alzheimers – The Hillhouse

Process: Day One

December 29, 2013December 29, 2013 Posted in An Ongoing Journal..., Growing Older3 Comments

It’s been just about four hours since my father died. I have already experienced a strange variety of feelings… they fade in and out, they linger, they twist and change, and then depart, leaving me unsettled and unsure of anything. One minute I think I have a handle on things, yes, I get it, it’s ok, I feel invigorated even; dad is free and he knew we all loved him, all is as it should be… and then seconds later I feel a dark sort of terror sucking me in, telling me that this is but the beginning of unending, lifelong heartache that will never conclude. The sort of horrifying truth that leaves your chest empty of air and has you crumpling to the floor in profound despair…

And on top of this, there’s now another new and strange brew of bad feelings beginning to emerge, and I don’t like it. Why and I feeling like this? Where is this coming from? Everything about my father’s death was exactly as it should have been! It was all and more than we could ever have hoped for! And yet here they are, sneaking their way into my psyche in spite of my knowing better: guilt and regret. My gut begins to feel sick, truly nauseous, and there is a low rumbling of dread building by the second. So many things I had wanted to talk with him about – but I stop myself. I couldn’t; being a single mom of a kid allergic to cats made it difficult, plus mom was always there. (It was nearly impossible to speak only to him without constant interjections from mom when she was within earshot.) Then I remember those years when she was away at work and I had NO job and I still never went to him, recorder in hand…. Ich. I want to throw up. But I remind myself that I did what I felt comfortable with. Given the same stretch of history to do over again, I’d probably do the same again. My father and I, while we clearly shared a very deep love for each other, we did not have the greatest success simply talking. I did ask him questions, and I do have some stories, and some answers. And they will have to be enough. I counsel myself away from the path of guilt and regret, and I’m able to feel a little better. But still, they lurk. My stomach reminds me.

Just a couple of hours before I’d felt surprisingly ok as mom and Andrew and I moved about the kitchen, chatting and even laughing together as dad lay, dead and gradually losing warmth, in the other room. We’d made it through together. We’d done it. For a few minutes everything seemed clear-cut and simple. We’d each had our sobbing breakdown, but we’d pulled out of it before long. And now we were in the kitchen, almost as if nothing had happened. Wait, wait, hold on a second – what just happened here? Wait, where’s dad? Whoah – oh no, oh shit, he’s over there. And he’s not breathing anymore. Really?? Oh my God. Is this real? Yes, it is. And it’s ok. It’s all as it should be. Hm. But wait, we’re laughing. Should we be laughing here? Yeah, that’s ok too. But the sorrow is so acute, the laughter so short on its heels. Strange.

Even after doping up on an entire sleeping pill – something that would usually knock me right out – I find that after a mere hour’s nap I am up, alert, my mind churning over and over again the micro-events of the past eight hours. It seems a blur, and my memory is already becoming fuzzy on some of the details, so I try to get a handle on the timeline. I’m concerned that I’m already forgetting how everything occurred. To begin with, I got out my date book and stared at the past week, trying recall how it was we got here from there, and so soon. I remember once holding the strong impression that dad wouldn’t go til ‘sometime in the new year’, thinking that to be yet months off… Even at Thanksgiving (all four of us were together and actually had a pleasant time, an amazing gift I realize now) if anyone had told me that my dad would die just around Christmas, I still woulda thought they were way off. Guess it was my way of stalling. No matter how much you know it’s coming, it aint the same as the real thing. No way.

After I make a little map of the last two weeks’ events I relax a bit. I have a better picture now of how quickly things happened. From mobile man sitting at the table eating toast and eggs less than two weeks ago (ok, so mom will tell you half of the breakfast ended up on the floor, a sign things had deteriorated even more from the previous day) to couch-bound dad, which would have been fine had he been able to get up and use the bathroom, but here is where he began to require the kind of care no one likes to think about. Here, a big corner was turned. And within two days of moving to his new home on the couch, the big hospice bed arrived. So he gets moved to the bed. Comfy, continuously moving air mattress to prevent bed sores and keep up circulation. Nice. Funny, you know he’s not leaving that new bed alive, but even then it’s not real. You’re just going with the flow. So dad’s in a bid hospital bed now. In your mind, you adjust your thinking til it feels ok. Normal. After all, he is still recognizable. His spirit is there – you can’t imagine anything else, can you? Likely he will live in this bed forever now. His friends will have to come to him, but that’s ok – at least he’s comfortable.

Then he will begin to move slowly in the bed, frail and without the muscle to simply turn on his side (a right-side sleeper like me, I can sympathize and so brought from home all my extra down pillows to help him achieve some variety in positions) and he will look half asleep, his eyes having that faraway look, not quite connected. But you hold his hand, you engage him, and he shows you a sign. ‘Yes! Robert’s totally still with us!’ you think, still under some crazy illusion that this is just some aberration and that in a day or two things will start to right themselves again.

And then there is that first day of the deep sleeping, and that heavy, open-mouthed breathing from which you cannot bring your beloved father back. And to be honest, he hasn’t got the strength to communicate a thing, so you can only guess how present or not he is at this point. His mouth looks so very dry, oh my God, how must that feel? While just yesterday you’d have offered him a water-soaked sponge on a stick to relieve the dryness, now that tiny trickle of water might cause him to choke. Ok, so you want him to die, but not like that! So at this point you just wait. The breathing continues, and every few hours its pattern and sound changes. You look up from your book, you glance at your mother who’s heard it too, then you softly agree with each other that we’ve reached ‘something new’, and then after perhaps leaning in to touch your father’s hand or kiss his brow, you whisper something encouraging to him and return to your reading. What else can you do? You are now in the thick of the vigil. And as a friend said to me just yesterday, “the vigil is awful’. Yes, it’s hard. And who knew it could go on so long?

Mom and I sat by dad’s bedside yesterday from two in the afternoon until he died, shortly before midnight. Now I am writing from the morning after, I’m sitting on the couch from which I can see dad in his bed just like the days before. It’s comforting that his body is still here. That just shouldn’t be; I understand he’s not present in his body anymore, I had felt it a few moments after his last breath. No magic, spiritual moment occurred for any of us really, but when a minute had passed since his last whisper of a breath we had to conclude he was gone. I looked at his face, and it seemed different. Yes, yes, he was finally dead (and as if to confirm it, a cat had meowed from his office twice at that moment). But oh how strong is sentiment, and oh how strong the pull of the familiar. I have seen wailing women in far-off countries throwing themselves upon their husband’s and father’s bodies and can remember thinking ‘dead bodies aren’t worth fussing over like that’. Furthermore, isn’t that a little, well, gross? But now it’s my daddy. And I am not for one moment put off by the fact that his body is dead. My possessive, primitive heart tells me in a panic that this is all I have left of him, and so I linger, touching him, kissing him, examining his fingers in a way I’d wanted to all of my life. Pouring over him, noticing his hair, his arms, his freckles… Please don’t forget these things, I beg my unreliable memory. The funeral home will be here to pick him up shortly. First a nurse from hospice will come and help get him into some pajamas (another thing one doesn’t think much about until the situation is upon them: what will dad wear as his body departs this plane? Are the cotton/poly blend pajamas from Walmart ok?). It doesn’t sound very dignified, but what would be dignified about wrestling his now-stiffening body into a suit? Sheesh. So many little things pop up when you’re finally here.

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The men from the funeral home finally arrived. They looked much as one would have expected, in fact it seemed a little too cliché. Funny even. In hindsight I even think the older man looked a little like Peter Sellers. I didn’t notice it then, but it’s just as well. I think humor may have its limits. Certainly there was nothing funny about this moment. There were two men, in black wool overcoats and ties rolling in a gurney upon which they would take my father out. They were wonderful; not grim at all, but respectful – and they had an attentive, gentle manner which helped us bear the action at hand. Just as they began to unfold the layers of body bag and drape, I called out for them to stop – I wanted to put on some of dad’s music first. It just felt right, I hadn’t planned it, but the air was so thin, lacking of something…. I found the cd and pushed play. Not too many years ago dad had recorded this beautiful live performance of him playing Couperin; I had recently learned from friend Ken Slowik that the piece been written – fittingly for our needs now – as a memorial tribute to a deceased colleague. Gorgeously and deeply melancholic, it gave the room an air of dignity and beauty that was entirely befitting dad’s final moments in his home.

Perhaps it was going too far – but I was desperate not to forget this scene – and so I took a short video. But I stopped it after a few seconds to be present. I watched as they wrapped dad, as they lifted him, as they zipped him up to his neck. And then I saw my mother lean over to kiss dad’s forehead at the very same time that the final passage in the music played. The timing was so uncannily perfect. Again, things had lined up in the best possible way. They then wheeled the gurney towards the door. We joked a bit about dad and mom having moved so many harpsichords in and out of the house, this process was in many ways similar. Earlier we’d shown the two gentlemen some photographs of dad and his instruments, so they understood what we meant and shared in our amusement. Shortly we were outside in the gray, snowy day, at their vehicle which sat, like so many before, open and ready to receive its cargo. Dad was lifted in, feet first, his white-haired head still visible. He was one good-looking dead man, I have to say. The hospice gal who’d last come (and helped us get him in his final outfit) remarked that his skin looked wonderful, that his coloring was beautiful. And I’d have to agree; while he began to turn a little yellowish at the end, he never looked bad. In fact, as I took one last look at him in the hearse, I thought to myself what a handsome man, and what dignity he possessed, even in death.

But we, being the Conants, had to avail ourselves of the opportunity to note the humor and irony in this final step. Through the years we’ve taken hundreds of photos of our guests departing down the long driveway. We all raise an arm to wave farewell as we watch them reach the middle, and by the time the cars are at the road, mom will make a comment about the direction in which they choose to head out. We have done this for thirty-some years, why stop now? I had the younger funeral attendant take a pic of Andrew, mom and me waving at the hearse, and as they drove away I took one last picture of Andrew and mom, arms raised to wave goodbye to dad… “Well, Daddy, guess you won’t be goin down Braim Road again” mom remarked as the big black vehicle took a left.

