague. Gorgeously and deeply melancholic, it gave the room an air of dignity and beauty that was entirely befitting dad’s final moments in his home.

Perhaps it was going too far – but I was desperate not to forget this scene – and so I took a short video. But I stopped it after a few seconds to be present. I watched as they wrapped dad, as they lifted him, as they zipped him up to his neck. And then I saw my mother lean over to kiss dad’s forehead at the very same time that the final passage in the music played. The timing was so uncannily perfect. Again, things had lined up in the best possible way. They then wheeled the gurney towards the door. We joked a bit about dad and mom having moved so many harpsichords in and out of the house, this process was in many ways similar. Earlier we’d shown the two gentlemen some photographs of dad and his instruments, so they understood what we meant and shared in our amusement. Shortly we were outside in the gray, snowy day, at their vehicle which sat, like so many before, open and ready to receive its cargo. Dad was lifted in, feet first, his white-haired head still visible. He was one good-looking dead man, I have to say. The hospice gal who’d last come (and helped us get him in his final outfit) remarked that his skin looked wonderful, that his coloring was beautiful. And I’d have to agree; while he began to turn a little yellowish at the end, he never looked bad. In fact, as I took one last look at him in the hearse, I thought to myself what a handsome man, and what dignity he possessed, even in death.

But we, being the Conants, had to avail ourselves of the opportunity to note the humor and irony in this final step. Through the years we’ve taken hundreds of photos of our guests departing down the long driveway. We all raise an arm to wave farewell as we watch them reach the middle, and by the time the cars are at the road, mom will make a comment about the direction in which they choose to head out. We have done this for thirty-some years, why stop now? I had the younger funeral attendant take a pic of Andrew, mom and me waving at the hearse, and as they drove away I took one last picture of Andrew and mom, arms raised to wave goodbye to dad… “Well, Daddy, guess you won’t be goin down Braim Road again” mom remarked as the big black vehicle took a left.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

It’s now the day after the first day, and as I go over my earlier writing for edits and corrections I still feel stunned. I alternate between acceptance and panic, really. One moment I’m listing for myself all the perfect things about the past two weeks – the past two months or two years, even – and I note how everything resolved itself as well as it could. So many things to grateful for, not the least of which is that dad died at home, with each one of us touching him, and knowing he was loved. But sorrow is not something you can negotiate with or rationalize; the very next moment it washes over me and I find myself weeping with a freshly-broken heart. I know that this will go on for a long time. I also know that it will lessen, and that life will surround me, distract me, fill me and satisfy me again. I hope. Cuz right now I feel that queer, wide-open sort of sad that sees no resolution, that doesn’t expect to feel entirely good and right ever again.

Elihu comes home on New Year’s Eve day, which is also my brother’s birthday. My son’s homecoming will in of itself be a gift for Andrew. That man could use a little light in his life. I’m going to suggest he come along with me to the train when I pick Elihu up. We’ll see Fareed then too, as he’s on his way to the city, and then on to London to visit with his daughter. It’ll be a brief, on-the-platform hello and goodbye, but even seeing Fareed for a quick greeting might also help my brother. Don’t know. Worth finding out. And then, we will know the greatest peace our hearts can know at this time – when Elihu is with us again. Throughout this process of my father dying I have been thankful that my son wasn’t here for this – I couldn’t have expected him to sit through a ten hour vigil. So things have indeed all worked out as well as they could have. And soon I will know the tender relief of holding my child in my arms again. I can hardly wait.

Finally, I’m done with this intense part of the process. And I can say that I’m proud of myself for it too; I’m proud of all of us who’ve lost a parent, for truly it is an initiation of sorts into full adulthood. We who live through a loved one’s death – no matter who it is who dies – are brave people. This process of being human, as I’ve noted before, is not for wimps.

Ok, one big life lesson down, I suppose it’s time to move things along. My process isn’t over yet…

Delay

December 22, 2013December 23, 2013 Posted in An Ongoing Journal..., Flight, Growing Older, Mommy Mind1 Comment

Although Elihu was scheduled to have flown to Chicago last night, the weather looked threatening enough for Southwest to re-book him on an early flight this morning (one benefit to flying as an unaccompanied minor). It was such a welcome gift of time. Through a miraculous chain of events we went from nearly missing the new flight to being the last ones to board – to meeting the pilot. Earlier that morning I’d written a thank-you note to the pilots, one which we handed the fellow as he and Elihu boarded together. I have never once taken for granted the skill and professionalism of the people that get my son – and everyone else’s loved ones too – safely to a faraway airport. And especially on a day like today; black ice sheeting the roads as rain continued to fall and freeze all around. I suppose I also chose to write this letter today because given what I’m currently going through I have a heightened sense of how precious and important friends and family are.

Yesterday afternoon we went next door to visit dad in what was to be the first of two final visits for Elihu. While we were there my oldest friend in the world (she’d also been matron of honor at my wedding) and her family, husband, daughter and son, all came by to say hello… and goodbye. There were eight of us together in the room, visiting, sharing stories and catching up on life events. Although dad responded very little and spent most of the visit with his eyes closed, he lit up when Sherry took his hand and said hello. And somehow, once again, dad and Elihu had a quick exchange of their fake language for all to enjoy. What a deep and good feeling it was to hear laughter in the room. Dad and Elihu’s little bit was still so delightful, so hilarious. Plus it sounded so authentic that my friend’s son (a high schooler) actually guessed it to be Russian. Imagine that! Success! Those two have that certain talent, that certain thing. Something that not just everyone has. How lucky I felt to witness it one final time, and to have shared it with a room full of old and dear friends. While dad may indeed have one foot outside this reality of ours, he is still present enough to appreciate the company of friends and family.

