Edge

I’m holding on, doing what’s expected of me and trying my best to keep it together. Must admit, these past two weeks have been brutal for me. On the outside I’m sure it doesn’t seem as if much has changed. I’m trying to be as professional as I can about my obligations, but inside my mind is misbehaving. Panic is ever looming, and not a rational thought in the world can dissuade it from taking hold. I breathe, I try to distract myself, but I know the deal. There’s no talking to a panic attack. The only thing to do is either cease the activity that’s causing it, or, as I have recently discovered, medicate it.

A friend had suggested I try Xanax after my brief but uncomfortable experience on Sertraline. She assured me that it did not interfere with one’s ability to work, and it didn’t make one high either. Sounded good, but I’m usually a bit afraid of drugs, and I don’t have time to mess around with any more nasty outcomes. After doing a bit of Googling on the drug I arrived at the conclusion that it might well be my only option at present. I was given a gift of several small doses, and I’ll be damned if it wasn’t the most heaven-sent relief I have ever known in my thirty-plus year history with panic attacks. I can’t help but wonder how different things would have been if only I’d known before. My college years were hellish on account of panic… But my present no longer has to be. Finally I can look forward without the nauseating sense of dread that’s been with me that past several months.

I’m not quite there yet. I’m seeing my primary doc next week for my annual checkup, and hopefully she’ll agree to write me a script. I wrote her a letter today, explaining my situation in hopes that it’ll prep her before we meet. I have a few doses to help me ride out the coming week, but I don’t feel I’m out of the woods yet. I won’t be able to fully relax until my doc can agree to help. It won’t be a lasting situation; I just need some assistance getting through this chapter. Yoga and walking might help, so too might eating extra healthy, cutting out alcohol and caffeine, but they’re not doing the trick in and of themselves. It’s time to take more action still, because living on the edge of panic is exhausting, and these days I’m already tired enough.

Control

Yesterday the weather was misty, white and damp. The trees seemed to be floating in the sea of melting snow, and the lines of the garage appeared smudged and indefinite from our windows. When Elihu went out to shut in the chickens last night he said the air smelled like summer. At a balmy 48 degrees it was decidedly more spring-like than the below zero temps we’d just experienced a few days earlier. Even so, the driveway was still one big sheet of ice and the rain continued to fall all day, so we stayed inside.

My life has been rather consumed by outside events lately, and I’ve been going, going, going, with no time to stop and just breathe. Up until dad died my time had been all about the wait, right after his death it was all about the details, and getting through it. Shortly after that my son returned home, then school began and with it new music, new classes, new schedule. Apparently, it’s been getting a bit too much for my system, as the recent return of panic attacks has pointed out. On Friday I had a roaring, unrelenting headache and was worried about another episode of panic hitting me while at the piano during afternoon classes, so at lunchtime I confided in Elihu’s teacher my situation. She encouraged me to take a sick day. Really? The thought had never occurred to me. I mean, if I don’t show, there’s no music. The class is different, the teacher’s lesson plan is screwed up. I don’t want to do that to anyone. Personally, I gotta be deathbed sick not to come in. Or do I? I was feeling horrible enough. The idea of staving off a looming episode of panic was in of itself creating more of the same, and that headache was just about enough to make me throw up. Maybe I could wave the white flag just once. I went to my car and called the high school. Told em how lousy I was feeling, and that was it. I cast the possible consequences out of my mind. And wow, I felt better. So much better. I’d taken the reins and pulled the cart over for a short rest, and it looked like things were still going to be ok.

Elihu and I spent yesterday in our pajamas – we even managed to go next door to visit with mom without ever having to get dressed – and we went to bed in the same. Yesterday we just needed a moment. Even played hooky from his 4H group. It was just too much. Between his asthma and my panic, we were a little beat. I’m usually strongly motivated by doing what I should, doing what’s right and polite. But yesterday I let us both off the hook. I felt a little bad about the 4H thing, especially as Martha’s sponsored his membership, but our own mental and physical health superseded all of that. And although we spend the day in our bedclothes, it was certainly not an idle day, not by far. Because we cleaned house.

