alzheimers – Page 2 – The Hillhouse

Cozy Home For Now

November 13, 2013 Posted in Farm Life, Mommy Mind2 Comments

Been a sweet evening here. Elihu, in spite of now talking like Daffy Duck with his newly-installed palate expander, has been giving freely of ‘I love you, Mommy’s and other lovely expressions of affection and warmth all afternoon and into the evening. As I had my hands busy with making our first loaf of true, unbleached whole wheat flour bread, I’d sent him out to collect the eggs and shut in the birds. There was one bird still staying close to Mama’s apron strings: Julius Caesar, while having been returned to the flock in good health after living in our kitchen for eight days (post an accidental eight day fast/prison term underneath an overturned milk crate), has discovered his ranking among roosters dropped from the top to the bottom of the very-real pecking order. A survivor, he stays acres apart from them all day so as to avoid further injury, and likely eats very little. I took him in today, as I heard him pecking at the door for some respite. He was smart enough to know which door offered the warmth and home-made food, and that was enough for me. I was ‘awwwing’ all over him like he was a lil baby. (Elihu wasn’t so sentimental or soft as I.) Made him a protein-laden supper, gave him time to get warm, then had Elihu personally take him out and place him on a safe spot on the roosting bars. Gotta keep him safe, relatively happy – and fattened up a tad more if we’re to do him in next week. !!

After Elihu came back inside, he was clapping his hands together and remarking how bitingly cold it had all of a sudden become. And after pausing to warm his hands over the electric heater, he turned to me and said, ” you know, I really love our home. Another pause. Some quiet. And then… ‘It really is home, isn’t it? A bit more pause… It’s just such a cozy cottage. And I love living here. ” Then he walked off and left me alone in the kitchen, kneading bread, smiling the smile of a mother content. A bath followed, a making of his bed with fresh sheets, (all of this progress interspersed with short references to Cole Porter’s “What A Nice Municipal Park”, a ‘B’ side if ever there were one) a call to grandma which was lighthearted and full of some promising news (yay! a nurse that mom approves of is coming by to do a little look-see!!! Soon dad will have a little TLC from an honest-to-goodness caregiver!!! Now we may all breathe out….) We recounted a story of our recent visit with a childhood classmate of mine and her family in town for a job interview, we told of our lovely day, and how the boys all enjoyed hanging with each other (in spite of a dramatic and comedic end to our visit), and caught grandma up on a variety of things. While she may not have thought he sounded drunk while talking thru his palate expander, his Grandpa Riaz asked if Scotch or Vodka was his poison….

I look forward to playing piano for a new eurythmist soon and will be slowly adding more music to the binder. Of course there’s the requisite Christmas music to re-acquaint myself with again. All good. No worries. Finally, two months in and I think I have the hang of my routine. Kinda. There’s a lot of coming and going in each day. Lots going on. Out of the driveway, in the driveway, each time with my eyes drinking in the lovely woods and fields around us. The views that will soon change. So when my kid tells me with joy that this is his home, and that it feels comforting to be here… he reminds me of how lucky we are… and I am right there with him. Yeah, we’re lucky.

And true, it won’t always be thus. Daily we’re steeling our hearts for those first, shocking events in the field just beyond. And then I suppose as a result, we’re clinging even more tightly to what it is that we love in our own, very modest home. We’ll soon have a bit less privacy, a bit less nature, a bit less peace, less true darkness at night. But we gotta keep reminding ourselves that we’re still lucky, no matter what. And since we can’t fight it, we may as well go forth in love and happy expectation. One never knows…. do one?

Here, Not Here

November 10, 2013November 10, 2013 Posted in An Ongoing Journal..., Farm Life, Mommy Mind2 Comments

There’s this nagging feeling I can’t get rid of in my stomach. I’m lying in bed, trying to sleep without help from a pill. It’s just not working. So I try to go into the dread just a bit to see what’s at the core of it. Maybe if I can name it I can quiet it down – at least for now – and finally get some sleep. What is it? I wonder… Is it dad? Yes, that’s part of it. Is it the neighbors we ran into tonight? Her girls were just the tiniest things when we moved here, now the eldest daughter talks with confidence about certain far away colleges, and a career in marine biology… Is it my own son, with his feet growing big and his legs getting hairier? Yes, it’s all of these. Each one stirs a familiar tugging inside, but I know that there is one that looms larger than the others tonight. And finally I can’t stand it. I forsake that perfect toasty nest I’d at last made in the covers, I rise up to my knees, and I look out of the window above my bed. I see a serene picture of our garage and chicken coop, lit gently from within by one red heating bulb. Beyond it, I see only blackness. The sort of scene that reminds one of a tomten fairy tale; a quiet, timeless farm carved out of the endless woods, a small homestead made cozy by its simplicity and isolation. On nights when the moon is full, it casts a deeper charm on the outbuildings, and they seem to glow in contrast to the forest beyond. But this nightscape is not to be much longer, I may not even see it like this for another full moon. Like my disappearing father, like my own tiny child who lives only in memory now, and like all the other inevitable changes of my private universe, a silent transition is already underway. Soon the darkness will be gone forever. Before long the lights of a house will pierce our dark and quiet corner of the world. Nothing, it appears, is sacred. Nor is anything forever. And I just can’t get used to it.

Once, at the home of a piano student, I happened on a simple children’s book that was laying out. In a few minutes I’d read the whole thing, and by the last line I found myself in tears. I’d thought this same thing many time, but had never dared to give expression to it. It was about all the ‘last times’ of childhood. How one never knows if this time will be the last. The last time a mother can ever pick up her child, the last time he’ll call her mommy, the last time she’ll read her child a bedtime story… there are a myriad of lasts, and yet one can never know for certain which moments they are. I think now of my father. Tonight mom told me that he hasn’t been downstairs since my visit a couple of days ago. We’d had a bit of a heated exchange on the phone the other night as I continued to lobby for some in-home nursing help. She’d hung up on me. Although she still believes that dad will manage to march downstairs again tomorrow for breakfast, business as usual, I myself don’t think so. Instead, the very real possibility occurs to me that we have finally experienced a last time here. The last time dad ever came downstairs. The last time. I arrive at that final, looming idea: this may well be where the true last time will happen. Right there, in the bedroom which looks out into the same woods as mine, in the bedroom with years of cat hair embedded in every upholstered surface, in the bedroom with photos of Andrew and me as babies still sit displayed on the bureau after five decades, there, on the right side of the bed – on my father’s side of the bed – that is where he will experience his own last time. That is, very likely, where my father will die.