Last night after supper, Elihu and I went over so that he could make his final farewell. Dad was markedly less present than he’d been only a day before; he was still able to speak, but so much weaker, so changed. I tried to make it clear to him that Elihu was going to Chicago for the holiday, and that he was here to say goodbye. Elihu leaned in and stretched his arms over his grandfather and kissed his cheek, telling him again how much he loved him. When he pulled away dad said something strange… “When beautiful January comes….” and he trailed off. I took it as a sign that he’d wait til then to leave us, and I pressed him for more, but nothing came. I could see that there was no point to stretching this out. This was the tidiest ending we were going to get, and sad as it was, it was time to go. I left the room first, and turned back in time to see Elihu wave, almost casually, as he said “good-bye, Grandpa, see you shortly”. I know some may think it was just a mimicked, stock phrase of parting that my son chose, but I think differently. I believe that my son knows that he will one day see his grandfather again, and in the infinity of the cosmos, it is truly nothing but the merest moment in – or out – of time.

Today was another gift, as old and dear friends made an incredibly long car trip just to see dad one last time. The man who visited, along with his daughter, is a musician who’s been a part of my father’s professional world for going on four decades. And in that time his family has become part of our family too. This was an important moment for the both of them, and while my father may not have been able to communicate very successfully, it was a necessary final visit. I turned away to give them privacy, but I longed to hear their voices in conversation. From where I stood, I heard very little. I’m sure that dad, at this point, was barely audible. Still, it was an important moment of closure. After they departed for a long return trip I remained there with Andrew and mom. I sat with dad, just holding his hand, stroking his head, rubbing his feet. He twisted in the bed, trying in vain to find a comfortable pose. He tried in vain to lift himself up to shift positions, then hollered in panic when I put my arms under his shoulders and pulled him back up in the bed. I knew to disregard this, but it still didn’t feel great to hear. But what was more frustrating was his unending search for stillness. His hands tugged and this and that, he tried to move from side to side, and eventually began trying to curl up into something that seemed on its way to a fetal position. Oh, poor dad. No amount of pillows or propping or shifting seemed to give him peace. And every now and then he’d grimace in pain and even moan as something in his gut had taken place. All I could think of was the bleeding that continued, slow and steady beneath the covers…. Was this his colon breaking down? Did this bleeding hurt or not? Was this just gas? After a few episodes of extreme discomfort mom finally administered some morphine. It seemed to help, but after another hour he was back to tugging on his sheets and writhing in his bed. Hard to watch, and it made me feel pretty ineffective.

I went home to get some rest, but just as I was sitting down I received a call from an old friend who’s parents live ‘next door’ (a quarter mile down the road) to mom and dad. This gentleman now lives in Boston, and he was here on his annual visit to see his folks. Good timing, as he’d not seen my parents now in two years, and this was clearly his last chance. After catching up a bit on the phone I suggested to meet him at over at their house. We hung up and moments later both pulled in the driveway at the same time. He was very good and gentle with dad; I’d warned him what he would see, but having been through a close friend’s recent fight with pancreatic cancer he assured me that he was comfortable with anything. He took dad’s hand, and spoke his presence, although I was disappointed to see that this time dad barely registered a response. We enjoyed a very brief visit, and at his leaving my heart warmed with gratitude and love as I saw him lean in to kiss dad’s hand. I had to turn away, this again was so real, so very sad and final. I only wish dad had been more responsive. It made me wonder, was this the way things were going to continue? Would he remain in a semi-conscious state until his death? Things had changed so much in just the past twelve hours…

So now I’m at home, catching up in this post, wondering whether I should try to get some sleep in, or if I should rally and just go back over there. I have some old down pillows I’m anxious to stash under dad here and there in hopes it might take the edge off whatever ill-ease it is that he’s experiencing, but I don’t know. I am tired. Got about four hours sleep last night, and it’s nearing seven in the evening now. I’ve been given the rare gift of time here; no more workdays for the next two weeks, no mothering duties either. My piles and to-do lists don’t matter. There is only one thing on my to-do list now, and that is to see my father off into death. I do not want to miss it. But how do we know when to expect it? When mom and I asked the hospice worker today if dad’s death was likely to happen ‘soon’ she responded fairly confidently that she didn’t think it would be that soon – as he still had some ‘transitioning’ to do. Well if this shutting down, bleeding out, sleeping all day, seeing dead relatives and uttering poetic platitudes isn’t considered ‘transitioning’, then what exactly is? Mom and I were a bit taken aback. However, mom is holding Christmas in her heart as the date to which dad must make it – and she hopes that he will choose to go after the day is past. Not sure why, but why not? Standing at the kitchen sink, looking out to the songbirds that flitted about on the feeders, her eyes filled with tears as she said under her breath “he’s got to hold on til Christmas“. I guess I hope so too. Yet in some way I just want it to be done. But in a million more ways, I want to stop the clock completely.

I have a plan. I will rally, deliver the pillows, stroke his head, hold his hand, see to it that he’s resting, then return home. In this eleventh hour I don’t want to skimp on anything. If I can do anything at all to help my beloved father stay in peace, then I need to do so. My time stretches out before me open and without obligations for the first time in months – it’s as if life itself has given me the gift of time. And so, with this ever-waning commodity, I need to honor it, use it, savor it. This is one delay I am very thankful for.