Contributing in part to my ill-ease these days has been just knowing that my house is, well, filthy. Absolutely filthy. Messy, ich, maybe a little. Systems needed tending; the cabinets, pantry and kitchen drawers were getting to be tangled, tossed-about snarls of stuff, but that was just a matter of putting like with like. That I can do (although it still requires time, that most valuable commodity of all), but it’s the cleaning that I find so daunting. As in wiping cabinet fronts, dusting the tops of shelves, sweeping the cobwebs off of the ceilings, and of course, dealing with the floor. I think back to those blessed days in Evanston when I’d had dear Marianna come in two whole days a month to help me keep my house in top shape. Even then, I’d work by her side as she cleaned; keeping a house in clean, working order takes many unseen hours of manpower. I know damn well that I could not have kept that house without her help. Yes, my current house is much, much smaller, yet it’s still no small task to see to its care. The past month or more it had just been too much. So yesterday was the day to take it on.

I’ve just woken up and have begun to assess my progress from yesterday. Sitting in my chair right now, listening to the basement sump pumps kick in every so often as their chambers fill with snow melt, I feel relief. While I may not have washed the kitchen floor (on the docket for today) I did manage to vacuum the whole place, and dust too. It feels better to sit here and look about me. Elihu, bless his ten-year old soul, organized and tidied the pantry, and I set other little corners in order. The kid even straightened out his room and it looked just as good as if I’d done it myself. We’d been a happy mood last night as we dined on artichokes and grass-fed beef burgers grilled outside on the rainy porch. I enjoy my son’s company so very much, and am increasingly grateful for his presence as he shows himself to be not only an able-bodied young person, but one who is earnestly cheerful and enthusiastic about doing his share. He derives a good bit of pride in helping to make his surroundings attractive. I think it helps to make him a healthy, balanced young man. It certainly helps me! To have a child that wants to help, that asks what he can do to help me… I’m probably luckier than I realize. (Not holding my breath, I realize we still have those teen years ahead.) So it lifted my heart a great deal  – and my burden as well – to accept the capable assistance of my wonderful son. And sharing a few lovely meals together was the perfect complement to our refreshed home.

In an attempt to take the bull by the horns and stop this panic thing in its tracks before it got worse, I’d recently asked my doc about going on antidepressants again. I’d taken them five years ago, when we moved here, in order to navigate the transition from my old life to this unfamiliar one. I guess they’d done what they were supposed to, because somehow, we got here. When they’d served their purpose I stopped taking them. That process, as I recall, was not without its unpleasantness. And so too, apparently, is the process of getting back on the drug. I took Sertraline for four days when I realized this was not the same experience as before. The last situation had been far different, after all. If for no other reason than the sheer amount of gin I had been drinking to get through. ! I’m not keen on admitting it (nor the Marlboro reds smoked at 4 am, but hey, it was a very tough time) but I do so in order to illustrate a point: finding the right drug – or the right solution to a medical problem – is not always as easy as one might hope. Lots of factors affect your reaction to a drug. In my last case I was already a bit impaired because of the alcohol, so my body was physically in a different place. Who knows the rest of the physiology. Back then I was acutely upset, and my distress these days is of a different nature. All of this must come into play, I’m sure. And – I would like to emphasize this clearly – it’s critical that one listen to and heed the wisdom and guidance that comes from inside. If it doesn’t sit right with you, pay attention to that feeling – take that tiny hunch and magnify it ten times! While I realized that the benefit of the drug might still have been a week or more away, I could see the process wasn’t worth it. In fact, it actually made my panic worse. Gave me sweaty hands, a headache, and in spite of prescription sleeping pills, it gave me insomnia. I felt as if I was in a tube, getting farther and farther away from my surroundings. In an attempt to gain control of my very life, I was, ironically, losing control. And loss of control is a founding component of panic attacks. Yeah, I was going to have to figure this out myself. Disappointing at first, but empowering when I thought about it from the standpoint of control. I wanted to be the one driving if I was able.

The morning that I decided to chuck my meds I also decided to go downstairs and see if I couldn’t get the treadmill working again. After fiddling around with the fuse and the starter I got it to move again, so then logged forty-five minutes of a brisk walk before I got to my day. That felt good. What a hopeful start. The tiny voice inside – like the spec in ‘Horton Hears A Who’ – had shouted to me that I must move. Throwing some endorphins in the mix might even help with my panic attacks. No doubt, my body needed action. While making breakfast and getting lunches ready for school I’d been watching the relentless barrage of early morning paid-for tv spots that advertised workout routines for transforming one’s body… so the January push to get back into healthy living was underway. I didn’t need to buy a ten dvd set. I had all I needed. Lucky me. One more time, here I go…

I don’t necessarily believe that my struggle with panic is over, but I can see a bit of relief ahead. The important thing for me, I think, is that I’m going to do this myself. I have begun to take back a little control. Whether it’s subduing the clutter in my home, attacking the floors with a thorough vacuuming or getting on the treadmill for a half hour’s walk, it’s taking control – taking action – that helps move me towards my goal. There is one thing that still looms large and uncontrollable above all, and that’s going to be the biggest challenge for me: coming to terms with my father’s death. I do think his passing has contributed to my panic. His departure from this world is permanent, and on some level that idea to me is flat-out terrifying. It’s more than I can bear some moments. But I need to come to peace with it somehow. That’s going to be another issue before me in the coming months as I try to regain control as I’m able, and maybe more importantly, relinquish those things over which I can never be in control. Tricky balancing act, but it’s a challenge every single one of us is working on each day.