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It’s now the day after the first day, and as I go over my earlier writing for edits and corrections I still feel stunned. I alternate between acceptance and panic, really. One moment I’m listing for myself all the perfect things about the past two weeks – the past two months or two years, even – and I note how everything resolved itself as well as it could. So many things to grateful for, not the least of which is that dad died at home, with each one of us touching him, and knowing he was loved. But sorrow is not something you can negotiate with or rationalize; the very next moment it washes over me and I find myself weeping with a freshly-broken heart. I know that this will go on for a long time. I also know that it will lessen, and that life will surround me, distract me, fill me and satisfy me again. I hope. Cuz right now I feel that queer, wide-open sort of sad that sees no resolution, that doesn’t expect to feel entirely good and right ever again.

Elihu comes home on New Year’s Eve day, which is also my brother’s birthday. My son’s homecoming will in of itself be a gift for Andrew. That man could use a little light in his life. I’m going to suggest he come along with me to the train when I pick Elihu up. We’ll see Fareed then too, as he’s on his way to the city, and then on to London to visit with his daughter. It’ll be a brief, on-the-platform hello and goodbye, but even seeing Fareed for a quick greeting might also help my brother. Don’t know. Worth finding out. And then, we will know the greatest peace our hearts can know at this time – when Elihu is with us again. Throughout this process of my father dying I have been thankful that my son wasn’t here for this – I couldn’t have expected him to sit through a ten hour vigil. So things have indeed all worked out as well as they could have. And soon I will know the tender relief of holding my child in my arms again. I can hardly wait.

Finally, I’m done with this intense part of the process. And I can say that I’m proud of myself for it too; I’m proud of all of us who’ve lost a parent, for truly it is an initiation of sorts into full adulthood. We who live through a loved one’s death – no matter who it is who dies – are brave people. This process of being human, as I’ve noted before, is not for wimps.

Ok, one big life lesson down, I suppose it’s time to move things along. My process isn’t over yet…

Maestro’s Finale

December 28, 2013December 28, 2013 Posted in An Ongoing Journal..., Growing Older, Pics8 Comments

Robert Scott Conant of Greenfield Center, New York, passed away in his home on the evening of December 27th, 2013 at the age of 85. He died peacefully in his sleep, surrounded by his loving family and cherished cats. He is survived by Nancy J. Conant, his wife of 54 years, daughter Elizabeth Scott Conant, son Andrew Frederick Conant and also his beloved ten year old grandson, Elihu Scott Conant-Haque, all of whom live in Greenfield Center, New York, as well as nephew David Conant of Bala Cynwyd, Pennsylvania; nephew Douglas Conant of Champaign, Illinois; grandnephews Matthew and Gregory Conant and sister-in-law, Jean Conant of Holiday, Florida. He is predeceased by his father, Frederick Banks Conant, mother Bessie (Scott) Conant, brother David and niece Susan.

Robert and Nancy Conant were married at the Church of the Holy Trinity in Manhattan on October 10^th, 1959, Fr. David Gillespie presiding. Though seven years apart in age, Bob and Nancy shared the same birthday.

Robert Conant was born on January 6^th, 1928 in Passaic, New Jersey. His father was a judge, his mother a talented pianist. He attended Choate, where on a school trip to Manhattan to hear a concert by the iconic harpsichordist Wanda Landowska, he was first inspired to dedicate himself to the study and performance of the harpsichord. Mr. Conant went on to receive undergraduate and graduate degrees from Yale University, class of ’48 and ’56 respectively, where he would later teach as well as become curator of the Yale Instrument Collection. Mr. Conant made his professional debut at Town Hall in Manhattan in 1951. He later taught at Chicago Musical College of Roosevelt University under Rudolph Ganz, from which he retired in 1986.

Mr. Conant performed and recorded with many groups and individuals here and abroad including the American Bach Society, The Collegium Musicum, Robert Shaw Chorale, the Viola da Gamba Trio of Basel with August Wenzinger and Hannelore Mueller, the Alfred Deller Trio, Henryk Szeryng, Fritz Rikko, Paul Doktor, Janos Scholz, Renato Bonacini, Josef Marx and Kenneth Slowik.

Mr. Conant was a pioneer of the early music revival of the post World War II years, promoting the use of historically accurate instruments and tunings. Mr. Conant created the Foundation for Baroque Music in 1959, and began to host an annual concert series, The Festival of Baroque Music, the first several of which took place at the Seagle Music Colony in Schroon Lake, NY, and which later moved to its permanent home in The Studio in Greenfield Center, NY, an open-plan concert hall designed for its superb acoustics. The Festival of Baroque Music ran continuously for 52 years, concluding in July of 2011. In addition to his love for early music he was an avid supporter of twentieth century music and commissioned several new compositions for harpsichord. He received a Lifetime Award from Yale University as well as a Lifetime Achievement Award from the Saratoga Arts Council. When appearing before an audience, Robert spoke with masterful eloquence as few can.

There will be no formal visitation; online remembrances may be made at http://www.burkefuneralhome.com. The family would like to express their deepest appreciation for the exceptional level of care given by hospice workers. In lieu of flowers, friends may make donations to The Community Hospice of Saratoga in Robert’s name.

Bob entertained friends and family with his great talent for hilarious, spot-on impersonations and will be remembered by everyone who knew him for his ever-present sense of humor, cheerful demeanor and endearing smile. Robert loved all things beautiful, sonorous and poetic, and he lives on through our enjoyment of great music and art.

Please note that the link to www.burke@burkefuneralhome.com may not bring up Robert’s page just yet, as there is still a bit of paperwork to complete before he’ll be represented on their site. Visit back soon and you should be able to leave a remembrance. Thank you all for your love and support.

Vigil

December 27, 2013January 23, 2014 Posted in An Ongoing Journal..., Growing Older12 Comments

I have mixed feelings about writing a post just now, but I feel compelled to share what it is that I, and we as a family, are experiencing. Few people are comfortable talking about death, yet everyone present on this earth will themselves die, and most everyone will experience death in his or her immediate circle of friends and family. I wish it still didn’t feel so taboo, but somehow it does. Perhaps in my writings I can help to dispel some of the mystery and help people to feel more at ease talking about the subject. Not sure I can put my money where my mouth is however, because even though I may be ready for this on some level – and even long for it on dad’s behalf – I am scared shitless.

Just an hour ago I’d been at the store, hoping to pick up some produce and other staples when mom called and told me I’d better get home. Dad’s been experiencing a rattling sort of breath over the past day, and it had just gotten more pronounced. Can you imagine the feeling in my body as I drove over the pastoral roads of the countryside towards my dying father, as Bach played on the radio? The most poignant soundtrack ever, and the snow-covered countryside out my window just made it even more intense. Hold on, dad, I kept saying to myself. I was fairly confident he’d wait for me; just before I left his side I told him I’d be out for an hour or so. Each time I’ve left his side – now, for example, as I’ve run home to eat a bite and just get a little emotional breather – I’ve told him what I’m doing, where I’m going and when I intend to be back. Many folks may not believe that this will mean anything to a man heavily medicated and sleeping, but I do. And I think he’s aware, on some level, of what’s being said to him. Just a couple of hours ago he held my hand back – and I knew he was there. We have all three been with him, sitting vigil at his side, yet on and on goes the wait. So when on earth will he go? And just what is he waiting for?

Ever the humorist, I suspect he may choose to leave us at 4:15, which is the tuning for concert A in authentic, historically accurate Baroque music. Just now, when I explained that I was going home for a bit of lunch, I told him the current time. And I suggested to him that possible time of departure too – cautioning that at the very least he might not want to go at 4:40. ! Then I kissed him on the forehead, told him I loved him so very much, and parted using Elihu’s last words to his grandfather: “See you shortly”.

Last night, when dad gurgled for the very first time and choked ever so slightly on his inhalations, my entire body immediately filled with adrenaline. I was there at his side, and quickly spoke to him as soothingly as I could. I took his hand and waited. When it seemed his breathing had returned to an even, rhythmic pattern, I sat down again. I noted how very panicked and full of pure fear I was. My very body had been physically jolted as if I’d just been in car accident. It was very surprising. And alarming. Proof of just how afraid I was. And I am a person who truly believes that my father is on his way to a grand reunion – and a much more joyful, love-filled place than here. Even with this firm belief, I am still frightened to the core of that final moment. Yet I so earnestly desire to be there with him for it. I pray that I don’t miss it, even if I am petrified of its finality.

Andrew has spent the past eighteen hours at dad’s side. He must be wrecked with exhaustion – and I pray now that he’s gone to his house to get a nap in, that he doesn’t come back drunk. Christmas evening – the one day on which my mother had so dearly hoped my dad wouldn’t die – Andrew returned from Martha’s drunker than either one of us had ever seen him. He stumbled in, and plopped down at the island where we were having dinner. He picked up his stuffing and ate it with his hands like a caveman. Unable to get much food successfully into his mouth, he got up and left, lumbering out of the kitchen and down to his house. We were on the lookout for lights from his place (just at the bottom of the driveway) to indicate he’d made it. No lights were ever turned on. As I left later on that night I made sure that I didn’t find his body passed out in the snow. It was brutally cold out, and he’d left in nothing but a sweatshirt. Suffice to say, our father’s death is pushing Andrew to his absolute limits.

Mom tells me she’s told dad it’s ok to go. She’s given him her permission, so have I. Whether Andrew has done the same we’ll never know, but at least he’s had a good amount of private time with his father. That makes me feel better. So now it’s purely a waiting game. I finished writing dad’s obituary today, and in lieu of a date of death, I’d written in December 28th. Mom gasped when she read it, as if, like me, on some level she simply cannot fathom his dying. I told her it was just to fill in the blanks, but she remarked that I shouldn’t “push things”. Man, are we mixed up about this. I look forward to having this whole experience behind, and not ahead of me. What a challenge is life… and what a greater challenge is death.