Post Script: The extra down pillows I brought over were just what we needed to get dad snug and comfy in his bed. He didn’t fully wake, but he did respond to me as I made some adjustments. Then I sat with him for a while, my hand on his head, my hand on his hands, and over his heart, just trying to comprehend the moment, trying to memorize all the parts of my dear father, and trying to understand what is was to say goodbye – forever.

And when I left him just now, he was peacefully sleeping. A new event however is a faint gurgling sound that now accompanies his breathing – and I think I remember reading that this is one of those ‘near to the end’ signs. I myself am currently doped up with half a sleeping pill which I hope will let me rest until 2 am, at which time I will go over again and help mom change his undergarments. Then she can go to bed, and I’ll resume watch. What a strange time. Just how do you plan for a death? I sure am lucky to have all the time in the world in which to do it. I’m in rather a daze, going through the motions, keeping my focus on the task at hand lest I become a sobbing wreck. The tears will come when they must, but not just yet…

The Wait

December 21, 2013July 29, 2021 Posted in An Ongoing Journal..., Growing Older, Mommy Mind, Pics2 Comments

Harder than the not knowing, I think, is the knowing. Knowing that my father will die any time now. Maybe during the night, maybe tomorrow. Likely after tomorrow, I think, as Elihu will be leaving tomorrow night to visit his dad in Chicago. I think dad will probably wait until he’s said goodbye to his grandson. But either way, his death is not as far off as I’d recently thought.

Seems I’ve been fooling myself in tiny ways. I talk about it, I try my best to be upfront and honest, thinking it will help me to wrap my brain around this, maybe even deep down thinking that my talk will stall the event too. And in my waking day with all its distractions and busyness I am ok. Even though I speak of it, somehow it still doesn’t fully exist as a reality. But when I awake in the middle of the night and find myself alone, the moon lighting up the snow-covered fields, I am scared again. I look to the darkened woods towards mom and dad’s home. It gives me comfort to know he’s still just there, somewhere close, still alive. And it shakes me profoundly to imagine him no longer there.

It doesn’t seem real, this waiting for death. Knowing it’s coming, knowing this time it’s not a case of almost. Not a case of weeks more, not even a case of days more, and not a case of more opportunities for forgotten stories, for recountings or great revelations. I suppose there are many cases of death bed surprises, but I don’t forsee any here. The only surprise will be in the finality of dad’s absence. And waiting for that is so hard. But lest I complain too much, I stop myself in time to realize that we are very, very lucky here. My father is dying at home. So many people are robbed of that possibility. Nursing homes and hospitals are most often the places for farewell. My father’s final breath will be taken in his home, and God willing, the three of us present for his departure.

I’ve seen my mother falter now, yet still she remains ever in charge, on top of things and very much ‘in character’. I see the edges of her soul curling in though, beginning to yield to the immense wave of sorrow that is almost upon her. Her eyes tear up, but she doesn’t give in. I’ve hardly ever seen her cry in my whole life. Because she is always in charge, dammit. She holds her own world so tightly in her control. Sometimes I think if she were to cry she might never stop. She’s got years’ worth stored up. She is due. While I personally do not look forward to having to go through both dad’s death and mom’s newfound expression of grief, it will be so very good for her. And it may be healthy for us, too. She is always the rock, the solver of problems, the caretaker. Maybe relinquishing all of that – if only for a few moments – will be a very healthy thing. Might even alter our dynamic. Certainly things will be different after we experience the death of her husband and my father together. It’s funny how even though dad is mostly sleeping, and for all intents and purposes not truly with us, the family still feels normal. Each of us in our roles, the four of us existing as a unit. A dysfunctional unit to the end, but a unit nonetheless. So this too will change.

Mom is planning on going grocery shopping tomorrow and leaving Andrew to sit with dad, in order to give him some private time to use as he will with his father. He and dad have always had a sort of ‘non’ relationship. No anger really, no overt animosity, however Andrew has seldom had much to say to dad. And I can get that; Andrew’s not functioning fully as a healthy person to begin with, and then they have so very little to talk about. Dad lives in a world that we, outside his academic, early music world don’t really know or understand well. And beside the bits of humor he uses as a means to communicate, dad has never had much to bring to the table conversationally. At least not in the past five years or so. Not since he stopped being the active director of his Festival of Baroque Music. He had a full and rich life at one time, but we as children knew little of it. When he no longer had that life – essentially by the time he and mom retired and moved to New York permanently and we kids were out on our own in the world – there was simply less to talk about I suppose. Even I myself (chatterbox though I may be) had very little to say to him save small talk – and dad had little to say in response. My world was so different from his, unfathomable to him you might say. So our relationship was based mostly on an unspoken love simply because he is my father and I his daughter. I don’t know how Andrew will act. I can’t begin to know what’s going on in his head now. But I suppose, no matter what, his heart is breaking too. Because after all, this is still his father.