I’m a sentimental person, and that sort of leaning will of course give this awareness of finality even more charge. I know that I’m probably dwelling more deeply on these passages than some folks would. (At the same time, I think any human can easily understand ambivalence around change.) But that’s the only way I can live through it all. I need to name it, to face it and to savor it before I can let it go. I need to bear active witness, I need to engrave that memory into my system, I need to take it with me as best I can. To preserve the essence of what this thing that I loved felt like. It’s a challenge for me to be simply pragmatic about it, and in fact, I really can’t. I can’t understand change without feeling a burning nostalgia. Sometimes in order to lend perspective and maybe take some of the sting out of it, I try to imagine a time just a couple of hundred years earlier, and I picture the change that’s taken place long before the world came to look as it does now. I imagine the Native Americans of Saratoga Lake, watching as their sacred sites were defiled and built-up by these white people from somewhere else… then I imagine the large parcels of unbuilt land throughout town, the disappointment of certain homeowners when the space around them appeared to shrink as investors continued to build upon the remaining vacant quadrants of land. I imagine all of the tiny disappointments, all of the hearts that had to acquiesce with deep regret the bittersweet changes around them.

I see the business people making these visible and profound changes in our physical environment. And I understand their detachment around such things too. They are merely dealing with a product and a service. (Be damned the wake left behind in its many forms, all of us must simply learn to live with resulting change!) “You can’t stop progress” people like to say. The implication is that progress is good. That progress is desired. Yeah, well, cancer is progress. Nuff said.

I feel a little better now, at least a little more sleepy. All I can do is be as zen as I can about the changes coming; I will savor these final nights of our deep, black forest, I will drink in all the tiny familiarities of my dad while they’re here, I’ll enjoy this magical time of a ten year old boy’s life, and I’ll be present and grateful for every last bit of it all. So that by the time today becomes yesterday, while it won’t be here to look upon anymore in my physical world, it will still exist somewhere. It will be here, cherished and alive, forever in my heart.

That Old House

September 16, 2013 Posted in An Ongoing Journal...Leave a comment

Feels like I’m banging my head against a wall. Just when will my mother stop making excuses, and when will she stop making this into a bigger deal than it is? Just what will it take for her to get one lousy in-home nurse to come out and do an interview? Make one call, make one appointment. Then sit back and wait for the person to come to her. Seriously, just one phone call. But no. She can’t seem to get this done. There’s got to be more going on here than meets the eye. I suppose it might be hard for me to give way too if I were in her position – after all, I do like my personal power. I like having control over my little world. Yeah, I guess I understand. Seems I’m just a chip off the old block I guess. Man.

Had felt there was some progress being made, but now I’m not so sure. Although my mom’s been adamantly denying her need for outside help with the household and with my dad’s care for the past year, she’s recently begun to acquiesce. And I felt some relief at this; it seemed we would finally make some progress. But it doesn’t seem so from my vantage point in this moment. She seems a bit stuck. Not sure why, exactly. I really don’t know what’s in my mom’s head. She and I might talk for hours about things that need to be done in my home and what project is next on the list, but at the end of it all, we don’t talk about her own future in any real detail, her own plans or expectations for the near future. We talk about wills, yes, and how things will work after she and dad are gone, how Andrew will be provided for and our property divided, but we don’t much discuss that delicate nether world that comes in between now and then. I have no idea what her personal hopes are for her future. I just don’t know what’s going on inside her head. For we have never, ever been a family that talked about such things. It’s probably at the root of the reason my marriage failed; I didn’t address head-on issues that I knew were brewing under the surface. Yeah, the Conants are really really good at acting like things are just fine. Does my mother fear my father dying? Does she fear him moving to a nursing home? Might his death actually give her relief? Does she wish for dad’s own relief? Or would she experience relief if he simply no longer lived in the house with her? Or does the prospect of him moving out frighten her? Does she envision a solo, late-in-life travel chapter? Does she secretly wish she had more freedom from her job as caregiver so that she might do things, go places?

Honestly, I don’t think she thinks any of these things, but I can never be sure. I personally suspect she’s comfortable with things as they are. With her doing everything, with dad at home, with things getting just the smallest bit more challenging as time goes by, in increments that she can still stay on top of. Regardless of my impressions, I won’t leave this conversation unspoken – I certainly intend to ask her about her true feelings, but not right now. Recently, she’s been quite upset with me. She feels I’m on a jag to get her to move faster than a pace at which she’s comfortable. (When I’d move a bit too fast as we tackled the attic recently she’d cry out “I’m not dead yet!” or “You can do that after I’m gone!” The martyr meter was peaking to be sure.) My God. It’s kinda like dealing with a hoarder. Things go at a snail’s pace. Can we please get moving here? She understands this is a conversation started a few years ago, but only now is she beginning to even accept that she needs to do something about it. I’m trying to get her to make an action plan. To consider the landscape of the next few years. Look, I know it’s not as easy as I make it out to be. These are the final years of her life we’re talking about here, and although not a one of us will ever say as much, we all know it. Can’t be easy hearing a conversation that involves the end of your partner’s life – and ultimately, the end of yours, too.