Hospice workers tell us that the very final and sure signs that death is within hours are a change in skin color in the legs, feet, arms or hands. A bluish tint will occur, signs that the blood is no longer oxygenating as it once did. I’m glad to have something to look for, because dad has seemed on the very precipice of death for the past twenty-four hours. His mouth now hangs open, his breathing is deep, faster than before, and his face had truly become sallow. His face still looks like him, yet now his cheeks have become sunken and if one were only to glance at him, a person would register nothing but an ancient man. How quickly he has changed. In some ways it makes it a bit easier, for we are not saying goodbye to the man we all knew. He has already departed. It’s a wonder what exactly it is that remains. He must be hovering somewhere in a semi-conscious ether, trying to muster his last earthly courage to let go of the cord, to bid us all a final adieu.

You are loved by so many, dearest father, and you have left a grand and beautiful legacy. Please be at peace, and know that you may let go without fear, and travel to the place that calls you now. We’ll see you shortly.

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Post Script: Dad did in fact die on 12/27/13 (although legally his date of death will always be recorded as the following morning when a nurse arrived to ‘legally’ pronounce him so. We know the true date, however.) It was around 11:20 p.m. when Andrew, mom and I were just sort of doing our thing at the house. Mom at the kitchen sink, Andrew at his computer on the dining room table, dad in his hospice bed, and me on the couch with a view of all three. Dad emitted two vocalizations which where unusual in that they were focused and a bit louder than anything he’d uttered recently. I personally feel he was summoning his effort to get our attention. The whole family was there, there was a cozy, familial feel to the home and it must have been the right time. It worked; it got my attention and I called to mom and Andrew. We were immediately at his side. Now his breathing had begun to change.

Never once was there ever any discoloration of his legs, feet or arms, so our only indication that things were reaching a new phase was the breathing. Now he’d take a labored breath and wait much longer til the next. We got into our positions by his side; mom held his right hand, Andrew his left, and I held both of his feet in my hands, dancing side to side in an expression of my acute distress and fear. We all must have known this was it. The past twenty-four hours the cats had paid their visits to his bed and alerted us that things were changing, now it was our turn to sit with him one final time. We stood like this for some twenty minutes. It was apparent what was going on this time. We were getting ready to watch our beloved Robert die.

He took another deep breath and then… nothing. We all began to sob for our loss when he surprised us by sputtering to life again, taking in another breath. He went on to repeat this a few times – each time throwing us into tears, each breath having us laughing at how it had fooled us… It seemed he was taking a couple of curtain calls at the end of his life – so we began to laugh even more at the idea. It happened again, one breath, a pause, then mom, maybe sensing his wasn’t quite ‘it’ yet, began to talk about something she’d been doing before this – a cat-related item – and I shushed at her to stop talking – because it really seemed this was it! We quieted down and waited again… I hoped we’d hear another breath, but none came this fourth and final time. Having those three fake-out curtain calls had softened the departure, leaving us crying and laughing all at the same time. When we were sure a minute without breath had passed, we agreed he was finally gone. And a cat meowed twice from his office precisely at that moment as if to confirm it. I’d watched dad carefully through the whole thing, hoping I’d recognize that one final moment of departure, but I didn’t.

But when I moved in close to look at his face, I got it. Yeah, there was no one home to animate that body anymore. That thing that made the difference between a physical body and a charming, intelligent, funny human being – that ‘whatever it was’, was just plain absent. He was here just a few minutes ago. But now he was definitely gone. Nothing in between about it. Wow. Kinda nice that he had us all laughing through our tears as he left. Thanks, dad. We really appreciated it.

And we hope you’re still laughing where you are now. We’ll spill some tears here for you yet, but in the end you’ll have us laughing more than crying, I’m pretty sure of it. Curtain calls at your own death, indeed. !

Robert Scott Conant died at 11:51 pm on Friday, December 27th, 2013, and did so as peacefully as any person should ever want to go. Amen.

Christmas Last

December 25, 2013December 26, 2013 Posted in An Ongoing Journal..., Farm Life, Growing Older, Mommy MindLeave a comment

On a bright and sunny Christmas morning, peaceful and still in my little house, it’s difficult to imagine all that’s going on across the land at the very same moment. Living rooms are ankle-deep in wrapping paper, parents are sitting nearby, watching the chaos, relieved they pulled it off and children are awash in new toys and chocolate. Yet at the very same time hospital beds are occupied by people for whom this day is much like any other, some are just waiting, some are in pain, some are not even aware of being there. Some young women are realizing that their new baby’s birthday will be today, and some people are getting ready to watch a loved one breathe for the very last time. Yes, it’s a holiday, but everyday life does not take day off.

When I went out to tend the chickens, I discovered a hen taking cover underneath the water trough. When she tried to move, she faltered and fell. I’d seen her only just last night, on her roost and doing as fine as always. How did this happen? And what, pray tell, took place? It seemed her leg was broken, yet I couldn’t imagine how. Her back showed signs of pecking, a bare spot and a fresh scab told me that she’d somehow sunk down the pecking order and had begun to show evidence of it. Unpleasant as that was, it did not explain a broken leg. Immediately I picked her up and brought her in to the house. Likely she’d be housebound and in my care for the next week. I thought of all the folks, animal and human, whose needs continue, acute and mundane, regardless of the celebrations. My father, awaiting his death, still needed to be changed and moved in his bed, and this hen still had an injury that needed attention. I kept thinking to myself that this was a good year for Elihu to be away. Not sure how I could possibly have been present for these situations otherwise.

As I think about my son on this morning, far away and in the midst of his own magical Christmas morning, I do realize that it’s the last such Christmas that he’ll believe in Santa – already the signs have been showing over the past week – and I’m a bit sad that I’m not there for it. Yet in the end, it doesn’t really matter. While we have distinct, clearly defined holidays on our calendars, time itself is a bit fuzzy. Events stretch out over time… not believing in Santa doesn’t happen in a second, instead it’s a process. A slow calculation built upon a growing body of evidence. Likewise, a natural death does not happen all at once. It too is a process, a gradual slowing down. And while there may truly be one final breath, it in of itself is not the dying. And so I realize that I can have no regrets on this, the final Christmas that Elihu believes, and that my father lives.

All I can do is be fully present in the moments I’m given. I can take some peace in knowing that I will carry the memory of this day with me until the end of my own, and it’s in this way that I’ll make this final Christmas day last.

Delay

December 22, 2013December 23, 2013 Posted in An Ongoing Journal..., Flight, Growing Older, Mommy Mind1 Comment

Although Elihu was scheduled to have flown to Chicago last night, the weather looked threatening enough for Southwest to re-book him on an early flight this morning (one benefit to flying as an unaccompanied minor). It was such a welcome gift of time. Through a miraculous chain of events we went from nearly missing the new flight to being the last ones to board – to meeting the pilot. Earlier that morning I’d written a thank-you note to the pilots, one which we handed the fellow as he and Elihu boarded together. I have never once taken for granted the skill and professionalism of the people that get my son – and everyone else’s loved ones too – safely to a faraway airport. And especially on a day like today; black ice sheeting the roads as rain continued to fall and freeze all around. I suppose I also chose to write this letter today because given what I’m currently going through I have a heightened sense of how precious and important friends and family are.

Yesterday afternoon we went next door to visit dad in what was to be the first of two final visits for Elihu. While we were there my oldest friend in the world (she’d also been matron of honor at my wedding) and her family, husband, daughter and son, all came by to say hello… and goodbye. There were eight of us together in the room, visiting, sharing stories and catching up on life events. Although dad responded very little and spent most of the visit with his eyes closed, he lit up when Sherry took his hand and said hello. And somehow, once again, dad and Elihu had a quick exchange of their fake language for all to enjoy. What a deep and good feeling it was to hear laughter in the room. Dad and Elihu’s little bit was still so delightful, so hilarious. Plus it sounded so authentic that my friend’s son (a high schooler) actually guessed it to be Russian. Imagine that! Success! Those two have that certain talent, that certain thing. Something that not just everyone has. How lucky I felt to witness it one final time, and to have shared it with a room full of old and dear friends. While dad may indeed have one foot outside this reality of ours, he is still present enough to appreciate the company of friends and family.

Last night after supper, Elihu and I went over so that he could make his final farewell. Dad was markedly less present than he’d been only a day before; he was still able to speak, but so much weaker, so changed. I tried to make it clear to him that Elihu was going to Chicago for the holiday, and that he was here to say goodbye. Elihu leaned in and stretched his arms over his grandfather and kissed his cheek, telling him again how much he loved him. When he pulled away dad said something strange… “When beautiful January comes….” and he trailed off. I took it as a sign that he’d wait til then to leave us, and I pressed him for more, but nothing came. I could see that there was no point to stretching this out. This was the tidiest ending we were going to get, and sad as it was, it was time to go. I left the room first, and turned back in time to see Elihu wave, almost casually, as he said “good-bye, Grandpa, see you shortly”. I know some may think it was just a mimicked, stock phrase of parting that my son chose, but I think differently. I believe that my son knows that he will one day see his grandfather again, and in the infinity of the cosmos, it is truly nothing but the merest moment in – or out – of time.

Today was another gift, as old and dear friends made an incredibly long car trip just to see dad one last time. The man who visited, along with his daughter, is a musician who’s been a part of my father’s professional world for going on four decades. And in that time his family has become part of our family too. This was an important moment for the both of them, and while my father may not have been able to communicate very successfully, it was a necessary final visit. I turned away to give them privacy, but I longed to hear their voices in conversation. From where I stood, I heard very little. I’m sure that dad, at this point, was barely audible. Still, it was an important moment of closure. After they departed for a long return trip I remained there with Andrew and mom. I sat with dad, just holding his hand, stroking his head, rubbing his feet. He twisted in the bed, trying in vain to find a comfortable pose. He tried in vain to lift himself up to shift positions, then hollered in panic when I put my arms under his shoulders and pulled him back up in the bed. I knew to disregard this, but it still didn’t feel great to hear. But what was more frustrating was his unending search for stillness. His hands tugged and this and that, he tried to move from side to side, and eventually began trying to curl up into something that seemed on its way to a fetal position. Oh, poor dad. No amount of pillows or propping or shifting seemed to give him peace. And every now and then he’d grimace in pain and even moan as something in his gut had taken place. All I could think of was the bleeding that continued, slow and steady beneath the covers…. Was this his colon breaking down? Did this bleeding hurt or not? Was this just gas? After a few episodes of extreme discomfort mom finally administered some morphine. It seemed to help, but after another hour he was back to tugging on his sheets and writhing in his bed. Hard to watch, and it made me feel pretty ineffective.