Elihu and I visited mom and dad tonight. Our hope was to get two good visits in, one today and one tomorrow before we leave for the airport. Elihu will say his final goodbye to his grandfather then. I was able to sit with dad tonight by myself, and I’m glad of it. Somehow, with the cover of nighttime, the gentle glow of the Christmas tree and the Robert Shaw Chorale (for whom my father once played harpsichord) singing the ancient music of the season in the background, it was the perfect environment for close, tender words. Dad smiled nearly the whole time, and I was able to elevate him in the bed to a near sitting position. I showed him a photo I’d enlarged of the two of us from fifty years ago, me as a wee one on his lap at the harpsichord. I was happy to see recognition in his face. “Oh, what a cute baby” he said. “This was in Hamden” I offered. He nodded. Good, I thought, he understands. I began to cry, and before I knew it I was sobbing, holding his hand and leaning over him. I had some things I wanted to say, but it still felt a little silly, cliché perhaps, to launch into this end-of-life monologue. But I had to. I started by telling him that I just couldn’t believe he was now such an old man. And said that getting old like this sure was a bitch, huh? He laughed weakly, and then solidly agreed. I thanked him for making me the musician I was. Then I thought better of that, for I’d always considered myself something of a just-enough-to-get-by, jack-of-all, master-of-none sort of musician. But my dad was the real thing. Although it might’ve seemed far too sappy to say aloud at any other time in my life, this was my final opportunity to express myself, and so through streams of tears I finally said “Thank you for giving me the gift of music.” Holding his hand the whole time, I lowered my head many times, kissed his cheek and told him I loved him over and over. And I thanked him over and over. He said something, and I had to put my ear to his mouth. “What, dad?” “You have always been the most outstanding child” he repeated to me. And he too told me over and over that he loved me. Then he said something so out of the blue – and instantly I recognized the child in him; “I miss my dad, and my mommy too.” I’d never heard him use any word but ‘mother’ before in talking about his mom. Did he once call his mother ‘mommy’ as a young boy? I tried to comfort him, and told him that he’d see his mom and dad very soon. I hoped this gave him ease, but if so, it didn’t register on his face. Instead, he had a distant look, and he was lost to his thoughts again. I could hear that Elihu and mom were wrapping up their visit in the kitchen, and I sensed our window was closing, so I backed away and let my son move in close to his grandpa.

Elihu had drawn an Ivory Billed Woodpecker, and held it up for his grandfather to see. Dad took it in with appreciation. Elihu set the picture down and then leaned in to speak to grandpa. Elihu, wanting to convey his deepest love to his grandfather, kept saying over and over that “he was just the best grandpa ever” and he told him over and over that he loved him so much. I wish I could have heard more, but I did hear bits of dad’s response… He spoke of loving him forever and how nothing would change that. And Elihu agreed. Then dad went off onto a lovely sort of speech…”Every day is a new day, and a beautiful day. And every night is a new night, and a beautiful night. And we will all live together forever…” He said more than this, but I struggled in my mind to latch onto these words, that I might take something away with me. Mom came over and took a few pictures of us, I took some too in a vain attempt to capture this final visit, but I doubt in the dim light any will come out. She fed him some chocolate pudding which I was happy to see he ate and enjoyed – and I was happier still to see him wipe his moustache clean. Somehow it gave me a slight feeling of relief to see him doing something so ordinary without thinking twice. And then we shared a moment I believe we were so lucky to witness one last time; Elihu and dad spoke their made-up language to each other, with gestures (dad’s greatly reduced) and all the inflections to imply content. It was a weaker version of their bit, but still very funny and we four all enjoyed a good laugh. That was nice. Truly, I didn’t expect it.

We put the bed flat again for dad to rest. We’d been there nearly a half an hour, and we’d found the natural conclusion to our visit. Elihu, mom and I went to the kitchen. We needed to get home – it was already turning into a late night, and I had yet to make dinner. While mom and Elihu chatted, I snuck back for one last peek at dad, who was not yet asleep. I put my hand on his, leaned in again and told him I loved him. “I love you too, Elizabeth” he said, and then I left.

Elihu doesn’t seem as hit by this as I’d thought he would be. After all, he’s the kid who gets things. But maybe it’s precisely because he does get things that he isn’t as worked up. He even told grandpa that he should leave us now – and then followed that with “don’t worry, it’s just like turning a page”. Oh, is he truly just ten years old? Yet as precocious a child as he is, he is still a child. Maybe he doesn’t truly get it. But maybe he actually does get it better than any of us! There is a certain matter-of-factness in his demeanor which puzzles me. Then again, I myself don’t remember being whalloped by my grandparent’s deaths… I do remember the heartbreak of losing my maternal grandma, but I also remember getting over it rather easily. I was eleven. Hm.

Recently Elihu told me that he doesn’t like to get sad about grandpa dying, because that would be like getting mad at what is, and that would be a waste of energy. Ok my little Buddha boy. What makes me sad is that Elihu’s memories of Grandpa Robert as a functioning, alert man are diminishing, and so I believe he doesn’t feel the loss as deeply as he would have if there’d been no gradual decline. After all, it’s been a few years since dad was ‘himself’. But thankfully, Elihu has had five years to know him, and at least a couple of those were good. We didn’t visit as often as I would have liked, due mostly in part to Elihu’s acute allergies and mom and dad’s cat-filled house, but I can’t kick myself for that now. I remind myself that we visited as we were able. And that Elihu and grandpa had plenty of lovely moments. Elihu may not remember them well, but I do. I have to be happy with that. It’s more than lots of folks get.

I must get to bed. My stash of sleeping pills is running low – and I’ll certainly need one tonight. I can’t begin to sleep. My head continues to ache and I’m full of dread. I’m flat-out scared of saying goodbye to my only child tomorrow, and then turning back to the business of watching my father die, and watching as his lifeless body is taken away… How in hell will we do this? I know, I know… everyone goes through it. This is nothing new. For millions upon millions of people this is nothing new, I know. Only thing is, for me, it is.