I will give her props for tackling the attic a little while back. She went ahead and had a roll-off container delivered, and even paid for a few extra days as we sat on stools and waded thru stuff that had remained in storage above the garage for the past 25 years since they moved here from Chicago. It was a good ninety degrees in that attic, and a good ninety percent of the stuff there was covered in cat pee which had been reduced through heat and time to a sticky amber goo…. I tried not to find fault with her housekeeping – or rather her keeping of five cats – but the pee was so prevalent and so vile that I found myself getting slightly angered as I worked. I had to tell myself it was no one’s fault, this languishing, forgotten, smelly mess… I reminded myself that life gets busy, things out of sight become out of mind, and cats, well, they pee on stuff that’s outdoors and covered in dust. How can the cats possibly tell that these are decades-old family treasures? Hell – how can we even tell? I talked myself out of a bad mood more than a handful of times, and found that the heat and stink were worth it when we’d unearth something with a story or a memory. I knew it was good for mom to do this herself, to see these things again. No one would ever dare say such a thing out loud, but it was a form of closure. This was a process that was enabling mom to go forward from here with some renewed energy. I know personally a good bit about taking stock, assessing the inventory of a house and how invigorating it is to know just what you have and where it all is. It is empowering. I kept this forward in my mind as I toiled in the heat, in order to be as present as I could for mom; to witness her things, her life, her keepsakes, her stories and rememberings. This was important stuff. I know I was a bit crabby, and I hope I didn’t ruin the whole experience with my mood. And at least I took pictures. So we’ve still got those. Plus some nice little mementos. That should help.

It was my most recent visit to the house that pushed me over the edge. As I sat idle for a few moments while waiting for dad to sit up on the side of the bed so he could stand, then finally let me assist him in getting on his robe (which he asked me about three consecutive times each less than a minute apart. Talk about short-term memory loss!), I began to look around. There was a layer of dust and cat hair covering every single surface within my gaze. Truly, every last item and inch of space was coated in grime and grit. It’s no wonder my kid needs two benadryl just to make a thirty minute visit! Just like I had in the attic, I began to get angry. Why the hell couldn’t my mom just ‘break down’ and call someone to help her clean? But more importantly – how was is she didn’t even notice it? I do understand how it’s hard to be objective about things you’re around every day, but come on. At the very fucking least think of your grandson! Wouldn’t you like him to be able to visit for more than fifteen minutes – and without having to leave in an asthmatic episode every time? My mother seems to have all of her wits and discretionary powers fully on board – except when it comes to the filth in which she and dad now live. And I don’t get it… or do I? Maybe her pride won’t let her fully accept that things are finally beyond her ability to fix. Yeah, I guess that’s got to be a crappy and powerless way to feel. If she even realizes she’s feeling it. Her generation winces at such self-inventory. Part of the problem as well, I think….

It began to strike me as selfish that she should realize this and yet do nothing. I thought of her ‘to do’ pile on the desk downstairs; the desk she tells me she hasn’t managed to sit down at all week, but which is overrun with things she must get to. Her ‘urgent’ business? To wade through the dozens of appeals for money from native american groups, animal shelters and campaigns to fix cleft palates for children in far-away countries…. Thank-you gifts from past donations litter the office; silly miniature dream-catchers, cat magnets, calendars and more useless stuff that stays where it is because of course to simply throw it all out would be wasteful. ! It’s all crap that nobody has room for, let alone a person with almost eighty (sorry, seventy-eight) years of accumulation on her hands already. A foot-high stack of envelopes sits waiting for her attention, and she feels its pull. Yet somehow, arranging for a nurse come out and help out with dad for two hours a week doesn’t compete with the pile. Nor does calling a cleaning service. And while I’m capable of doing such things for her, she gets angry and frustrated should I bring it up. My hands are tied from helping. And if I begin to think about it much, I too get very upset.

Thankfully, with my son’s allergies, I don’t have to actually face this dilemma in person too often. Sadly, Elihu and I have long since given up the idea of coming over for regular, weekly dinners. Too much cat dander to battle with. And with school, homework, music lessons and life in general – all that plus dad’s late waking in the day (he’s usually just getting up as we’re having supper) it doesn’t always work out too well. Today, after Elihu’s first bass lesson we did pop over for a visit. Elihu sang to dad, and told him about the lesson, and the two banged out some fun rhythms on the counter together, but with little to say, homework yet to do and the allergies mounting, we were gone inside of fifteen minutes. I think back to just a year ago, when it might still have been possible for dad to get out for a visit. I think two years back, when he himself walked over to our house to say hello. And now he’s hard-pressed to get from the island to the couch. His spirit is recognizeable, and even more so when mom’s not around – but any real-world level of functioning I can now sadly recognize is gone. I feel the pall of regrets sneaking in on me, and I have to remind myself that I’ve always done what I could. Perhaps I could have done more, been a better daughter, lobbied harder to get him in the car and out into the world, but my own life has been full these past few years. So I try not to go there. Rather, I try to give dad our love and good cheer when we visit, and Elihu and I are both sensitive to our role as carriers of delight and entertainment. We haven’t much to share, but a new song or story from our week seems to lift dad’s spirits. Beyond that, I don’t think there’s much we can do. I think we’re doing the best we can, and it’s done with love. But still, it’s just so sad.

I remember when my parents built their new home. A post and beam, passive solar beauty of a house with hand-cut pegs joining massive, exposed timbers. They had a lofted living room long before two story great rooms were the rage. Filled with harpsichords, art, oriental rugs, plants, cats and guests, it was always a comfortable, earthy home to visit. There were post-concert parties in the summer, wood-stove warmed holidays in the winter. The front door has never once been used by a single guest, save a confused visitor or a Jehovah’s witness. Everyone had always come in through the garage and into the kitchen. For years it’s been a house well-lived in, but these days not so much. Thankfully the tv is on much of the time and does its job of keeping the airspace filled with an energy of some sort which downplays the emptiness. Without it the house rings with silence. Not even the Bob and Ray CDs or the recent harpsichord recordings of a colleague are listened to anymore. The technology of a boom box is beyond my father now, and when my mother comes home the tv becomes the soundtrack to the busyness of the kitchen. But it’s what works for them, and that’s what matters now. God bless Turner classics. Those old movies keep them comfortable. The movies remind them of a time in their lives in which they ceased to grow older. And who could blame them for insulating themselves like this against the coming changes? I can’t blame them for staying with what’s comfortable, and I can’t begrudge them for not trying to keep up with the rest of us.