I went home to get some rest, but just as I was sitting down I received a call from an old friend who’s parents live ‘next door’ (a quarter mile down the road) to mom and dad. This gentleman now lives in Boston, and he was here on his annual visit to see his folks. Good timing, as he’d not seen my parents now in two years, and this was clearly his last chance. After catching up a bit on the phone I suggested to meet him at over at their house. We hung up and moments later both pulled in the driveway at the same time. He was very good and gentle with dad; I’d warned him what he would see, but having been through a close friend’s recent fight with pancreatic cancer he assured me that he was comfortable with anything. He took dad’s hand, and spoke his presence, although I was disappointed to see that this time dad barely registered a response. We enjoyed a very brief visit, and at his leaving my heart warmed with gratitude and love as I saw him lean in to kiss dad’s hand. I had to turn away, this again was so real, so very sad and final. I only wish dad had been more responsive. It made me wonder, was this the way things were going to continue? Would he remain in a semi-conscious state until his death? Things had changed so much in just the past twelve hours…

So now I’m at home, catching up in this post, wondering whether I should try to get some sleep in, or if I should rally and just go back over there. I have some old down pillows I’m anxious to stash under dad here and there in hopes it might take the edge off whatever ill-ease it is that he’s experiencing, but I don’t know. I am tired. Got about four hours sleep last night, and it’s nearing seven in the evening now. I’ve been given the rare gift of time here; no more workdays for the next two weeks, no mothering duties either. My piles and to-do lists don’t matter. There is only one thing on my to-do list now, and that is to see my father off into death. I do not want to miss it. But how do we know when to expect it? When mom and I asked the hospice worker today if dad’s death was likely to happen ‘soon’ she responded fairly confidently that she didn’t think it would be that soon – as he still had some ‘transitioning’ to do. Well if this shutting down, bleeding out, sleeping all day, seeing dead relatives and uttering poetic platitudes isn’t considered ‘transitioning’, then what exactly is? Mom and I were a bit taken aback. However, mom is holding Christmas in her heart as the date to which dad must make it – and she hopes that he will choose to go after the day is past. Not sure why, but why not? Standing at the kitchen sink, looking out to the songbirds that flitted about on the feeders, her eyes filled with tears as she said under her breath “he’s got to hold on til Christmas“. I guess I hope so too. Yet in some way I just want it to be done. But in a million more ways, I want to stop the clock completely.

I have a plan. I will rally, deliver the pillows, stroke his head, hold his hand, see to it that he’s resting, then return home. In this eleventh hour I don’t want to skimp on anything. If I can do anything at all to help my beloved father stay in peace, then I need to do so. My time stretches out before me open and without obligations for the first time in months – it’s as if life itself has given me the gift of time. And so, with this ever-waning commodity, I need to honor it, use it, savor it. This is one delay I am very thankful for.

Post Script: The extra down pillows I brought over were just what we needed to get dad snug and comfy in his bed. He didn’t fully wake, but he did respond to me as I made some adjustments. Then I sat with him for a while, my hand on his head, my hand on his hands, and over his heart, just trying to comprehend the moment, trying to memorize all the parts of my dear father, and trying to understand what is was to say goodbye – forever.

And when I left him just now, he was peacefully sleeping. A new event however is a faint gurgling sound that now accompanies his breathing – and I think I remember reading that this is one of those ‘near to the end’ signs. I myself am currently doped up with half a sleeping pill which I hope will let me rest until 2 am, at which time I will go over again and help mom change his undergarments. Then she can go to bed, and I’ll resume watch. What a strange time. Just how do you plan for a death? I sure am lucky to have all the time in the world in which to do it. I’m in rather a daze, going through the motions, keeping my focus on the task at hand lest I become a sobbing wreck. The tears will come when they must, but not just yet…

The Wait

December 21, 2013July 29, 2021 Posted in An Ongoing Journal..., Growing Older, Mommy Mind, Pics2 Comments

Harder than the not knowing, I think, is the knowing. Knowing that my father will die any time now. Maybe during the night, maybe tomorrow. Likely after tomorrow, I think, as Elihu will be leaving tomorrow night to visit his dad in Chicago. I think dad will probably wait until he’s said goodbye to his grandson. But either way, his death is not as far off as I’d recently thought.

Seems I’ve been fooling myself in tiny ways. I talk about it, I try my best to be upfront and honest, thinking it will help me to wrap my brain around this, maybe even deep down thinking that my talk will stall the event too. And in my waking day with all its distractions and busyness I am ok. Even though I speak of it, somehow it still doesn’t fully exist as a reality. But when I awake in the middle of the night and find myself alone, the moon lighting up the snow-covered fields, I am scared again. I look to the darkened woods towards mom and dad’s home. It gives me comfort to know he’s still just there, somewhere close, still alive. And it shakes me profoundly to imagine him no longer there.

It doesn’t seem real, this waiting for death. Knowing it’s coming, knowing this time it’s not a case of almost. Not a case of weeks more, not even a case of days more, and not a case of more opportunities for forgotten stories, for recountings or great revelations. I suppose there are many cases of death bed surprises, but I don’t forsee any here. The only surprise will be in the finality of dad’s absence. And waiting for that is so hard. But lest I complain too much, I stop myself in time to realize that we are very, very lucky here. My father is dying at home. So many people are robbed of that possibility. Nursing homes and hospitals are most often the places for farewell. My father’s final breath will be taken in his home, and God willing, the three of us present for his departure.

I’ve seen my mother falter now, yet still she remains ever in charge, on top of things and very much ‘in character’. I see the edges of her soul curling in though, beginning to yield to the immense wave of sorrow that is almost upon her. Her eyes tear up, but she doesn’t give in. I’ve hardly ever seen her cry in my whole life. Because she is always in charge, dammit. She holds her own world so tightly in her control. Sometimes I think if she were to cry she might never stop. She’s got years’ worth stored up. She is due. While I personally do not look forward to having to go through both dad’s death and mom’s newfound expression of grief, it will be so very good for her. And it may be healthy for us, too. She is always the rock, the solver of problems, the caretaker. Maybe relinquishing all of that – if only for a few moments – will be a very healthy thing. Might even alter our dynamic. Certainly things will be different after we experience the death of her husband and my father together. It’s funny how even though dad is mostly sleeping, and for all intents and purposes not truly with us, the family still feels normal. Each of us in our roles, the four of us existing as a unit. A dysfunctional unit to the end, but a unit nonetheless. So this too will change.

Mom is planning on going grocery shopping tomorrow and leaving Andrew to sit with dad, in order to give him some private time to use as he will with his father. He and dad have always had a sort of ‘non’ relationship. No anger really, no overt animosity, however Andrew has seldom had much to say to dad. And I can get that; Andrew’s not functioning fully as a healthy person to begin with, and then they have so very little to talk about. Dad lives in a world that we, outside his academic, early music world don’t really know or understand well. And beside the bits of humor he uses as a means to communicate, dad has never had much to bring to the table conversationally. At least not in the past five years or so. Not since he stopped being the active director of his Festival of Baroque Music. He had a full and rich life at one time, but we as children knew little of it. When he no longer had that life – essentially by the time he and mom retired and moved to New York permanently and we kids were out on our own in the world – there was simply less to talk about I suppose. Even I myself (chatterbox though I may be) had very little to say to him save small talk – and dad had little to say in response. My world was so different from his, unfathomable to him you might say. So our relationship was based mostly on an unspoken love simply because he is my father and I his daughter. I don’t know how Andrew will act. I can’t begin to know what’s going on in his head now. But I suppose, no matter what, his heart is breaking too. Because after all, this is still his father.

Elihu and I visited mom and dad tonight. Our hope was to get two good visits in, one today and one tomorrow before we leave for the airport. Elihu will say his final goodbye to his grandfather then. I was able to sit with dad tonight by myself, and I’m glad of it. Somehow, with the cover of nighttime, the gentle glow of the Christmas tree and the Robert Shaw Chorale (for whom my father once played harpsichord) singing the ancient music of the season in the background, it was the perfect environment for close, tender words. Dad smiled nearly the whole time, and I was able to elevate him in the bed to a near sitting position. I showed him a photo I’d enlarged of the two of us from fifty years ago, me as a wee one on his lap at the harpsichord. I was happy to see recognition in his face. “Oh, what a cute baby” he said. “This was in Hamden” I offered. He nodded. Good, I thought, he understands. I began to cry, and before I knew it I was sobbing, holding his hand and leaning over him. I had some things I wanted to say, but it still felt a little silly, cliché perhaps, to launch into this end-of-life monologue. But I had to. I started by telling him that I just couldn’t believe he was now such an old man. And said that getting old like this sure was a bitch, huh? He laughed weakly, and then solidly agreed. I thanked him for making me the musician I was. Then I thought better of that, for I’d always considered myself something of a just-enough-to-get-by, jack-of-all, master-of-none sort of musician. But my dad was the real thing. Although it might’ve seemed far too sappy to say aloud at any other time in my life, this was my final opportunity to express myself, and so through streams of tears I finally said “Thank you for giving me the gift of music.” Holding his hand the whole time, I lowered my head many times, kissed his cheek and told him I loved him over and over. And I thanked him over and over. He said something, and I had to put my ear to his mouth. “What, dad?” “You have always been the most outstanding child” he repeated to me. And he too told me over and over that he loved me. Then he said something so out of the blue – and instantly I recognized the child in him; “I miss my dad, and my mommy too.” I’d never heard him use any word but ‘mother’ before in talking about his mom. Did he once call his mother ‘mommy’ as a young boy? I tried to comfort him, and told him that he’d see his mom and dad very soon. I hoped this gave him ease, but if so, it didn’t register on his face. Instead, he had a distant look, and he was lost to his thoughts again. I could hear that Elihu and mom were wrapping up their visit in the kitchen, and I sensed our window was closing, so I backed away and let my son move in close to his grandpa.