And for now, the hardest part is the wait.

Mom told me as we left tonight that dad had hemorraghed a huge amount of blood the night before and his bleeding was slight yet ongoing. He seems in a lovely state of comfort and ease, so we don’t need to worry what caused it. Our only concern is he not be in any pain. This does seem to indicate however that his death will come fairly soon.

Going

December 17, 2013 Posted in An Ongoing Journal...8 Comments

Let me tell you a bit about the scene: Mom and Dad’s house is an open-plan, post and beam beauty in which life takes place in the kitchen – which is the first room you walk into through the garage (as with most of the world, they never, ever use their front door). As soon as you come in, the dining room is just beyond the large kitchen island, and the L of couches to its right. (A Franklin stove sits near the couches but has been dark and unused for the better part of the past two years, unlike decades before when it was well-tended and in daily use.) There is a large tv that bisects the kitchen and the living/dining area, and it is constantly on. Mostly it’s the old black and white movies, sometimes it’s the cooking channel, and in the evenings it’s set to the local weather. Mom has become ever so slightly hard of hearing these days, and so the tv plays at a volume that adds a certain frenetic energy to the room. I always have to turn it down in order to hold a conversation. And through it all, dad – at least the past few years – has either been sitting at the island on a stool, sitting in his chair to the side, or lying down on the nearby couch. Since we four Conants moved him from the stool to the couch this past Sunday night he has lain there ever since, and it’s my suspicion it may well be where he remains until he dies. Because there’s little question about it now: my father is dying.

As I’ve said before, we Conants – at least mom and dad, Bob and Nancy, that is – aren’t very comfortable with physical displays of affections. Or spoken expressions, either I suppose. It was only through a very intentional campaign made by my ex husband years ago (when he was still my very new boyfriend) that I learned to say “I love you” to either of them. Thank goodness it was over the phone – I don’t think I could have done it in person. But at the end of my catch-up calls on Sunday evenings from Chicago to sleepy Greenfield, just as I was about to hang up, Fareed would lean in close to my face and mouth in an exaggerated way ‘AND I LOVE YOU!’ and he’d shake me til I said it. I thank my ex for a couple of things in my life, and this is one of them. From that time forward it because customary to end conversations with an ‘I love you’. But in person, not so much. And after I moved here, even less. Only in the past few months have I made an effort to revive it. Because, well, now’s the time, you know?

When my parents began their post-city lives here they found themselves in a cozy little social group which included a gay couple (that they were gay never registered to me until I was way into my own adulthood – they were simply my beloved Jim and Everett), an ‘older’ (as in my age now) opera singer, husband and wife musicians who ran an old-fashioned farm and maybe a couple extra characters that joined in the parties and concerts over the years. But the core group was always Frank and Martha, Jim and Everett, and Ruthie. Over the past decade I’ve seen all of them die. Except Martha, that is. (One might joke that she aint never dying. And if you knew her, you’d laugh, shake your head and tend to agree.) Since only the trio has been left, it’s naturally had me wondering who would go first. And now I’m pretty sure we know.

Mom did finally call someone to learn our care options at this point. And finally, there it was, “Hospice”. For me it wasn’t a shocker, but the idea hit mom like a train. I heard it in her voice on the phone – she even readily admitted that even she wasn’t emotionally prepared for hospice to be brought up (the suggestion actually surprised her!). Later, when we visited, her eyes began to well with tears as we talked about the next phase. She’s held out til the last possible moment, and while I myself might have done many things differently, none of that matters now. Dad is still happy, so if we can keep him comfortable and healthy, he will die here at home. That, in my world, is a HUGE blessing. But regardless, it is still the death of my mother’s partner of over fifty years we’re talking about here. As much as we might toss it all around like so many common plans for the to-do list, we all know what this means. We are getting ready to have dad die, right here, and very soon. She is facing the biggest good-bye of her life. And after that, the house will be empty. She will be alone. Shit. This is hard. So goddam hard. It’s not like we didn’t know it was coming, either. “So how long did you think he might still live, Mom? Three years? More?” “Oh God no!” she snapped. “But then what, like another year?” I pressed. I’m not sure she herself knew. One doesn’t tend to actually sit down and map this stuff out. “I don’t know. His mother lingered like this for years….” she trailed off. That may have been so, but it looked like we were closer than that. Never know though. You hear stories of folks being put on hospice care and then living for years… Just never really know. But then again you kinda do….

Now that it’s real I feel a mix of three things: first, concern for my mother (and Martha too). How will she react? Will she allow us to see her cry? Childbirth gets so heavy that all modesty goes out the window; will she behave in a similar way with the death of her spouse? How does this work exactly?? Next, my brother. Just how will he react? How will this affect him? His drinking? Will this be what he needs to finally rise up and get healthy or will he sink to his own final funk? And then I myself feel a queer mix of sorrow and relief. The two battle it out inside me; when I take a closer look at his existence, it seems we only want him around us for ourselves, plain and simple. He himself would probably greatly appreciate an escape from this tired, confused body. But even as my mother had admitted a few weeks back, just having him there – even if he’s asleep, checked out, for all intents and purposes ‘not there’, his energy and presence is still very much there. And you feel it. You just know he’s there in the room. And it makes a difference. We both try to imagine the house without dad in it somewhere (as it’s been for the past quarter century) and the house seems almost pointless. Good thing mom has that goddam tv to fill the house up with crap and distraction I guess. Sigh. Elihu has great compassion for mom and her need to ‘fill the space’. “She just doesn’t want to really understand how far things have gone. She’s scared, so she tries to ignore it.” Yeah kid, probably a good bit of truth to that. Whenever I mutter about mom under my breath he says “I understand. She doesn’t mean it. She’s just trying to figure out how to behave”. Yeah, once again, thanks for keeping me on track. This isn’t easy for any of us.