I also can’t help but indulge in a moment of poignant reminiscing whenever I visit. I still think of this place as mom and dad’s new, post-retirement home… the place where they were to start their new life after Chicago… and in my heart it almost seems like only a couple of years ago. It’s hard to understand that this place isn’t mom and dad’s new house anymore. It’s hard to imagine all the life that’s transpired since then. And it’s hard to understand that my parents – as well as their beautiful home – are finally getting old.

The Other Shoe

August 8, 2013August 8, 2013 Posted in An Ongoing Journal..., Pics4 Comments

Thursday morning

We’re going to take dad to the hospital today as he’s been complaining of stomach pains for a few days now. While mom and I think it might be good old-fashioned constipation, and he’s been drinking more fluids to help things along, the pain hasn’t really gone away. Mom suspects all he needs is some hydration by way of an IV. That, and the overall stimulation that another atmosphere and new people might provide. I’m not so sure this will have a happy ending. Martha, the other matriarchal figure in our lives, is also in the hospital today. She awoke around four this morning because she was having difficulty breathing. Martha knows the drill well. She pushes the button on the pendant around her neck, calls her friends Doreen and Mike, and shortly an ambulance arrives. She’s been in the hospital – admitted through ER – many times over the past couple of years. Sometimes things appear dire, yet she always ends up returning to her large, historic farmhouse in Greenfield. And every time she enters the place, I pray she makes it home again. Above all things, Martha is a woman who must die in her house. And no matter how infirmed her state, it seems she always has the resolve to make sure that one day she will.

My father, on the other hand, might have a different story. If admitted, he might be considerably disoriented by an extended stay in the hospital. Mom’s hope is that he ends up staying for a few days. She’s even posited his going then to a rehab facility in town (Martha’s done that herself several times). But if he can be made well by a simple round of hydration, then why would he need to stay there? My suspicion is that mom isn’t even aware of her own secret wish to be relived of her care-taking duties, if only for a couple of days. I’ve been lobbying hard for a weekly visit from an private nurse, but mom continues to say ‘we’re not there yet’. ! A few days ago she began to acquiesce, and told me her intention was to call the office of the aging and schedule an in-home interview, yet every manner of obstacle has prevented her from doing so. She doesn’t work, dad doesn’t get up til way past noon. What on earth could be preventing her from calling, save her own, deeply-embedded fear of entering this next phase? This is all a sad new territory for sure, and it’s made even harder to navigate by virtue of my parents’ values and upbringing. They are not a generation that discusses their feelings. And my mother is definitely not one to accept help. This creates a challenging environment when it comes time to deal with these issues of aging. Man, if there’s one thing I’ve made good and clear to my own son, it’s that he should do what he needs to do when the time comes. If I don’t know who he is and I can’t wipe my own butt – then by all means ship me off. And honestly – you may think me morbid, I do not care – I am all in favor of assisted suicide (however loathe that term) if a person should face an irreversible, debilitating disease. It’s even my hope to be able to sock away enough money to have that be a viable option one day (one possible place is in Zurich, Switzerland. It’s legal there). After all, looking to my father and paternal grandmother, the genetic possibility for growing old with dementia is a potential reality for me. I cannot pretend it isn’t.

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Thursday, early evening

I’ve been at the hospital for much of the afternoon with mom and dad. The staff at Saratoga Hospital continues to impress me, and I’m so very grateful for their service today. Turns out dad just had a hernia. Not a big surprise, he had one on the other side years ago which he had fixed surgically. The doc massaged it back into place, and dad felt relief right away. He had a CT scan which showed some ‘white matter’ around his brain; the ER doc surmised that it may have been many ‘tiny strokes’, but mom and I wonder if it might not simply be evidence of his memory loss and the related diminishing brain volume. Either way, my feeling is that it doesn’t so much matter. In my eyes, it’s my father’s quality of life and comfort that is most important now. Little prevention can be done to stop the progress of what’s probably inevitable. Guarding against falls is another concern of mine now too (mom and dad have a tile floor, argh. Knock on wood). In the end, dad’s cheerful, as well as he can be, and most importantly, feeling better. And I for one am relieved that he didn’t need an overnight stay in the hospital. (Although mom might feel differently.)

Martha was just down the hall, and on the way out, we wheeled dad into her room for a visit. It only just occurred to me right now – that it might have been the last time that dad and Martha will ever see each other in person. On Martha’s 87th birthday, just a few weeks ago, it took dad nearly fifteen minutes just to get inside her house. It was a huge production. I think we all knew as we watched his incredibly slow progress to the car afterward, that this was probably his final visit to the farm. This whole chapter is bizarre and bittersweet. I realize I’m lucky to have both of my parents alive and doing relatively well. So many of my friends are in that stage of life when they’re losing theirs. I watch, I wait, I worry. Nothing to do but try to savor the time remaining. It’s tough for me, yes, but I think of my folks. My dad is actually blessed by his dementia; he can’t truly appreciate that his life is reaching its end. And my mother, while she herself is actually doing ok (in spite of bad arthritis and chronic back pain), I can’t help but I wonder if there’s not a low-grade worry present in her thoughts about how her own end will come. An occasional passive-aggressive aside will come out every now and then which betrays a darker side to her concerns. On the face of it however, she jokes, she makes light… There is a mildly haunting sense to this time in all of our lives, although none of us ever says as much. But even if we were to talk, what would we say? I’d like to think that Elihu and I will face these tough conversations with absolute honesty when the time comes, but I can’t know that for certain. I cannot begin to assume that I will behave any differently, or approach the last years of my life with any more candor than my folks. I just don’t know how it will feel to be in that situation. I’d like to think that I’ll be able to face it, but it’s been a bigger challenge than I’d thought just turning fifty!

For now, I cherish the little things that have been so familiar to me all of my life. That certain, charming way my father has of laughing. The way my mother always shows concern, the way she always takes care of things, and makes me feel in the end like everything will always be alright. I can’t grasp in this moment, today, that one day they will be gone. And as frustrated as they can make me, they are my only parents, and I love them so. Every remaining moment is important, because you never truly know when the other shoe will finally fall to the ground.