I’m stuck here on this silly planet for the time being, so I may as well do my best while I’m here. It’s so easy to want to give in, to throw in the towel, to not fucking care anymore. Life sure can press in on you. The thing is, sometimes you just gotta reclaim what control you can and press right back.

Scare

“What happened to your fingers?” one of the eighth grade girls asked me today as we stood chatting and waiting for the teacher to arrive. It was more than the uncensored nature of youth that allowed her to ask me without first editing her thoughts (or her surprised tone) – I’d spent some time with this class accompanying them at several performances, so by now they felt pretty familiar with me. While her question initially stopped me in my tracks (I kept my cool in spite of it), I appreciated the candor of her question, because it confirmed for me that it wasn’t all in my head… I’d known it was bad, or at least not good, for a while now. In fact I’d even heard slight gasps from my adult students in class last year when showing them the hands that had just demonstrated something intricate on the piano. There had been a slight pause in the room as people began to reconcile the music they’d just heard with the hands they now saw before them…

The nodes on the distal joints of my fingers can’t be ignored anymore – certainly not be me, nor by folks I meet for the first time. They are large, they are painful, they get stuck in between the black notes – and they are not getting any smaller. Just this past week I had a painful day of great sensitivity on the fourth finger of my left hand, and the next day there it was: a fresh, new node. A newly deposited growth of bone, I suppose, from what I’ve seen and researched online. Just about a year ago I’d gone to an orthopedic doc, before it had gotten terribly bad, and I was more than disappointed to hear him tell me there was basically nothing I could do about it. There were some drugs I might take, but they had a lot of potential side effects which probably weren’t worth it, he advised. I’d been prepared to hear something like this, but it was quite disappointing even still. I mean, come on. Everybody and his brother has arthritis and has for as long as we can remember – and I still have so few options? Seriously??

As a young adult I can remember looking at my mother’s hands and thinking that the distortion in her fingers was almost unbelievable. As if she certainly must have done something to have earned them. Knuckles don’t just blow up like that unprovoked, do they? Well, no matter who or what was responsible, a fate like this was certainly this poor woman’s cross to bear, but thank goodness, I’d think confidently to myself, that’s not my future. I’d even had such smug thoughts knowing damn well that while I do get my musical talent from my father, I look not a thing like him. No. Rather, I look like my mom. So here I am, at the start of my fifties and my own beloved hands are blowing up like those of an old peasant granny. For heaven’s sake. This is so not me! Come on guys! I beg my hands. I love you guys! I appreciate you guys! Why are you doing this? Why? I plead with them, even kissing them like a mother would her child. But onward they go, their shapes morphing almost as I watch; the minute, intermittent stabbing sensations and dull, hot pain confirming for me that things are, in this very minute, continuing to get worse. I’ve cut out wine. I’ve cut out acidic foods. Dairy. Salt. I read, I Google, try something else. I drink water. I try to think positively. But my fingers respond to nothing. My disease is progressing without my consent, and I am sad. Scared, too.

It’s a dull, ever-present sort of scared, it’s one I can live with. But there are other insidious types of fear that I find have been making headway into my life of late, and I don’t like it. I might be able to live with them too, but I sure as hell don’t want to. I may strike people as a strong woman – and some days I might agree – but I can feel that it’s becoming a bigger challenge these days to keep it together. Panic has resurfaced over the past year, chronic concerns over money feel even more real as my own aged years loom closer (and I have not a penny saved), and then of course there is always the concern for my son. His vision, his ability to participate as fully as he can in the world, and of late, I worry about his having contracted Lyme disease. We’ve begun his treatment, and docs assure me that in a young and vigorous kid like him, he’ll have no worries later on. It helps, but angry emails from his father telling me that I “need to take this seriously” as if somehow I do not, and telling me I might have been more vigilant when I in fact had been worried but hadn’t had him checked yet, this all makes it much worse. I don’t know how my ex still has such power to hurt and frighten me…. I summon my focus and I stand up to him. Right after, I beg my son in my heart to forgive me for not knowing, for not doing something sooner…