When we went over earlier today, dad was resting on the couch. It was a different sort of resting now. Having continued to lose weight, his cheeks took on an extra sunken look in his horizontal position. Honestly, in his current condition, if you just glanced at him, you might think he was already gone. But no, he is there. He is there. Still. While Elihu chatted with grandma, tv continuing to do its thing, I sat next to dad, hoping for something. Some new pearl, some word, a smile…. Sadly, gone was my hope for a cute anecdote or story, it was all he could do to recount his two childhood pals by name for Elihu last time; now he related tiny blurred scenes to me, and all I could do was to try and understand what he was seeing as best as I could. Which I noticed became increasingly hard to do as mom continued to badger me with useless and uninteresting facts about this and that… a constant stream of crap that may as well have come from the goddam nightly news… Can’t that wait? I’m thinking, but biting my tongue lest it come out as I think it might… Please, lady, just shut up!! Can’t you see I’m trying to hear what dad is saying? But I don’t move, my focus is essential here. I listen, then I place my hand on his. We are connected now by touch, and I swear I feel him relax. His eyes have been closed the whole time. “Hi Dad, it’s me, just sayin hi”. He opens his eyes and smiles gently. “I love you so very much, dad” I tell him. And in a not-too-faint voice he answers me “Oh Elizabeth, I love you so very much”. Then he closes his eyes again. But my hand is still on his, we are still engaged with each other. Mom comes over to us and leans over the couch. I hope she doesn’t stay long, because she’ll probably start asking him what he wants or trying to make sense with him, asking him things that require answers – hell, that require opinions. And dad just doesn’t care now. Can’t you see that, lady? I’m thinking. Dad opens his eyes and looks at mom, saying “Pop is here…” then trails off. Mom laughs it off as the nonsensical mis-firings of an Alzheimer’s-riddled brain, and thankfully, she leaves. But I know that something is going on in there, and I stay with it. Me, I believe he’s just seen his father. His Pop. A pause. He closes his eyes and smiles. “I am in pleasure” he says, with a slight tone of humor. But then again, I take it to mean that he’s feeling ok too. He’s letting me know. “Susan” he then says, his eyes opening and looking a bit off into space. “You mean Susan, your niece?” “Yes, Susan. Where is she?” he asks. Now me, I personally believe he’s probably just seen Susan himself. She knows he’s coming soon, so she’s letting herself be seen. “Your niece Susan died about a year and a half ago. It was rather sudden. She was living with Jean in Florida. She got very sick and died.” What else to say? Sorry was not what this was about. He seemed to be thinking of – if not actually seeing – family members that were now gone. Sorry was the opposite of what was going on here now – all I felt was ‘yeah, this is it. Yes, there is some love and comfort awaiting him when he goes.’ And thank goodness! It makes me feel much better about things. A moment passed after the Susan thing, then he raised a finger and pointed a bit out and to the right… “who are all those people waiting by the curve?” he asked. “Oh, Dad, I wish I could see them too, I wish I knew who they are, but I don’t.” As if to keep things real, keep humor in the house (a staple of our family) he summons a bigger voice and in a funny accent says “I weesh to be reech”. He repeats it again, closes his eyes, and a wide, happy smile settles on his face.

This is the fork in the road at which many of my friends may choose to part from my company. Because for me, I do not believe dad’s words are meaningless bits of information, retrieved randomly from disparate areas of the brain…. I do not see this as a purely physical phenomenon taking place. Surely it is on some level just that, but there is another equally ‘real’ phenomenon occurring now which is not something than can as yet be quantified by science. I recognize my father is becoming less vibrationally in tune with this reality, and he is now becoming aware, if only in the faintest way, of the new reality he’ll soon be joining. Bunk and booey to my neurotransmitter-as-only-real-data-channel thinking friends, I know. My dear friends of the ‘it’s either working or it aint’ school of thinking will know dad’s behavior to be nothing more than a failing system of data transmission. In short: a body breaking down. Yeah, I’d agree with that. But I’m going to take that other path from here on, the one that knows we are more than an organic machine, and that there are countless energies we are a part of that no meter or machine can measure. I know that ‘real’ can be real without tests, trials and placebos. My dad’s death is certainly a real experience to him, and that, ultimately serves as the Truth here and now. Quantifying or qualifying his Truth does seem rather silly, don’t you think? A moot point really.

One day I do hope we’ll have the opportunity for a good laugh together about it all as we re-evaluate our Earthly lessons and kick back for a little respite after our exhausting lives on this tricky planet. Cuz I believe this is one tough-assed school. And I believe we’ve come here to work on things. We’ve found the right groupings and scenarios and countries, bodies, talents and occupations – the whole shebang – so that we might most effectively learn what it is we need to in order to become better. Dare I say, more Godlike. When I put it like that, kinda makes me laugh. I mean man, this planet don’t exactly seem like a good choice for a mission like that, huh? Pretty crappy place sometimes. Sure aint easy, even when you do have it easy. Plus there is this existential uncertainty which thrums through us our whole lives, nagging at us to try and answer it if we dare listen. But thankfully, there are lots of diversions here to muffle its drone. Yeah, you can easily go through your life and never give a shit about anything but just getting by. The challenge, however, is to care, and to widen your sphere of caring and loving influence. And we all know that is much, much easier said than done. The distractions are so very tempting – and easy. But a life spent mostly on the path of love and caring is one spent pretty well, at least I think so. Certainly more of a step ahead than not. And my dad has made many steps forward here. He’s also had to carry some burdens that I wish he hadn’t. He grew up knowing he was loved, but he grew up in a culture where love was not expressed. A handshake from dad before he went off to the Army. Nurses instead of mother. Boarding school from a young age. I’m glad that now, in these final, restful moments on the couch that I can tell him I love him.