Elihu had drawn an Ivory Billed Woodpecker, and held it up for his grandfather to see. Dad took it in with appreciation. Elihu set the picture down and then leaned in to speak to grandpa. Elihu, wanting to convey his deepest love to his grandfather, kept saying over and over that “he was just the best grandpa ever” and he told him over and over that he loved him so much. I wish I could have heard more, but I did hear bits of dad’s response… He spoke of loving him forever and how nothing would change that. And Elihu agreed. Then dad went off onto a lovely sort of speech…”Every day is a new day, and a beautiful day. And every night is a new night, and a beautiful night. And we will all live together forever…” He said more than this, but I struggled in my mind to latch onto these words, that I might take something away with me. Mom came over and took a few pictures of us, I took some too in a vain attempt to capture this final visit, but I doubt in the dim light any will come out. She fed him some chocolate pudding which I was happy to see he ate and enjoyed – and I was happier still to see him wipe his moustache clean. Somehow it gave me a slight feeling of relief to see him doing something so ordinary without thinking twice. And then we shared a moment I believe we were so lucky to witness one last time; Elihu and dad spoke their made-up language to each other, with gestures (dad’s greatly reduced) and all the inflections to imply content. It was a weaker version of their bit, but still very funny and we four all enjoyed a good laugh. That was nice. Truly, I didn’t expect it.

We put the bed flat again for dad to rest. We’d been there nearly a half an hour, and we’d found the natural conclusion to our visit. Elihu, mom and I went to the kitchen. We needed to get home – it was already turning into a late night, and I had yet to make dinner. While mom and Elihu chatted, I snuck back for one last peek at dad, who was not yet asleep. I put my hand on his, leaned in again and told him I loved him. “I love you too, Elizabeth” he said, and then I left.

Elihu doesn’t seem as hit by this as I’d thought he would be. After all, he’s the kid who gets things. But maybe it’s precisely because he does get things that he isn’t as worked up. He even told grandpa that he should leave us now – and then followed that with “don’t worry, it’s just like turning a page”. Oh, is he truly just ten years old? Yet as precocious a child as he is, he is still a child. Maybe he doesn’t truly get it. But maybe he actually does get it better than any of us! There is a certain matter-of-factness in his demeanor which puzzles me. Then again, I myself don’t remember being whalloped by my grandparent’s deaths… I do remember the heartbreak of losing my maternal grandma, but I also remember getting over it rather easily. I was eleven. Hm.

Recently Elihu told me that he doesn’t like to get sad about grandpa dying, because that would be like getting mad at what is, and that would be a waste of energy. Ok my little Buddha boy. What makes me sad is that Elihu’s memories of Grandpa Robert as a functioning, alert man are diminishing, and so I believe he doesn’t feel the loss as deeply as he would have if there’d been no gradual decline. After all, it’s been a few years since dad was ‘himself’. But thankfully, Elihu has had five years to know him, and at least a couple of those were good. We didn’t visit as often as I would have liked, due mostly in part to Elihu’s acute allergies and mom and dad’s cat-filled house, but I can’t kick myself for that now. I remind myself that we visited as we were able. And that Elihu and grandpa had plenty of lovely moments. Elihu may not remember them well, but I do. I have to be happy with that. It’s more than lots of folks get.

I must get to bed. My stash of sleeping pills is running low – and I’ll certainly need one tonight. I can’t begin to sleep. My head continues to ache and I’m full of dread. I’m flat-out scared of saying goodbye to my only child tomorrow, and then turning back to the business of watching my father die, and watching as his lifeless body is taken away… How in hell will we do this? I know, I know… everyone goes through it. This is nothing new. For millions upon millions of people this is nothing new, I know. Only thing is, for me, it is.

And for now, the hardest part is the wait.

Mom told me as we left tonight that dad had hemorraghed a huge amount of blood the night before and his bleeding was slight yet ongoing. He seems in a lovely state of comfort and ease, so we don’t need to worry what caused it. Our only concern is he not be in any pain. This does seem to indicate however that his death will come fairly soon.

Holding Pattern

December 19, 2013December 22, 2013 Posted in An Ongoing Journal..., Flight, Mommy Mind4 Comments

I’m afraid my last post was probably too emotionally charged. It generated many responses and communications from people and had me wondering if I hadn’t made too much of a stink about things. Even though I expressed myself truthfully, I wonder if it wasn’t a bit self-indulgent. And I wonder if I may have stirred the pot too soon, as it were. I say this now because, after making a big deal of all that’s been going on, I begin to wonder if Dad won’t be here a little longer than I’d originally thought after all…

Why? Because he’s got a big, comfy hospital-style bed in the living room now. A bed which self-inflates and self-deflates in different zones in twenty minute intervals in order to prevent bed sores and keep circulation going, a bed which can raise him up to eat in a sitting position, and lower him down to sleep. He has been given – through this miracle operation of hospice – a full range of gadgets and accessories that promise to make his life cleaner, more comfortable and healthier than it has been over the past few weeks (if not months). All that and his lasting and evident sense of humor are telling me he may stick around for a bit.

I kinda wish I had a bed like that myself to hide out in right about now. Frazzled with a sudden influx of things going on at school and falling behind in a myriad of domestic chores, I haven’t showered in at least three days and my son and I haven’t had a fresh vegetable in nearly a week as I’ve had no time to catch up. I know it’s not just me; this time of year we grown-ups have a lot on our hands. With presents and parties and cards and driveways to shovel, I know I’m not the only one up to my ears in laundry and dirty dishes. Even the gal who drives my son to school in the mornings – usually a fairly upbeat and energetic woman – even she seemed a little worn and tired this morning. I thought I recognized that look, I certainly felt the same. So now that dad and mom are getting into their new groove, I’m feeling a bit of relief. This afternoon we finally have no commitments. No doctor’s appointments (Elihu had his braces put on yesterday), no car pool duty, no chorus to accompany, no students. So I’m taking the opportunity to go grocery shopping. Last night we ate the last of the pasta in the house and rounded things out with leftover party food. Ich. Can’t wait for a salad…

Elihu flies to Chicago this weekend too. I’m so very happy for him, he’s beside himself with anticipation. I’ve never seen him fill the Advent calendar so eagerly (ours is a series of pockets into which we insert a feather a day). I’m happy for him, and also relieved in that I don’t think dad will go while he’s gone. Never know, but I have a feeling. Having the house to myself is most welcome, but at this time of year it can be bittersweet, too. Last year was my only Christmas with Elihu here, and it wasn’t exactly a success. Santa found him alright, but a household of just two can be lonely on Christmas morning. So my heart is lifted to know he’ll be with his baby brothers, grandma and full household. On our end, it will be strange. Dad in his big bed, Andrew wordless, silent, unreadable, and mom chattering away to fill the space. And the tv on behind it all. I’d say jokingly that alcohol is a welcome buffer, but is it then fair to drink in front of Andrew? I don’t know. I really don’t like this situation. Likely I’ll drink. Most likely.

Mom and dad have the same birthday, January 6th. Epiphany. Imagine that. I still find it fascinating. I mean, what are the odds? They’re seven years apart, and their total years always add up to an odd number. A quick tally tells me they’ll be 165 this year. I find myself wondering if dad might wait til then. I wonder. Nothing is certain. How we’ll handle it, how I’ll be able to keep my professional self together until then, and after then. How life continues. I realize I’m sounding like the first person ever to have gone through this, but until an experience is personally yours, it kinda feels like it has no relevance at all to you. And really, it doesn’t. You pay so much more careful attention when you are living through something. You just don’t fully notice or appreciate things until you’re dealing with them. Like buying a car, or getting a haircut, or having a baby. As soon as it’s on your mind you start to seek out information. You want to hear other folk’s take on things. And then when that’s done, it’s off your mind again. And the time in between events is sort of a coasting, a living on auto pilot sort of thing. At least for me it is; it seems I travel through life from one heightened sense of awareness to another, with great wafts of less intense time in between. I feel a queer mix of both right now. With the house soon to be empty, and this great not-knowing going on, I don’t feel I’m really anywhere. Strange place, this nowhere.

The weather might be a bit blustery for travel this weekend, so part of my attention is going to that situation too. I think of my son’s plane, being de-iced, sitting, waiting on the tarmac for the opportunity for departure. Here too is an uncertain situation. He’ll be bringing a good book, a bottle of water and his DS. So he’s prepared for a long wait if need be. Never once in his years of travel has he ever been re-routed on account of weather, and I pray things remain thus. Nothing I can do about the outcome, so I’ll just have to wait and see.

There’s a lot of wait and see these days. Like an airplane in search of safe landing, we’re all just in a holding pattern for now.

Going

December 17, 2013 Posted in An Ongoing Journal...8 Comments

Let me tell you a bit about the scene: Mom and Dad’s house is an open-plan, post and beam beauty in which life takes place in the kitchen – which is the first room you walk into through the garage (as with most of the world, they never, ever use their front door). As soon as you come in, the dining room is just beyond the large kitchen island, and the L of couches to its right. (A Franklin stove sits near the couches but has been dark and unused for the better part of the past two years, unlike decades before when it was well-tended and in daily use.) There is a large tv that bisects the kitchen and the living/dining area, and it is constantly on. Mostly it’s the old black and white movies, sometimes it’s the cooking channel, and in the evenings it’s set to the local weather. Mom has become ever so slightly hard of hearing these days, and so the tv plays at a volume that adds a certain frenetic energy to the room. I always have to turn it down in order to hold a conversation. And through it all, dad – at least the past few years – has either been sitting at the island on a stool, sitting in his chair to the side, or lying down on the nearby couch. Since we four Conants moved him from the stool to the couch this past Sunday night he has lain there ever since, and it’s my suspicion it may well be where he remains until he dies. Because there’s little question about it now: my father is dying.