I am a fan of Saratoga Hospital. The staff there have all been so kind and gracious.

Dad was in good spirits all afternoon.

There’s his gallbladder. All looks just fine.

Now we’re in Martha’s room for a visit. Note how she raises her hand for emphasis as she speaks. She is still in control! And she remembers the name of every last person who comes into her room – not only that, but she remembers where they live! Martha always inquires where people are from. That’s signature Martha Carver. !

That profile I know so well.

You can see what a production it is to move dad.

Aaron was so kind and patient.

Mom needs a cane these days – she can’t walk far without it. Even so, she’s the rock in the duo so far.

So fragile looking.

What a relief. I asked mom if she needed help on the other end – getting him back inside the house – but she insisted she didn’t; she said it simply took a long time. I can’t help but wonder each time he leaves the house if this will be the last time he does. You just can’t ever know for sure.

Wait for It…

August 5, 2013August 5, 2013 Posted in An Ongoing Journal...Leave a comment

I mighta known that the woman who ‘reminded me of Queen Elizabeth’ in the previous post was not in fact, Marylou Whitney, as I had declared her to be. I chose to ignore the tiny voice that kept nagging this woman just doesn’t seem glamorous enough to be Marylou. And in addition to that hunch, this woman’s silhouette actually looked slightly familiar. The photo I had tried to enlarge showed instead Jane Wait, and son Charlie (president of the Adirondack Trust Company) sitting beside her. Jane was on the board of my father’s Festival of Baroque Music for years. I too was on the board with her. In fact, Jane Wait figured prominently In the summertime world of the Conants for over a decade. She did everything from pen checks to the Festival to help arrange tea and cookies for the intermission refreshments. When I was young, I didn’t see Jane in the larger, social scale of our town. She was just a kind, older woman who showed an interest in dad’s music.

Some memories, unrelated bits of the past come back to me… I remember attending a party at their lake house once, where I met actor John Houseman. I remember he wore a purple jumpsuit and kindly gave me an autograph. I remember learning that Mr. Wait had died in a fire in that house not many years after. I remember that Mrs. Wait also had a daughter my age with whom I got together a few times. I was never able to get into a groove with the girl, in spite of feeling as If I had given it my very best (and the distinct feeling that she had not met me half way). They had a summer house just a couple miles down our road. And I remember I once played piano for Caroline and her mother at their place; it was a blues tune of mine with a little hook in the chorus and a repeating, catchy riff. They insisted I didn’t write it, they both insisted that they’d heard it played before. As an adolescent girl I didn’t have the language to articulate that they were mistaking the form and style for the song itself. That this, being a blues song, shared a common structure and tonality with other blues songs. The moment even got a tiny bit confrontational. My emotional take-away is that Mrs. Wait just knew me to be lying. It changed the feeling in the air between us all. Hey – to be fair, they might not have thought about it another second, but for me, it was insulting, and it showed me I’d been diminished somewhat in their eyes. That afternoon may have been the last time the young Wait and I hung out. We were fundamentally different people.

And today, the Wait’s world and ours intersect in only the very tiniest of ways. Knowing Jane to be ‘getting up there’, I wrote her a Christmas card last year just to reconnect, and to let her know that while dad is losing a bit of his short term memory, he was still very much himself and retained that certain, recognizable twinkle in his eye. And that he sent her his warmest greetings. Jane, as a wealthy pillar of this community is something of a local celebrity, so I didn’t expect to hear back – but at the same time she’s also a real person whose day might be cheered to hear news of an old friend. It made me feel like I’d done something kind; sending the letter warmed my own heart.

Now I can replay the memory of Jane and son Charlie on Friday night, waving from their carriage to the throngs of onlookers, and it makes sense. They are a much more conservative-looking duo. And then when I saw the super-wide brimmed hats trimmed in flowers in that other carriage on the front page of the Saratogian, I got it. Yeah, now that’s Susan Lucci. Now that’s Marylou. And man, they look great. Good Lord, Marylou is 88! (Ms. Lucci, 67). “Hey dad” I said, pointing to the photo of Marylou on the front page, “this woman is your age!” My mother reacted with great agitation. “No she’s not!” she said, almost angrily. Then she began her version of ‘math out loud’… “eight from ten is two….” Sheesh. I looked at her, waiting for the punchline. “Your father is seven years older than me, and I’m 78” she said, her tone still vaguely angry. She clearly thought she was imparting new information. ?? “Yes, I know” I said, still confused. “Marylou was born in 1925!” she emphasized. Still confused. “She’s three years older than your father”. “Yes, I know that too.” I answered, still not seeing her point. “So yeah,” I continued, “she’s about his age. We’re talking three years’ difference.” She went on to demystify her emotional response…”You’ll come to to the point in your life one day when every year counts. You want to be given credit for each year you’ve made it.” She went on to explain with a smile on her face (I just hate it when she smiles when she’s clearly very upset. Ich, it makes me queasy) that when you’re a young child or an older person you cannot make such generalities about age. “When you’re your age, it’s ok. But not when you’re older. Absolutely not.” There was a distinct tone of martyr in her voice, as if she meant to impart that she’d worked and suffered on this planet for seventy-eight years, goddam it and she’d paid her dues… It was rather fascinating to see my mom get so worked up about such a seemingly tiny thing. Hm. Interesting. I’ve been called any number of ages with a good two decade spread, and don’t find it offensive either way. Why mom should find offense at this tiny generality was news to me. “I just mean she looks damn good. That’s all”. (Yeah, and now she looks three years better! I thought to myself.) I shrugged, indicating dad with my eyes. In his pajamas for the umpteenth day in a row, I’d hoped Marylou’s image might serve as motivation for cleaning up a bit. But this is a tired, old and oppressive household. No one’s putting on their Sunday best anytime soon.