Because if he’s going soon, all he really needs to know is that we love him. The rest will sort itself out on the other side.

Evidence

December 16, 2013January 31, 2014 Posted in An Ongoing Journal..., Low Vision Life, Mommy Mind, Waldorf Life2 Comments

“I still don’t understand how people can not believe in Santa”, Elihu said from the backseat as I drove him to friend Keithie’s house for a birthday party. I considered for a second asking him to explain his thinking, but decided instead to let him do the talking. We were on thin ice here, and I wanted to see where this was going. How he, in his ten-year old world was working this all out. “I mean, how can you not believe when there’s so much physical evidence of Santa?” he continued. Again, I said nothing. I so did not want to blow this by leading the witness. So, uncharacteristically of me, I remained silent in the front seat and contributed nothing to the discussion. “How do people explain all the presents if they don’t believe in Santa? How can they? How is it possible that there are so many presents around the tree if it’s not Santa?” he said with a hint of impatience. Ah, I thought to myself – presents, of course. I got what he meant. And from that perspective, I can understand his thinking. Kinda hard not to believe in the face of all that physical evidence. I knew he’d be spending the next few hours with some rough-neck country kids who hadn’t believed in Santa since Kindergarten. I prayed to myself that the topic wouldn’t come up, cuz these boys probably wouldn’t hesitate to tell them what they thought. We were traveling outside the nurturing, childhood-preserving culture of the Waldorf School, so anything was fair game. But Elihu was resolute and fully committed to Santa, even now. Even moments after singing “Grandma Got Run Over By A Reindeer” and discovering for the first time the lyric “you may say there’s no such thing as Santa, but as for me and Grandpa we believe”. (I had felt a pause in the car. A moment of thought, of mulling things over after hearing that line, but then somehow sensed he’d made it work and it didn’t end up challenging his beliefs). So if those boys had other ideas, I had a feeling Elihu still wasn’t ready to buy em.

The last few years we’ve had a handful of unexpected things happen to us around Christmastime which have certainly helped to keep the magic alive. When Elihu was six, we returned from seeing Santa to find that one long-awaited paper white bud had finally opened, a miracle he attributed to the Christmas Spirit we’d generated by being with Santa. One year we pulled in the driveway to find a beautiful, wrought iron birdfeeder holder – complete with birdfeeders and bags of seed. I myself was so stunned that I didn’t have to worry about faking a thing. Equally as surprised as Elihu, I searched my mind for the likely suspects while Elihu just accepted it with the most matter-of-fact attitude. He knew it was Santa, who was being kind to pay an early visit here in Greenfield, as he knew that Elihu would be in Illinois for Christmas. While it was thrilling, it wasn’t beyond belief for him at all (as it was for me!). And last year we had a fresh Christmas tree miraculously show up on our doorstep. Again, he took it in stride. My mouth was still hanging open while he was already working on getting it into the house. This year the miracle was perhaps smaller, but it gave me pause. A few years ago I made a large outline of a dove in white lights which I hang over our garage door. It’s a pretty large installation, so finding that half of it didn’t light (after I’d checked and then gotten up on the extension ladder to hang it, argh) was a huge bummer. I decided to keep it lit anyway, hoping it would motivate me to take it down and fix it before too many days passed. But one morning we woke up to find the whole bird perfectly lit up. It had just fixed itself overnight. I was flabbergasted and incredibly relieved. Elihu, however, has come to expect the unexpected and simply told me it was simply “the little extra bit of magic that hadn’t shown up yet”. ! Whatever the cause, I was appreciative and grateful, and secretly I took it as a sign that things were going to be alright. That I should finally free myself of that persistent, internal hum of worry that followed me through my days and nights…

I shouldn’t read meaning into things that aren’t meant to convey anything special, and yet the spontaneous re-lighting of the dove, and just in time for our party (mostly snowed out – the only folks who came were neighbors with tiny children. It was one of the loveliest parties ever) signaled to me that the world was ok, and some magic force wanted me to know it. My heart was lifted, my stress eased just a bit. Things seemed hopeful again. But as with anything in life, things never stay just so for long.

Whether it was the storm, the county plow truck or our own ‘dumb Mike’ the plow guy, it didn’t really matter – but the sign for our family’s Studio – the concert hall in which dad had hosted his Festival of Baroque Music – had become dislodged from the frame and now hung awkwardly, threatening to fall into the roadside ditch. There for many a year, many a storm, and today it goes. A strange feeling of something not being right – of being somehow different and wrong – came over me as I saw it. It’s a large, heavy sign, and I surprised myself in finding I was able to free it from it’s frame and drag it to the safety of our driveway, where I rested it against some trees. Then we continued up the driveway, past the Studio itself and up to mom and dad’s house for a quick visit. Things, I’d just heard, had been quite strange and different with dad the night before. The broken sign at the road seemed to me like an omen of sorts.