As I’ve said before, we Conants – at least mom and dad, Bob and Nancy, that is – aren’t very comfortable with physical displays of affections. Or spoken expressions, either I suppose. It was only through a very intentional campaign made by my ex husband years ago (when he was still my very new boyfriend) that I learned to say “I love you” to either of them. Thank goodness it was over the phone – I don’t think I could have done it in person. But at the end of my catch-up calls on Sunday evenings from Chicago to sleepy Greenfield, just as I was about to hang up, Fareed would lean in close to my face and mouth in an exaggerated way ‘AND I LOVE YOU!’ and he’d shake me til I said it. I thank my ex for a couple of things in my life, and this is one of them. From that time forward it because customary to end conversations with an ‘I love you’. But in person, not so much. And after I moved here, even less. Only in the past few months have I made an effort to revive it. Because, well, now’s the time, you know?

When my parents began their post-city lives here they found themselves in a cozy little social group which included a gay couple (that they were gay never registered to me until I was way into my own adulthood – they were simply my beloved Jim and Everett), an ‘older’ (as in my age now) opera singer, husband and wife musicians who ran an old-fashioned farm and maybe a couple extra characters that joined in the parties and concerts over the years. But the core group was always Frank and Martha, Jim and Everett, and Ruthie. Over the past decade I’ve seen all of them die. Except Martha, that is. (One might joke that she aint never dying. And if you knew her, you’d laugh, shake your head and tend to agree.) Since only the trio has been left, it’s naturally had me wondering who would go first. And now I’m pretty sure we know.

Mom did finally call someone to learn our care options at this point. And finally, there it was, “Hospice”. For me it wasn’t a shocker, but the idea hit mom like a train. I heard it in her voice on the phone – she even readily admitted that even she wasn’t emotionally prepared for hospice to be brought up (the suggestion actually surprised her!). Later, when we visited, her eyes began to well with tears as we talked about the next phase. She’s held out til the last possible moment, and while I myself might have done many things differently, none of that matters now. Dad is still happy, so if we can keep him comfortable and healthy, he will die here at home. That, in my world, is a HUGE blessing. But regardless, it is still the death of my mother’s partner of over fifty years we’re talking about here. As much as we might toss it all around like so many common plans for the to-do list, we all know what this means. We are getting ready to have dad die, right here, and very soon. She is facing the biggest good-bye of her life. And after that, the house will be empty. She will be alone. Shit. This is hard. So goddam hard. It’s not like we didn’t know it was coming, either. “So how long did you think he might still live, Mom? Three years? More?” “Oh God no!” she snapped. “But then what, like another year?” I pressed. I’m not sure she herself knew. One doesn’t tend to actually sit down and map this stuff out. “I don’t know. His mother lingered like this for years….” she trailed off. That may have been so, but it looked like we were closer than that. Never know though. You hear stories of folks being put on hospice care and then living for years… Just never really know. But then again you kinda do….

Now that it’s real I feel a mix of three things: first, concern for my mother (and Martha too). How will she react? Will she allow us to see her cry? Childbirth gets so heavy that all modesty goes out the window; will she behave in a similar way with the death of her spouse? How does this work exactly?? Next, my brother. Just how will he react? How will this affect him? His drinking? Will this be what he needs to finally rise up and get healthy or will he sink to his own final funk? And then I myself feel a queer mix of sorrow and relief. The two battle it out inside me; when I take a closer look at his existence, it seems we only want him around us for ourselves, plain and simple. He himself would probably greatly appreciate an escape from this tired, confused body. But even as my mother had admitted a few weeks back, just having him there – even if he’s asleep, checked out, for all intents and purposes ‘not there’, his energy and presence is still very much there. And you feel it. You just know he’s there in the room. And it makes a difference. We both try to imagine the house without dad in it somewhere (as it’s been for the past quarter century) and the house seems almost pointless. Good thing mom has that goddam tv to fill the house up with crap and distraction I guess. Sigh. Elihu has great compassion for mom and her need to ‘fill the space’. “She just doesn’t want to really understand how far things have gone. She’s scared, so she tries to ignore it.” Yeah kid, probably a good bit of truth to that. Whenever I mutter about mom under my breath he says “I understand. She doesn’t mean it. She’s just trying to figure out how to behave”. Yeah, once again, thanks for keeping me on track. This isn’t easy for any of us.

When we went over earlier today, dad was resting on the couch. It was a different sort of resting now. Having continued to lose weight, his cheeks took on an extra sunken look in his horizontal position. Honestly, in his current condition, if you just glanced at him, you might think he was already gone. But no, he is there. He is there. Still. While Elihu chatted with grandma, tv continuing to do its thing, I sat next to dad, hoping for something. Some new pearl, some word, a smile…. Sadly, gone was my hope for a cute anecdote or story, it was all he could do to recount his two childhood pals by name for Elihu last time; now he related tiny blurred scenes to me, and all I could do was to try and understand what he was seeing as best as I could. Which I noticed became increasingly hard to do as mom continued to badger me with useless and uninteresting facts about this and that… a constant stream of crap that may as well have come from the goddam nightly news… Can’t that wait? I’m thinking, but biting my tongue lest it come out as I think it might… Please, lady, just shut up!! Can’t you see I’m trying to hear what dad is saying? But I don’t move, my focus is essential here. I listen, then I place my hand on his. We are connected now by touch, and I swear I feel him relax. His eyes have been closed the whole time. “Hi Dad, it’s me, just sayin hi”. He opens his eyes and smiles gently. “I love you so very much, dad” I tell him. And in a not-too-faint voice he answers me “Oh Elizabeth, I love you so very much”. Then he closes his eyes again. But my hand is still on his, we are still engaged with each other. Mom comes over to us and leans over the couch. I hope she doesn’t stay long, because she’ll probably start asking him what he wants or trying to make sense with him, asking him things that require answers – hell, that require opinions. And dad just doesn’t care now. Can’t you see that, lady? I’m thinking. Dad opens his eyes and looks at mom, saying “Pop is here…” then trails off. Mom laughs it off as the nonsensical mis-firings of an Alzheimer’s-riddled brain, and thankfully, she leaves. But I know that something is going on in there, and I stay with it. Me, I believe he’s just seen his father. His Pop. A pause. He closes his eyes and smiles. “I am in pleasure” he says, with a slight tone of humor. But then again, I take it to mean that he’s feeling ok too. He’s letting me know. “Susan” he then says, his eyes opening and looking a bit off into space. “You mean Susan, your niece?” “Yes, Susan. Where is she?” he asks. Now me, I personally believe he’s probably just seen Susan himself. She knows he’s coming soon, so she’s letting herself be seen. “Your niece Susan died about a year and a half ago. It was rather sudden. She was living with Jean in Florida. She got very sick and died.” What else to say? Sorry was not what this was about. He seemed to be thinking of – if not actually seeing – family members that were now gone. Sorry was the opposite of what was going on here now – all I felt was ‘yeah, this is it. Yes, there is some love and comfort awaiting him when he goes.’ And thank goodness! It makes me feel much better about things. A moment passed after the Susan thing, then he raised a finger and pointed a bit out and to the right… “who are all those people waiting by the curve?” he asked. “Oh, Dad, I wish I could see them too, I wish I knew who they are, but I don’t.” As if to keep things real, keep humor in the house (a staple of our family) he summons a bigger voice and in a funny accent says “I weesh to be reech”. He repeats it again, closes his eyes, and a wide, happy smile settles on his face.

This is the fork in the road at which many of my friends may choose to part from my company. Because for me, I do not believe dad’s words are meaningless bits of information, retrieved randomly from disparate areas of the brain…. I do not see this as a purely physical phenomenon taking place. Surely it is on some level just that, but there is another equally ‘real’ phenomenon occurring now which is not something than can as yet be quantified by science. I recognize my father is becoming less vibrationally in tune with this reality, and he is now becoming aware, if only in the faintest way, of the new reality he’ll soon be joining. Bunk and booey to my neurotransmitter-as-only-real-data-channel thinking friends, I know. My dear friends of the ‘it’s either working or it aint’ school of thinking will know dad’s behavior to be nothing more than a failing system of data transmission. In short: a body breaking down. Yeah, I’d agree with that. But I’m going to take that other path from here on, the one that knows we are more than an organic machine, and that there are countless energies we are a part of that no meter or machine can measure. I know that ‘real’ can be real without tests, trials and placebos. My dad’s death is certainly a real experience to him, and that, ultimately serves as the Truth here and now. Quantifying or qualifying his Truth does seem rather silly, don’t you think? A moot point really.

One day I do hope we’ll have the opportunity for a good laugh together about it all as we re-evaluate our Earthly lessons and kick back for a little respite after our exhausting lives on this tricky planet. Cuz I believe this is one tough-assed school. And I believe we’ve come here to work on things. We’ve found the right groupings and scenarios and countries, bodies, talents and occupations – the whole shebang – so that we might most effectively learn what it is we need to in order to become better. Dare I say, more Godlike. When I put it like that, kinda makes me laugh. I mean man, this planet don’t exactly seem like a good choice for a mission like that, huh? Pretty crappy place sometimes. Sure aint easy, even when you do have it easy. Plus there is this existential uncertainty which thrums through us our whole lives, nagging at us to try and answer it if we dare listen. But thankfully, there are lots of diversions here to muffle its drone. Yeah, you can easily go through your life and never give a shit about anything but just getting by. The challenge, however, is to care, and to widen your sphere of caring and loving influence. And we all know that is much, much easier said than done. The distractions are so very tempting – and easy. But a life spent mostly on the path of love and caring is one spent pretty well, at least I think so. Certainly more of a step ahead than not. And my dad has made many steps forward here. He’s also had to carry some burdens that I wish he hadn’t. He grew up knowing he was loved, but he grew up in a culture where love was not expressed. A handshake from dad before he went off to the Army. Nurses instead of mother. Boarding school from a young age. I’m glad that now, in these final, restful moments on the couch that I can tell him I love him.

