The arthritis in my fingers has progressed quite a bit over the past year and a half. Just this past week my hands have undergone another big change. In fact, the change has been so rapid, it’s hard to fully comprehend. I so wish I had a baseline x-ray from before ‘the change’, or at least a photo of the way my poor fingers used to look, but practically speaking, I don’t need proof of how far things have gone. One look at my hands says it all.
In addition to watching the distal joints not only grow dramatically in girth, I’ve seen the tips of my fingers begin to bend forward, taking the shape of mini hunchbacks. When I hold my hands out, I no longer see the nails of my fingers. The disfigurement of my fingers was a little hard on my vanity at first (nearly everyone who sees my hands either makes an audible gasp or their eyes linger for a moment, and those who feel comfortable are quick to ask me if they hurt), and the occasional flare-ups were painful inconveniences, but now it’s become much more than a casual nuisance, and frankly, I’ve become worried about it. So far, it hasn’t hampered my ability to play the piano well, however it has changed how I play. Because the tips of my fingers essentially curve downward, I cannot tolerate any extra length of nail, as my nail hits the key before my fingertip (this is currently much more pronounced in my left hand). Again, that had become tolerable, and having become aware that I need to keep my left hand nails very short, I was ok with the change. But now, as of this past week, my hands are in an almost constant state of low-level discomfort. The index finger on my left hand has had a couple of distinct and alarming events, and it all has me wondering how in hell I’ll make it to my aged years if things keep up as they’re going.
Last night, the index finger on my left hand made a clicking sound, and from the middle knuckle, it visibly kinked to the left. I could see the difference from one moment to the next, because it leaned dramatically. I panicked, and quickly grasped it with my right hand and pulled. Somehow, it clicked again, and straightened back to its original position. Even so, it had been several years since my index finger had been straight, but thus far it had served me fine. But tonight it does not feel as it did even a few weeks ago; the tip of my index finger now makes continual contact with the tip of my middle finger. I suppose it would annoy and distract anyone, but somehow, being a pianist, I feel as if I’m hyper-aware of it. And to be entirely honest, it frightens me. If it continues like this, my two fingers will end up becoming crossed at some point. How can I live like that? It makes me scared, but also, it makes me angry. It really pisses me off. I know it’s not a healthy voice to indulge, but still, it rises up from within… Seriously, why me?
But of course I know the answer to that question: why not me? I have friends who are suffering far worse and more inconvenient health issues, and remembering that, I try to keep calm and concentrate on what I do still have, not what I don’t. Nonetheless, the idea that my fingers are continuing to get worse scares me, because as I understand it, once it happens, there’s no going back. This sucks, and my mind looks for solutions. I’ve been proactive in every way I can think; I’ve seen the conventional, Western doctors, I’ve done acupuncture, Chinese herbs, a small round of pulsed electromagnetic field therapy, plus I’ve done my best to change my attitude and think hopefully and positively about my outcome. I’be begun exercising, drinking less alcohol, drinking more water, using less salt. At the end of the day, it really bothers me that it appears there’s not a thing I can do to stave this off, in spite of my willingness to do whatever I’m able.
I can’t help but wonder, if it’s simply extra material that’s forming on the ends of my bones, why can’t I just have it removed? Scraped off? And furthermore, if my body can’t be stopped in its self-destructive path of breaking down its own cartilage, why can’t I just have some sort of gel injected onto the problem sites to replace it? Seems intuitive, straight forward. Yet no doctor I’ve seen has told me this is a viable option. Of all the doctors I’ve seen, not a one of them has offered any solutions. Not preventive, nor curative, nor even restorative. And again – that pisses me off. Our technology is soaring by leaps and bounds, yet when it comes to one of the planet’s most pervasive health complaints, not one fucking thing can be done about it. Nada. Oh yeah, you can take glucosmine. Chondroitin sulfate. And supplements too. But the jury’s still out on all that. Regardless, I take the stuff, cuz I figure it can’t hurt. But so far, it sure hasn’t helped.
When I was a kid, I remember hearing all the ‘old folks’ – meaning anyone in their forties or beyond – griping about the mounting disappointments of aging; new ailments, gray hair and wrinkles, having to walk back into a room to remember what you’d come there for in the first place – the usual stuff. I also remember thinking that somehow these older people didn’t get it. That maybe they’d even done something wrong somewhere along the way – made a tiny misstep or bad choice once upon a time – that earned them their current set of problems. I felt certain, so very certain, that their fate would not be mine. Somehow, I’d age without incident. If I was to get wrinkled and gray, somehow I would not be diminished by it; I would enter that phase when the time was right, and somehow, if I did actually end up getting old, I’d be ready for it. In any case, it wasn’t worth thinking too much about, as it may as well have been a century or more off into the hazy future. The grown-ups would laugh and joke to my brother and me, telling us that one day we too would find ourselves saying the same things. My mother even told me how her own mother had said the same thing to her, and that as a child, my mother too would think secretly to herself that nothing could be further from the truth. She was not going down the same path as her mother, no way…
My mother’s hands do not look good. For the past twenty years her fingers have been grossly enlarged. Her wedding band looks as if it’s choking off the finger above it, and her middle knuckles are so large that it’s become difficult for her to grasp some things. I too have noticed things slipping through the spaces at the bottom of my fingers recently, and it’s just one more goddam thing I thought was strictly for old folks. I’m not taking to all these changes very well, I realize that. And until just a couple of years ago, I’d look at my mother’s hands with pity; imagine suffering that fate. Good thing it won’t be mine, I’d think. I shoulda known I’d be wrong – physically, I take after my mother more than my dad. And while I may have gotten my musical gift from him, sadly, I did not get his hands. I’m grateful that my son Elihu clearly has his father’s gorgeous, guitar-playing hands. Slender fingers with deft, double-jointed thumbs, he’s set for a life of great dexterity and finger health. For that I’m relieved and happy. Almost makes up for my own personal disappointment. Almost.
I suppose I’ve had a good run; I’ve gotten a good deal of use and music out of these fingers. Can’t have regrets. But still… I won’t stop searching for a solution to my arthritis. And I’ll do my very best not to pout and complain about things. I’ll continue to play piano, to make music and even attempt to learn new instruments. (But I won’t be doing any hand modeling jobs, that’s for sure.) So far, it seems that all I can do is deal with things as they are. But I’m still holding out hope that one day a cure will arrive. Some sort of meaningful relief of symptoms, or at the very least a way to halt the disease’s progress. A girl can hope, right? Fingers crossed…