Last night had been brutal. Dad was found in the morning sitting on the couch in his own excrement, upset, detached, unable to make sense of the simplest instructions. Mom and Andrew were able to clean him up, and somehow mom got some food into him too. But by the time Elihu and I arrived, dad was slumped over in his chair, his hands nervously moving, twittering in a strange, new fashion, his gaze fixed on the floor. When I went to him and tried to say hello, he didn’t even lift his gaze. After some coaxing, he did respond to me, but returned within seconds to odd little non sequiturs, bits of sentences that still – God bless him – were very well-constructed and incredibly ‘almost’ plausible-sounding. And after some tricky discussions about action plans for the next forty-eight hours (mom is so defensive and controlling about the whole subject it’s very difficult to make progress. It’s the old ‘lead a horse to water’ thing going on) we decided he needed to be returned to the couch, where he’d likely stay the night. It took all four of us – me, mom, Andrew and Elihu to get dad to the couch. Yeah, things were different now.

I know there are good days and bad days, and they can come and go, but even so, this really did seem to be an entirely new level here. (I was losing my faith that we’d see him bright and engaged again as we did just two weeks ago.) We got him comfortable as possible, but his hands were still trembling, tugging, moving, searching for something… he was still unsettled. But as the minutes passed be began to grow more calm. That was good to see. Before we left, Elihu did his best to connect with grandpa. He leaned way over, putting his face inches from dad’s. Elihu told him that he loved him so much, and immediately dad’s face transformed from that of a vacant, old man to that a young boy’s grandpa. He smiled, made eye contact with his grandson and said “Oh Elihu, I love you so very much too”, they kissed goodbye and then we left. On the way out I put my arm around mom’s shoulder, told her I loved her too, and that I knew this was hard. Once again, I saw her eyes become damp. She does not cry. She does not relinquish control. This is going to be a very hard time for her.

On the way down the driveway I see the sign, resting on its side for now. The sign was due to come down in the next couple of months anyway. We’re having a parking lot put in the woods just to the left of the Studio – phase one you might say in ‘our’ (my) plan to separate the Studio from mom and dad’s property. If we’re going to have our own stand-alone arts center, we can’t share a driveway with the neighboring house. And much as my mother may use her best dramatic passive-aggressive tone when speaking of ‘my plans after she’s gone’ – as if I can’t wait for her to leave already (!) she must understand that one day her house – gorgeous and memory-filled as it may be – is a house that someone else will be living in one day. (I point out to her that I already have a perfectly good house. What do I need with this one? This she seems to understand. And yet, she must not get it completely, it seems…. sheesh.) And I am fairly sure a new family wouldn’t want to share their driveway with an arts center. Cars, people, comings and goings… Naw. So we’ve got to do a little restructuring now. So, as I said, the sign was due for a move soon, anyway. It just came unexpectedly, abruptly, like this new phase with my father. Who is finally the least like my father of all the versions I’ve seen so far. Yes, it feels there is a changing of the guard coming soon, and that there are signs all around, both little and big, to help remind us.

I got home tonite to find two pieces of mail. One, a bill. The second, quite likely a solicitation for money from my kid’s school. Already the guilt began to grow inside when I recognized the Emma Foundation – crap, another campaign I am in no position to contribute to. But I would, if I could! Crap, I say to myself under my breath as I open the letter. And at first, I can’t understand what it is I’m seeing and reading, because my expectations were so the other direction…. And then, I get it. And probably because of all the emotions that have gone on over the past day – seeing my dad like this, seeing the imminent end of my child’s innocence, realizing that there is so much unknown before me – all of it and more – it all just sort of wells up in me and I do what I know my own mother would benefit from ever so much more than even me in this moment: I cry, I cry, and I cry. I get a mix of feelings – it’s kind of in the same space as a mystery Christmas tree showing up from out of nowhere at your door just when you had no idea how you’d be able to afford one yourself, it’s that, it’s a feeling of instant humility, a prideful dash of ‘do we really appear that needy?’ and then finally, a gentle reconciliation with what’s just been given to you in love – and most likely after a healthy process of consideration. In this case, a vote has likely been passed, several folks have been putting their heads together on this, and they came out voting for Elihu. He is the recipient of a generous donation towards his Waldorf tuition. The note is even signed by the mother who lost her own ten year old child and who created this fund in order to create a lasting legacy in her daughter’s honor. Wow. Hardly a humbler, more honored feeling than this.

Change is everywhere, yet it’s so embedded in the everyday that we can’t see much of it for ourselves. The evidence of that change is there, but actually recognizing it for yourself is the challenge. In my own casual, armchair efforts to better myself as a student of life, I’ve long reminded myself to notice the tiny voice within, magnify it ten times, and then heed its message. Sometimes we know something’s changing, but we don’t want to believe it. Some will think me a naïve tree-hugging Spiritualist to hear me say that I do believe things happen as they are supposed to (not to be confused with things happening as we’d hoped they would). As with my surprise divorce and out-of-character cross-country move, these were unwelcome changes that created the opportunity for so many new experiences we’d otherwise never have had. Suffice to say, sucky things can beget better things.

The evidence tells me my father is going to die soon. The evidence tells me that my son is growing up. Both of these are hard things to understand. Thankfully, the evidence also shows us that there are some people in this world who act towards others in love and kindness and will go to great efforts to do so.

And it still does kinda seem there’s an awful lot of evidence to support this Santa thing too.

The Hillhouse

The Journey of a Mother and Son

Tag: aging parents