I look back at the two beautiful faces on the front page of yesterday’s paper. Honestly, it’s hard to believe their ages. I’ve been told it’s all about the fillers – you know, the tiny injections to keep faces inflated… and man, if the technology exists to create such quality results, sign me up. I admit it, I’m one vain-ass woman, and I don’t wanna be an old lady! After a recent mid-life battle over ‘to color or not to color’ I think I can just end that discussion right here and now. Color. And filler up, too while you’re at it. Do what ya got to do. I realize I may not have the bankroll for the job, and my life isn’t exacatly fodder for the society pages. So I probably shouldn’t hold my breath. But I probably won’t go the conservative, poofy old-lady hair direction of Jane Wait either. I’ll probably end up somewhere in between. But that’s still a ways off. I can wait…

Ponderous Planet

July 25, 2013July 27, 2013 Posted in An Ongoing Journal...2 Comments

Life on planet Earth is certainly not for wimps. And while I may know only the mildest of challenges when seen in the larger scope of this immense world, the tiny events in my own life keep me ever-engaged in an unending process of disbelief, resistance, learning and acceptance. I try not to give my power over to these challenges of mine, but oh it’s tempting. Arthritis sneaks into my hands and begins to cause discomfort, an injury from some thirty years ago blossoms into a full-on nerve problem, low-grade poverty still makes it hard to sleep some nights, and of course, there are the familial concerns. The last Facebook flare-up of my ex and related responses has finally died down just in time for life to present some fresh, new dramas. Like my brother, who when faced with a family intervention for his alcoholism, bled the water line in my house dry, puzzling helpful neighbors and costing my mother several hundred dollars in plumber’s fees. Then there’s my father, who has in this past week decidedly turned a corner. Although he speaks in well-constructed sentences (and highly entertaining ones at that – his use of language still beckons an audience to listen) there is simply no point to his speech. He speaks in a conversational cul de sac, leaving even me feeling confounded and at a loss as to how to respond. Then there’s my mom, whose mobility is so much worse this year than last, and whose work load does nothing but increase – in spite of her having recently retired. And there’s Martha. The other matriarchal figure of the extended family who requires my brother’s help each day to assist with the most basic of tasks. She is not happy about this intervention of my brother’s. After all, if he goes to the hospital (which is highly unlikely at this time), who will tend to her?

This is a good month for my son to be gone. I’m not sure how it all would have played out if he’d been here. I even locked my doors last night for the very first time in my five years here – on account of my brother, and how enraged he became at our suggestion he admit himself for detox. Gotta give him props for his method of retaliation. He simply opened up both hoses and bled out the water line. Pump lost its prime, and without some serious manual intervention of said pump, no water was coming into the house any time soon. Good one, Andrew. It mighta made me laugh if it weren’t for the fact that it inconvenienced two neighbors and ended up costing our mother. Clever though, very creative. Better than a busted window I guess. (Yes, I did move the sledgehammer to a more covert location.) Now the clock starts. In a week’s time, if he still chooses not to be admitted to the hospital, mom will no longer let him use the car. Sure, she’ll ask him for the keys. That won’t do it, of course. So we’ve got our own means of enforcement, which I won’t go into here. Suffice to say the car won’t be starting for him.

Meanwhile, my house and garage are being painted. Which is fine – it’s great, actually (God bless my mom, once again she comes to the rescue) – but the folks doing the job must dodge a cranky goose and fresh chicken poop as they work. They’re a nice bunch, and really, they’re kinda like family. The dad of Elihu’s pal Keithie is running the show. But there’s a decidedly ‘Bad News Bears’ feel to the outfit; cigarette butts lay all over the driveway, and work in general seems a bit stop-and-go. But in the end there’s more ‘go’ than ‘stop’, so it’s all good.

Yeah, I don’t have it bad by any stretch of the imagination. But each day has its hiccups. And I know that for all of our sunny and polite on-the-street greetings, each one of us is a damn lier more than half the time when we answer ‘good’ when asked how we are doing. Are we really doing ‘good‘? Are things all just going swimmingly at home? Ok, so maybe they are for the most part, but there’s always that other part. We humans are so adept at keeping up fronts. I suppose we can’t all just go into it everytime someone asks us how we are, but a part of me wishes we as a culture were a bit less undauntingly cheery about things. Not that I think we should all carry our burdens forefront in our thoughts, but rather that we should all aknowledge that while things might be going well for the most part, not everything is exactly easy. We are all such troopers here on this planet. So much to do, so much to learn, such challenges yet before us. And some days, just too much to ponder.

Flip Side

May 8, 2013November 16, 2013 Posted in An Ongoing Journal..., Farm Life, Low Vision Life, Mommy Mind, Pics5 Comments

Made it to the other side. I am now one of those ‘other’ people on the planet who walk around ‘being older’, as if they were completely unaware of it! Naw, I suppose they’re aware. But what’s a person to do but march along the mortal path, make mistakes, learn the best one can… and grow older? Today, as I sit to create the quickest of posts, I have hit a particular grouping of keys which has just inverted the image on my monitor. !! Being a no-nonsense woman of action (and 50 years experience!) I simply picked the silly thing up and turned it upside down on my desk. And so there it will stay until I have some time to figure out how to ‘right’ it. Literally. But for now I will accept this as a metaphor for the second half of my life: it aint gonna be like the first half. Some shit’s gonna change. My world is gonna get turned on its rear… (and in a good way, I proclaim!) But until that time…

I’m here tonight to very quickly share some pictures from my birthday yesterday. It was a warm, breezy day, full of sunshine and without one single cloud in the sky. From my duties as recess monitor at my son’s school to a birthday gift to myself of an oil change and car vacuuming, some chicken smooching, a surprise visit from my childhood friend Sherry and her daughter Katy, and then a lovely birthday dinner with mom, dad and Elihu – complete with surprise new gas grill on the porch! – the day was about as perfect as a day could be. Let the photos commence…

My final portrait as a woman in her forties, thanks Elihu. Hey – I was pregnant with him in this same bathrobe!

A birthday tradition; I dig up perrennials from abandoned farms. How wonderful to share the beauty of these pink daffodils once enjoyed by old-time farmers Mr. and Mrs. Meunch, both now many decades gone. But their garden lives on here at the Hillhouse!