Because if he’s going soon, all he really needs to know is that we love him. The rest will sort itself out on the other side.

Out, Away, Over

November 28, 2013 Posted in An Ongoing Journal..., Low Vision Life, Mommy Mind2 Comments

A lot has happened in the past twenty-four hours. Just yesterday Elihu and I awoke to a cold house. I knew we were approaching the witching hour, and had begun to keep the house at a brisk fifty-five degrees in order to stall the inevitable. I’d done my paperwork and made the calls to receive our long-anticipated annual heating oil grant, so now it was just a waiting game. My heart positively sank to think I might have to live out the holiday weekend in a cold house. I had lots to do, and doing it in forty degrees did not appeal. Thankfully, I learned I’d been relieved of this fate when we returned home from school yesterday to find footprints in the snow and a respectable seventeen inches of oil in our tank. You know that feeling when your paycheck first hits your checking account? That blissful moment of security, of hope… of possibility? That’s exactly what I felt when I retrieved the oil-soaked yardstick from the tank. To know that we’ll be warm for the next couple of months gives me the greatest relief. This oil is a gift I fully appreciate. I no longer take something as basic as this for granted – the way I did in my previous life. In my fine, suburban Northshore home, going without heat never once appeared on my radar – not even close. But here, now, it’s a real concern. There’s no pipe that magically delivers fuel into your home. The thermostat no longer hovers endlessly, mindlessly, in the mid seventies all winter long. (I remember my mother telling me as a youngster to go and put a sweater on if I was cold. Now, my kid tells me the same thing when I begin to complain about the chill inside our house!) There are consequences here in the country for not properly budgeting your resources. And even while I admire the replenished level in my tank, I do that know I’ll have to start saving for my next tank soon. But this does give me a week or two of respite. And that’s pretty big. Definitely something I’m thankful for.

And Elihu is gone now too. No longer a bittersweet event, instead it’s a time I savor and use wisely. Like my fuel oil, it too won’t last, so I must use it as efficiently as possible. Last night I allowed myself some veg time, as I waited for his father to call and let me know he’d arrived ok in Florida. With about two hours to kill, I grazed my way through the leftovers in the fridge as the comedy channel played. I surfed the internet, seeking out all the information I could on the culture of Orlando. With Steven Colbert in the background, I perused Wikipedia articles and poured over images. It struck me that this place was very sci-fi like in its growth. It reminded me of the bizarre city of Benidorm, Spain. Once a nothing little coastal town, it sprung up virtually overnight, growing into a cluster of vertical glass hotels and artificially created tropical gardens. I first saw the place when I awoke from a nap in the backseat of our car. It was nighttime, and we were driving north to Barcelona. I thought I was dreaming at first; in the middle of a vast, black nothingness arose the futuristic vision of a gleaming city. When I figured out that I wasn’t still dreaming I awoke the others and alerted the driver. This we had to see. Glad we did – it was probably the most surreal place I’ve ever visited. Nothing natural about it. No evidence (that we could see) of any history or organic pattern of growth. This was a cancer on the land that had struck quickly. It strikes me that Orlando is much the same. First came the early settlers and later the orange farm magnates (Dr. Phillip Phillips, crazy!) and finally giant tourism-based corporations (Walt and friends) and then boom! – from the 1980s til now the place has exploded. It’s a manufactured destination, like its Spanish cousin. And I suppose there’s nothing wrong with that. And if one goes there with that in mind, and one visits not for the indigenous, historical characteristics, but instead goes with the goal of experiencing a fantastically fabricated, commercial smorgasbord, then I suppose it’s a fine place to visit. I’m not a fan of the whole Disney/theme park thing in general, but I readily cop to enjoying the luxury of a five-star hotel. I remember well what it was to travel, stay and dine in top-tier luxury. And no matter one’s ethics or values, I believe few humans would ever disdain such an experience. And that’s likely what Orlando is built upon. Transient luxury and faux finery are better than none at all, I suppose.

Elihu called around eleven. He was beyond thrilled to finally be in Florida. (A couple of hours earlier in the Albany airport he’d said to me “I think I’ve been to all fifty states now.” And yes, after a seven thousand mile tour with his dad this past summer, plus all of his previous travels, I agreed he’d come close. “How about Hawaii?” I asked. “No” he answered, “that doesn’t count; because Hawaii is its own country”. I assured him it was not, that it was the fiftieth state. Impressed by this fact, he added it to the list of places he aspired to visit, coming in right behind New Zealand and Australia.) He was beside himself with anticipation being in a place where it was not only warm (when just this afternoon he’d been lobbing snowballs at me) but where there was also an abundance of wildlife. His father had told us that the place was “sick with water birds”, so he was stoked. I’d even packed Elihu our favorite pair of binoculars – this was an opportunity no self-respecting birder could miss. And dad had reported seeing a golden-colored tree frog in his friend’s pool. This trip promised some serious stuff for a nature-loving young man.

He and his father had called me from their table at a restaurant in the Orlando airport. It was situated inside a giant atrium with both an enormous palm tree and a Christmas tree bedecked with lights and holiday decorations. The height of the ceiling impressed him as did the panoramic view of the airport beyond. It being nighttime, he could finally see outside – and was aware of distance in a way that he cannot perceive at all by day’s light. He told me he could see lights twinkling in all directions. “The ceiling here is like nine stories tall and I can see outside for miles!” he told me excitedly. My heart rose in my chest at his joy. How happy I was that he got it; that he was fully getting his sense of place. I was also very thankful that his first vision of this place was at night. I would never have told him that, as it would bring attention to the vision thing, and likely turn our conversation sour. But this was all I could think as he continued to tell me with great, childish excitement, about all the new and wonderful things he was seeing for the first time. I was so grateful for the dark of night, for the sparkling lights and the promise of a magical stay to come. ‘Enjoy this my dearest son’, I thought to myself, ‘because like your most fantastic dreams, before long this too will be nothing but a memory.’

Elihu safely and happily off in his own world for the next few days, I went next door to see how life had been going for mom and dad. Andrew had spent much of the past week drunk, and dad had just had a particularly bad episode. Following a long and challenging night, mom had finally gotten to bed after four a.m. With these two variables in the mix, plus a visit that needed to be made to housebound friend Martha, we agreed that our Thanksgiving would not be a sit down dinner at a given time, but rather we’d adjust ourselves to things as they happened. Mom agreed that she’d still make all the food (this gives her joy and purpose, believe me) and she’d just set it out for us to eat as we showed up. I’m still not sure how this will all happen; a trip to Martha’s means that dad is left alone. If Andrew and I go along as well, that is. Maybe I’ll stay back with dad. Not sure. Might have to bring some Scarlatti along with me! Hm. I begin to think that this might be a nice little opportunity to spend some time alone with dad – without others (namely mom) around. Mom tends to speak for him more and more… taking away what little voice he has left. He’s much more himself when she’s not around (no mystery there – she’s been hen-pecking at him for fifty years!) Yeeks, such a relationship they have. Symbiotic, I guess. They each seem to stoke the other in ways that work. Not saying it’s healthy, but it’s been going for decades. On some levels it obviously works for them. Who am I to judge? Happy or not, they are deeply linked and dependant upon each other. I guess it’s getting scarier for mom these days, and that’s upping her need to control things. She’s not from a generation that expresses themselves well – or at all – so that makes things all the more difficult at this stage of their lives. At least she’s giving in to it slowly and is finally accepting help (been pushing the in-home respite caregiver thing well over a year and only this week has she had someone to the house!!). Yeah, tomorrow will be a strange day for all of us Conants.

Fareed’s family is beginning to turn a corner too. Nelly, I understand, is now living with Fareed and his new wife (in our old home – and in the very room we’d once planned for his folks to live in as they aged. Same plan, different spouse.) She’s receiving some in-home care too. As both she and Martha have begun to have in-home care, my own mother is finally coming around to the idea that this is a good solution. Far cheaper than a full-on nursing home. And, though no one likes to talk about it, I added today that it increases the likelihood of Nelly or dad dying at home. I know neither of us – my ex’s family nor mine – have ever spoken in such specific language about this final stage, but at the very least I am confident that all four of them would hope to die at home rather than at an old folks’ home. Imagine them comfy at home, with a nurse to visit and make sure they’re taken care of, family around to visit and keep them connected… until that final time when they just become too tired to stay around much longer…. could one wish for a better end?

Most of us contemporary American types aren’t good at talking or thinking about death. But it’s a-comin no matter. So I’m readying myself as best I can. Almost envy my peers who had no warning. Whose parents went quickly, tidily. Yeah, right. That’s easy for me to say. I don’t suppose any one way of losing a parent is easier than any other. No easy way to see this through, no matter what happens. But it will happen. And for those folks who are living through a lingering, meandering process, it can give those final holidays and landmarks a surreal and almost sickeningly poignant feel… knowing damn well this is the last time, knowing damn well that by Spring he either won’t know you any more… or he’ll be gone. Or maybe he’ll live another ten years knowing no one. Maybe. Anyway, you’re getting there. And you look back on last year and realize that it was your last, real Thanksgiving. Wow. It’s over. And yet, somehow, it’s not. Not yet. Not quite. A strange netherworld in which to live.

Being out of a resource, being far from home, or seeing a long-standing tradition come to a close are all things that get one to thinking. Thinking about the things we cherish, the things we take for granted, and the very transient nature of life. I know it’s hard to convince a teenager or a twenty-something that life is fleeting, but that’s ok. You’re not supposed to think that way when you’re young. You shouldn’t be thinking like that, or at least I don’t think so. Instead, you should be living those moments, feeling what it is to be in that experience, smack in the middle of your life. It’s that first half of life that gives you the standards by which you make your later-in-life observations (you know, like the ones I’m making here!). You can’t truly realize how precious things are until you know different. I do realize that life doesn’t always work like this for everyone, but it seems the usual course for most. Me, I find myself looking back and marveling over the routines I’d always taken for granted as the ordinary landscape of my life. And actually, I’m finding a lot of extraordinary in my past that I hadn’t quite noticed before. Never know what ya got til it’s gone… or til it’s almost gone, I should say.