Tonight Elihu asked me to please stay and read to him. He said he was feeling ‘needy’. I hadn’t given him a lot of one-on-one time lately as I’d had too much life to deal with. Music to learn, house to clean, food to fix and such. Tonight, we agreed on a trade. If he’d let me just organize the mess in the kitchen – get it squared away just a bit – then I’d come in and read to him. I did, and shortly after I began to read we both started to drop off. I turned off the light and soon fell deeply asleep. The next thing I know Elihu is feeling for me in the dark and muttering something. He, like me, is a sleep-talker. He can even hold some conversations in this state, so at first I wasn’t concerned. But this was different. He reached out to me with outstretched arms, which I took for a hug, but he shook his head. “Machine” he said, pointing to his nebulizer. Can you imagine the shot of adrenaline that flashed through my body? I immediately got a packet of medicine, poured it in and gave him the mouthpiece. He looked drunk. After a few puffs he laid back down. I yelled his name and shook him – “Are you ok?” He waited for a moment, then nodded no. “This is different” he said through closed eyes.  “Do you need to go to the emergency room?” I asked. He nodded yes. “Yes, emergency room” he said, again his head drooping to the side. Holy fucking shit. White hot fear coursed through me and my heart began immediately to beat as if I’d run a race…. I thought back to a panic attack I’d experienced earlier that day. It was a close second, for sure, but man, these stakes were mind-bendingly high… I ran through the house, pulling on clothes, locating his rescue inhaler, my boots, keys, a blanket to wrap him in…. I came back and tried to tug a sweatshirt over his head, but he fell limply to the side. Holy shit, holy shit, keep moving… I was thankful that the ER was just about five miles away, and we could be there in less than ten minutes. Lucky…. “Elihu!” I yelled at him. “What?” he finally responded. Then a look overtook him, and he sat up, eyes fully open, as I tugged the sweatshirt down around his neck. “What are you doing, Mommy?” he asked. “We’re going to the hospital – to the emergency room! You said you needed to! Can you breathe now? Are you ok??” He shook his head and fell back down on the pillow. “No, I wasn’t waiting to go to the emergency room. I just wanted a more comfortable pillow.” He lifted his head up and I inserted the down pillow underneath him. He plopped back down onto it. “Honey, are you ok? He nodded. My heart was still pumping loudly, and I wasn’t convinced. But I realized that he was still deeply asleep, and that while he may have needed help with his breathing, it wasn’t as dire as his sleep-talking self had said. Oh my God, I kept thinking over and over again, the prospect of a life without my beloved son flashing uncontrollably, nauseatingly, through my mind. My God, I think, and I my face sinks into my hands. Holy shit.

For the most part, I’d say I’m a glass half-full gal. Might not always have been, but I am now. Only I’m not sure if I could remain so if I were to lose my son. For that matter, how will I feel about that glass when I can no longer play the piano? Many times I have thanked the universe for all that I’ve been blessed with. Even the unexpected divorce and all the unforseen events that followed. It’s all been one unpredictable adventure from which I’ve learned so much more than I ever would have otherwise. If I hadn’t once been scared shitless, I wouldn’t be here now. I remind myself that fear has its place. But truly, I don’t think I need any more. I’m good. I don’t want to have to find out if I do or do not have it in me to live through a tragedy. Please, universe, don’t try me. I’m good with things the way they are. And I aim to make things better, too. I aim to get my son tinted contacts this year. I aim to teach him how to ride a bike, to make dinner on his own. We still have so much more to do, I have so much more to teach him. Let’s just get through this night, please, I beg anyone who might be listening. My right index finger hurts, my head hurts. I am emotionally weak just thinking of yesterday’s new run-in with panic. I am scared. But I remind myself: I might be scared, but I am strong too. Posturing though it might be in this moment, as the adrenaline begins finally to subside, I challenge my fear. I tell it we’re done for the night. Running in to check on my son every few minutes as I write this middle-of-the-night post and finding him in a comfortable sleep, breathing nice, even and deep breaths, I begin to take back what power I can. I tell fear to leave us alone.

Soon I think I’ll get to bed myself. One more check on Elihu, one more set of good, deep breaths and I’ll lie down.Man, I sure could use a rest after all of this… And I’m pretty sure being brave may well require a good night’s sleep.