The girls are always close by to greet us

Elihu almost always has to get a proper smooching in before school

I just LOVE this fourth grade class. They’re making a fort. Lots of great ideas in this ambitious project.

They fight, yeah, but they work together really well too!

Dierdre’s got her own window!

Ok, one crazy shot allowed.

Sherry’s 50th is the 16th. We’re next door neighbors and have known each other since we were 4. !! Sherry remembers all the crazy stuff we did together in the high school and college years. I don’t. I have to ask her to tell me the stories. !

We brought our own balloons – it was just lively enough

So few of us together, must you stick out your tounge, young man?

Mom was hell bent on actually lighting fifty candles. She did it!!!

No mean feat blowing em all out!

Elihu says goodnight to grandpa

We’re not sad or mad in this pic, just tired… plus the flash is hard on Elihu’s eyes. Goodnight all!

Thank you all for a wonderful day! We felt your love and good thoughts coming in from all over.

Sending you hugs and kisses right back. May each one of us know the love of friends and family on their birthday. !

Heartbreak of Delete

April 30, 2013May 20, 2013 Posted in An Ongoing Journal..., Divorce Diary, Low Vision Life, Mommy Mind67 Comments

It really wasn’t his fault. I’d asked Elihu to go and get the phone by hitting the find button on the phone base. He hit what looked to him like the page button. Yeah, it does kinda look like it. The little icon of the phone and the icon of the garbage can are very similar in shape. Once again I learned something about his eyesight when he told me that he could barely tell the difference between them. Even though he sees fairly well up close, these buttons were virtually indistinguishable from each other. And so, with one touch Elihu erased two voice messages from my father that I’d kept on the phone for months. They were the last times dad was able to call me on his own. The last time I heard him call me ‘sweetie boopis’, a term of affection he’d used for mom and me ever since I can remember. Dad no longer called me this. Dad no longer even called. With mom now retired and home all the time he had no need to call me during the day anymore. In fact, dad had ceased calling me altogether sometime over this past fall. I’d noticed it, and so had saved the two messages from dad on my machine. And having downloaded many hundreds of photographs over the weekend, I’d actually put it on this week’s to-do list to archive those two precious messages. But in one split second they were deleted without any warning. The timing was more than ironic, the poignancy of the loss so acute, that when I learned what Elihu had just done, I lost it.

I’m usually good about small traumas. I don’t freak out over things as I certainly might have ten years ago. After having my husband tell me about his other children and his choice to leave our marriage – after news like that all else fairly pales. Nothing has ever come close. But this loss hurt. As I sobbed into my hands and rocked in disbelief, not caring if Elihu himself hurt or not, I realized why it grieved me so. Because dad had turned a corner sometime over the past few months, and I had so very little of his old self documented. Nothing recorded, no videos, few photographs. I’d been so busy living my own life until now that I’d taken the mundane for granted. Those voice messages had still sounded like the dad I knew. They were a window into a time that I realized with great reluctance was now gone. Over the past few months dad has become almost childlike – but it didn’t really hit me until I saw him at the party. He was definitely changed. Due partly to the natural progression of whatever age-related disease he has (dementia or Alzheimer’s – jury’s still out) and partly as a result of my mother’s incessant expression of control. She babies him like crazy, stealing away whatever little power he might still have over his own life. I know she may think she’s doing it for his benefit (that is if she’s even aware of her behavior), but I can say that since she’s retired recently dad’s gotten worse – and much, much faster than ever before. Take away someone’s motivation for initiative and you rob him of a basic human need. I know she can never see it, but even my young son can. We don’t like to visit their house for too long, not just because of Elihu’s cat allergies (it’s a five cat household) but also because mom is quick to react negatively (she even takes personal offense at Elihu’s allergic reaction to her cats; she’s often convinced he’s overreacting), and she’s quick to tell others what they should do and or how they should be doing it. It’s exhausting to be in mom’s household too long, and I know even my father in his declining powers is aware of it. Fighting her need to be in charge is difficult even for a vigorous and healthy person; naturally dad in his state can only acquiesce to her dominant nature.

It’s been my own personal quest not to become as she is; not to try to assert myself into the outcome of every situation. And while it’s a work in progress, I have done a good job. But with this one tiny event – the erasing of those two precious messages – my anger rises and I begin not only to hurt, but to feel sorry for myself. To see myself as my mother sees herself; a martyr to life. I begin to think that I lost something because I didn’t take care of the task myself. I mutter to myself under my breath that if ‘I don’t do something myself it doesn’t get done right’. I fume, I cry, I throw something across the room. I know Elihu doesn’t deserve this, so I take my tantrum outside. What happened is sad, yes, but I also know there’s something bigger at the root of it than the loss of those recordings. What is it? I pace, I cry, I feel my heart positively breaking. Then it dawns on me. I know what’s bothering me, I do. I’m scared about losing my father. And I’m scared that when he’s gone I’ll have very little to remind me. Of his voice, his smile, his essence. I know it’s silly human sentimentality, and in the end sentimentality is only superficial, but nevertheless it’s in me to my core. What will I do when he goes? Other people’s parents die, I know. But what happens when mine do? Even mom, as tiring as she can be sometimes, she is still my mother. How on earth will I continue when she’s gone for good? How will I cope with this sorrow? Now whenever the phone rings from next door I think “Oh no, this is the call…”

When Elihu was little we read a book by Richard Scarry called “The Best Mistake Ever”. In the story Huckle’s mother gives him instructions to go to the store and buy a short list of things for the household. He forgets his list, but with the help of his friend Lowly Worm he reconstructs it the best he can from memory. Instead of oranges he gets orange soda, instead of potatoes he gets potato chips, instead of cream he gets ice cream. When he arrives home his mother is very upset about it until the doorbell rings and it’s his Aunt and cousin who’ve come by for a surprise visit. They all have an impromtu party with the things that Huckle and Lowly have brought back, and it’s agreed on by all that the party was thanks to ‘the best mistake ever’. What a wonderful idea. I just loved the story, and although I’d heard this concept before in other contexts, until I read that particular story I didn’t fully get that the potential for unforeseen possibilities lay in the wake of mistakes – small mistakes as well as the really big ones. Even my then four year old son got the metaphor and soon we were both making lemonade from lemons; always quick to cite minor mistakes as ‘the best mistake ever’. (When Fareed made his life-changing decision I immediately thought of this story. At first it was a very bitter pill, but now it seems to be so true. If it hadn’t been for that we would never have known the life we have now.) And so with this current little episode of heartbreak I try to apply the story, I try to imagine how I might turn this around. How I might use this small loss to serve us better, how I might learn something or experience something good that otherwise I might never have known. I didn’t sleep well last night because I just couldn’t get past the sting of the loss. But this morning I awoke with some inspiration.