Tonite I’m thinking to myself how blessed is the ordinary. How thankful I am for all of the ordinary I’ve ever known. I may go without for a time, or I may go for a time knowing true abundance, but either way, I must find as much contentment as I can with whatever it is that I have. If things aren’t going so well at present, at least I know that I have a future to look forward to. (Sometimes it’s nice to know that things keep changing.) Happily, I can say that in this moment, on this day, I’m thankful to have just enough.

Sad Planet

November 15, 2013 Posted in An Ongoing Journal...2 Comments

What a bittersweet and frustrating planet this is to live upon. Please know that I do realize I don’t by have it particularly hard by the greater standards of the world, yet in just the past few hours I’ve come to feel at the absolute end of my patience with this stupid place (or, if not out of patience, perhaps one might say ‘beyond disillusioned’ with this silly existence.) Just what the hell kind of joke is this world?? I’m done with trying to understand, trying to justify, trying to learn from it all. I’m fucking done. And the scary thing is, I have hardly begun the real adventure. I may not like the jowly face that stares back at me from reverse-camera skype images, I may not be able to casually drop a couple of dress sizes without much effort anymore, and simply tossing off situps or running a half mile may not be such mindlessly easy activities as I remember them to be…. But BAH! This sort of stuff is nothing! These things, however surprising or abhorrent they may have seemed to me at first, they don’t begin to approach the level of personal challenges that lay yet ahead. Losing one’s looks, yeah, that sucks. Losing one’s physical prowess, hard on the ego. But losing one’s parents – and then having it happen ever so slowly – I think that sucks a whole lot more. And experiencing it all with that quintessential, ‘keep-up-the-appearances-at-any-cost’ vibe of last century’s generation is just plain exhausting.

Things in our family changed tonight. I’ve been around for half a century, and during that time I’ve only seen my mother cry twice. Tonight was one of them. And I can’t even say she was crying really, but her eyes filled with moisture, and for the first time I can recall, I could actually feel a breach in her defenses. For just an instant I saw her, as a woman, as a wife, as a person about to be left terribly, irreversibly alone. It was the first time I’d seen any honest emotion in my mother in perhaps decades. Well, emotion other than outrage or anger (granted, she laughs sometimes too). As any student of spiritual life may recognize, anger (outrage being another manifestation of the same) is simply an expression of fear. While I myself had learned of that years ago, I don’t think it truly sank in for me until I came to live here, and was forced to re-examine my own personal habits and history in the wake of my ‘great life change’. I too had felt a good amount of rage at the world throughout my life – at my partner, at my circumstances, at many things – and had never thought twice about expressing it. In other words, I expressed myself just fine (and often loudly), and without much editing. And I never stopped to wonder at the origin of such rage. I guess it never struck me as something that needed any examination. Yeah, I’d read about it before, but until I put it into the context of my own personal experiences, I didn’t really get that rage came from fear. And being afraid is, well, understandable. This is one goddam scary place to live. Yeah, I can say that I sympathize with those who live in fear. In fact, I think you’d have to be fairly dull-witted not to be impressed with the opportunities we have here for some truly fearful situations. Having said that, I’m usually the first to be chill in the face of true stress; from surviving a broken neck as well as a handful of other life-heavy episodes, I’ve fared pretty well in the face of crap. Doesn’t mean I welcome any more of it though. And it sure doesn’t mean that I’m still not pretty goddam angry about things.

My mother too has never ruminated over the reasons for her emotions (that I know). Thankfully, the study of one’s own psyche and emotional world had become a practical and accepted life skill by my generation’s coming of age, but regrettably, my parents never had such tools on their side. Hardly. Instead, a stoic attitude, stiff upper lip and general disdain for everyone else kept a person moving successfully forward in life (glaring wounds and flagrant injustices be damned and ignored; keep your eyes looking ahead, pay no mind to the nasty reality…) And so, nearing her eighth decade here, my mother still does a yeoman’s job of keeping it all inside and pretending nothing’s wrong. That it’s all business as usual. (Btw way, I borrow ‘yeoman’ from my mother. A great word; her generation’s gift to me.) So I can’t blame her for any of this. Of the crazy, ‘it’ll be fine tomorrow’ kind of talk. It’s a strange new world now, because my mother still seems to me like the keeper of all answers, the ultimate knower-of-all-things, and in spite of more and more evidence that shows otherwise (in no way downplaying the immense amount of shit she really does know!), I just can’t seem to get it. She’s the sane one in the house, the one who keeps it together. The one who does things right (or as my ex would have half-joked she’s ‘white and right’), and she’s the one who lets everyone else know that she knows. Ok, so maybe she does that with a 1950’s vintage passive-aggressive sort of flair, but hey, at least everyone knows what’s up. Well, so that’s the way it’s been for the fifty years I’ve known her. But now, in quick, minute little steps, the relationship seems to be changing. The power dynamic is shifting, just a bit. It’s not that I need or want to be right, or on top of things, or taking charge, no. I don’t need more stuff. It’s challenge enough just trying to keep up with a simple life. But mom cannot do it all herself, and as I began to interject myself into the equation tonight, lifting dad off the floor, moving furniture to barricade him safely into his bed, I realized things had changed.

Tonight the situation just kinda forced our hands. When I arrived, dad was on his knees by the guest bed, too weak to sit, too weak to pull himself up. (That he had wandered into the guest bedroom and not his own presents a new level of concern.) My mother, bent over with arthritis, was not able to move him. My brother had thankfully arrived to assist, but by the time they’d been at it a while and I had gotten there, nothing was changed. Now I myself have very little core strength these days, but I was somehow able to lift dad and get him back onto the bed. From there I got him into a lying position, but he protested and for nearly an hour made efforts to sit back up – only with no ability to follow through and even walk across the room. I’m not sure how mom would have played it had I not arrived. She talked to dad tonight as if he were as well-reasoned as ever. In fact, he is markedly changed from even a few days ago. His talk was absolutely surreal, plus he was distressed, and even sometimes uncharacteristically angry, at being confined to his bed. Logic was of no gain; he had no understanding at all of where he was, or why he was there at all. He did still know us, and he did still formulate sentences, however this time, and for the first time, they began to more closely approximate mere gibberish. At one point I said “dad, what’s your favorite Scarlatti?” and without missing a beat he replied “D major”. Ah. Mom and I smiled at each other. I made a mental note to bring it up to speed again… maybe play it for him some time… Elihu and dad have had this made-up, Eastern European-sounding language in which the two speak for sometimes great lengths of time – they use gestures, crazy facial expressions and in general, sound quite plausible. And funny. I nodded at Elihu to give it a try as the four of us sat there in a dazed lull following an episode of moving dad from floor to bed. Elihu leaned in, and said something to dad. And wouldn’t ya know, dad gave it right back to him. All four of us laughed! It was the most remarkable thing – and such sweet relief to laugh like that! Elihu gave it another go, and we had another couple rounds of solid laughs. Dad couldn’t keep it going, but the thing was, he still got there. He still had that thing. Dad has always had a talent for impressions, for quirky, off-the-beaten-path humor. And in spite of how much of his life is lost to him, a spark of this remains burning. Hope, in one tiny form.

We managed to get dad lying down, tucked tightly into his covers, and I enforced the side of the bed with antique ladder backed chairs and a large hope chest. We fed him some of that crappy, over-sweet nutritional drink that old folks use to keep up their calorie intake, then we gave him half of a sleeping pill. As I sat with mom on the bed I began to pick up on a change in her spirit. I sensed the faintest beginnings of defeat. So I put my arm around her – something that just never happens in this house – and felt that it might have helped a little bit. Not a lot though. There’s just too much heartbreak here to make much of a dent in. But I told her I loved her, and that I had no idea how hard this was for her. Elihu leaned in to kiss grandpa and tell him how much he loved him. And my father, for as feeble and absent as he’s become, he simply beamed at his grandson. His eyes sparkled, and he told Elihu how very much he loved him too. This, I thought, is the happy ending. No matter what may happen, this is it.

As we were walking through the garage to our car I heard Elihu sniffling. And then I realized he was crying. Really crying. I didn’t offer a hug, or contact of any kind; it just didn’t seem the time. He needed some space to digest what was happening. Man, it just didn’t seem fair. He’s a young kid, and his grandpa such an old man. I really wish they’d had more time together. Crap. When we got in the car I said “well, you’ve had ten wonderful years together. We can be thankful for that.” We rode home in silence.

Had a nice supper, enjoyed some laughs, and we spent a moment just sitting on the couch, arms around each other, saying nothing. Mom called to say that dad had fallen right out with the sleeping pill. Mom’s life has always been fueled by agendas, by plans, goals… and now she finds herself zapped of her usual purpose and forward momentum. I can hear a shift in her voice. She sounds smaller somehow. Like she’s finally giving in. I hear it, and I wish I could just tell her that she doesn’t need to give up or give in – she just needs to surrender some things…. and other things will fill those places one day. I want to tell her this, but of course, I don’t. But I do tell her that I love her, and that I’ll call her in the morning.

I find relief in knowing that my son’s asleep now, and so is my father. But like me, I’m guessing my mother is still up late, not quite knowing what it is she should be doing. Feeling loose in the world, alone, the line to her anchor being cut away one thread at a time while she looks on, helpless…. Like me, I’ll bet she’s thinking this is all one great big let-down. All of this life, and then this is the crappy way it has to end? But she’ll put on a good show of it come morning, I know. And she’ll keep it up for a while longer yet. And me, I’ll make the best of it too. I’ll play this game as well as I’m able, and I’ll make an effort to keep humor and love alive in my small world. For the most part I think I’ll go with the half-full attitude. But for the moment, I can honestly say that I’m not thrilled to be here at all.

Tonight, this seems like a very sad planet indeed.

The Hillhouse

The Journey of a Mother and Son

Tag: alzheimers