Friday night dinners. We’ll invite ourselves over for supper once a week. I might never hear my father’s voice again on my answering machine, but I could still make some videos of him with Elihu. We could still ask him questions – he was still very capable of conversation, especially when it was about things from the past. Yesterday – even earlier in the same day – was not something dad could speak about with any true clarity, but if one were to ask him about years past, especially his youth, he always had something to say. I told mom about my idea and she agreed. Elihu did too (he needs to dope up pretty well to go over there. And as long as our stay is an hour or less we can put up with the cats and the control issues. !) So we Conants have a plan for our future Fridays. Perhaps we’ll even learn some new things about dad – all on account of that unexpected mistake. Maybe my heartbreak itself can be erased as easily as those recorded messages.

Sunday Afternoon

February 10, 2013February 13, 2013 Posted in An Ongoing Journal..., Farm Life, Mommy Mind, Pics1 Comment

It’s been a nice day at home. Thought I’d entice Elihu outside by suggesting we follow the resident fox’s tracks around the woods, but he was happier inside. I remind myself that a bright, snowy day for an Achromat can take a bit of energy and today he just wasn’t up to it. Instead he studied up on airplanes and engines, enjoyed some time flying his helicopters – and we had a nice surprise visit from our neighbors Stephanie and Zac and their two daughters, Annabelle and Bailey (they’re expecting baby number three in late April). They came by on their old model T, for which Zac had made a fine set of wooden skis to replace the front tires.

Mom’s still in the hospital another day, so before long we need to stop by for a visit, and then we’ll head over to dad’s to bring him supper. It’s a school night, so we don’t want to make it a late one. It’s been a nice, relaxed day of aviation, friends, cooking and baking. A perfect Sunday. Here are a couple pics of Zac’s prize ride…

Loading up the family…

Crank starting the old engine…

All aboard…

They head off the long way ’round…

Passing us to the East (Saratoga Lake near the horizon)

Heading North towards the field…

Snow is clearly no problem for this nearly 100 year old vehicle!

Hospital Stay

February 8, 2013February 8, 2013 Posted in An Ongoing Journal...2 Comments

It was probably inevitable, I suppose, that one of my parents should find themselves in the hospital. Even though dad’s situation doesn’t seem like it would require such treatment, it had nonetheless been him who I’d pictured going in first. But no. Instead, my mother, the woman who still captains the ship, who still feeds my brother and dad, who takes care of the five cats, who shops, cleans the house as she can, works two days a week, pays for Elihu’s Waldorf education as well as the mortgage on our house – it is she who must stay for four days and four nights in the hospital. She’s been increasingly out of breath the last couple of months and learned she has Atrial Fibrillation (otherwise known as Afib). They tried to zap her heart to make the top and bottom valves get beating in sycn again, but it didn’t take. So now she’ll need some new meds – and she’ll have to stay in the hospital as they monitor her progress. Naturally, upon learning this, I was worried about her, but then a new reality came to me: I was now in charge. Crap. Good thing I only have one kid. Good thing I have an automatic coop door opener. Good thing my schedule isn’t over booked. Here it is, finally. I’d wondered how I’d deal with something like this for a while now, but I hand’t taken the train of thought and gone very far with it. I had a vague idea, but thought it still somewhere far off in my future. And really, even now I’m not overly concerned; things aren’t dire, not really. Mom’s being well cared for and I think dad’s ok too, and Elihu and I will enjoy being with grandpa and making him supper over the next few nights. It’s ok for the short term, but I can’t imagine living like this. Yeah, I think a one parent household is a ways off yet – but still, this is a good little wake-up call. I realize that things won’t always be thus.

It’s weird. The way we’ve all prepared the docs and sat around the table with a lawyer; on paper we’re ‘ready’ – yet still I have no idea what I’ll actually need to do when the first parent passes. I know, I know… I shouldn’t talk like this. But hey, my mom’s a 78 year old woman with a heart condition. My dad can’t even remember if he’s eaten lunch, much less operate a phone or a microwave, and his condition will only get worse as time passes. Things are changing, and I need to consider some game plans. But for now I can’t, I gotta run. Accidents at night still necessitate loads and loads of laundry (I really need to invest in a second pair of sheets and another mattress pad!), the birds still need tending, eggs need to be washed and packed, food needs to be prepared…. Plus dad needs a bunch of meds twice a day, mom needs some things brought to her in the hospital, and guess what? I’m out of gas and low on cash. And it’s a snow day, so I’ve got the kid tagging along. Sheesh. !

One thing I will do today. Mom doesn’t own a light bathrobe. She’d never in a million years think to buy herself one, because it’s a luxury, not a necessity. So, armed with a Kohl’s gift card I’m going to get her one. So she can get out of that bed and walk down the hall with some dignity. She hasn’t asked me to bring much, just the last issue of the New Yorker, some deodorant and floss. I’ll try to do better than that. I’ll pack her a little weekend getaway bag. Cuz this really is the closest thing my mother has probably ever had in her life to a real vacation. Hopefully she’ll find some rest and relaxation over the next few days, and she’ll find her heart beating normally again. Then maybe she won’t need another hospital vacation again for a long time.

The Hillhouse

The Journey of a Mother and Son

Tag: alzheimers